Hi, The docs just started my youngest, Rachel, on it. She's been on it for about a week and a half going on two. I was aprehensive about it simply because we'd requested Megace. We had good results with Megace when my oldest daughter used it. But they didn't want Rachel on it because of the glucose issue. Although, Anna was on it when with CFrD and no one brought it up then.
After looking up the info. on-line and the dosages available I decided to let Rachel try it since she was inpatient at the time anyway. We refer to it as her "pot in a pill". So far she seems to feel it does make her hungry but it's not a long lasting thing. That she's hungry all day or even throughout the day but only for a little while. It kicks in and wears off. BUT, she is on the smallest dose, 250mg once a day. Which is what I would have asked for if they hadn't prescribed it that way. Rachel only experienced a "woo" feeling once, while in the hospital. The floor was wavy she said. As you can see by my signature photo Rachel is a petite girl, just barely 5'. She'd lost alot of weight, down from 98 to about 84. (Thank you college, her freshman 15 went in reverse) We, she, mostly wanted someting to boost her appetite to help her gain her weight back faster while we was in the hospital and get over the hump which she felt she'd hit at about 95 lb. Her goal weight is 100. She's never had trouble gaining or maintaining before and we don't anticipate their being a problem now so we are only thinking of her using the Merinol for about a month, just til she gets home for Christmas break.
So that's our/her experience so far. She's driven her car with no problems and it doesn't make her sleepy. That was the plus of being inpatient when she started it, we'd know how it was making her feel before she needed to drive.
Not much info but I hope it helps.
