Much to my surprise my insurance actually approved Xolair injections. The reason for my surprise is my pre/post albuterol pfts were identical. At least the print out looked like it to me. Does anyone know which number they really care about to define an "asthma component" to our cf. Also my IgE level is 80. (Not crazy high) But since evidence has shown it beneficial to those with an IgE over 30 I'm willing to give it a try. I culture one colony of aspergillus occasionally. My cf doc doesn't think this is going to help but is playing along with my allergist and my wishes.
How many months do you think I'll need to try it to see if it makes a difference?
Any real risks?
How many months do you think I'll need to try it to see if it makes a difference?
Any real risks?