Hello everyone-I just want to thank those of you who responded to my very first message on this site,entitled, "i need advise"! First, let me say that I do know how to spell, and it's advice, not advise! Ha! I'm learning that a bit of humor goes a long way, especially in the lives of people who are living with cf! Although there have only been two responses to my first message, I have gotton over being offended, wondering why no one has responded, and just all around feeling a bit insecure! Ha! Again!! Seriously, I feel as though I am making new friends, just reading your messages to one another, and am learning so much!! Not only about how to be a better support for my loved one, but about people, and how brave and courageous you all are! Someone who responded to my first message recommended the book, The Thread. I would really love to know where I could get that book. I am going to check out our local library, and Barnes and Nobel, but I'll let you know if I have a hard time locating it. It's amazing how often I find myself checking in, to see who is on, and how everyone is. What started as a request for help, has turned into a concern for many, and a feeling of being part of a "family"!! Thank you again! Your new friend, Chloe
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
still learning...a long way to go!
- Thread starter chloe
- Start date
I am glad that you are finding support here. Don't worry that only two people responded. Sometimes it happends that way. This site is famous for making people feel welcome. If you have any more questions, feel free to ask and I am sure people will respond.The weekends can be slow here because everyone is busy doing stuff. Or you can feel free to read all the posts, they go back quite a ways.
It happends quick, feeling like it is a family here so I know what you mean. I check in here all the time and when I notice someone didn't post for a while I ask about them.
Like for instance Coll, Emily and Juile where are you guys??? (I haven't seen them post in a while) so where are you guys btw?
Also there is another website called CF2Chat where you could go and find out more information as well.
Hope you stay around
CS
It happends quick, feeling like it is a family here so I know what you mean. I check in here all the time and when I notice someone didn't post for a while I ask about them.
Like for instance Coll, Emily and Juile where are you guys??? (I haven't seen them post in a while) so where are you guys btw?
Also there is another website called CF2Chat where you could go and find out more information as well.
Hope you stay around
CS
Thanks for the encouraging input!! I really appreciate it! I am commited to staying in contact, and learning all that I can. I not only want to be supportive of my family member, but others as well! I have to run, and will be away on a business trip for the week. I'll check in as often as I can while away! Thanks again. Chloe
NoDayButToday
New member
I'm around! I've just been very busy, with school, band, debate/speech, and being field hockey manager. But I am around, and check out the site whenever I can.
Welcome Chloe!
Welcome Chloe!
Actually if you go back to your original post it is not a book he is recommending. If you click on the blue highlighted it will take you to anothe thread here on the forum. Most of the things on there are talking about supporting a family member. I think thats one reason why not many posted because they felt that the link on there would be of more help to you.
I didn't post because mockingbird included that link to a very similar question on this forum. Of course, being new, you would have no way of knowing that.
As I read over your post again, and then read the responses to the post of the link that mockingbird gave you (are you confused yet ? <img src="i/expressions/face-icon-small-smile.gif" border="0">) There is one thing I would like to say....
It's one thing if the CFer that you care about/love is making career decisions to work in the medical field, knowing that they are suseptible and might comprimise their health and in the long run shorten their life. That is a PERSONAL choice and although you have every right to voice your concern about it, don't push that one-there are bigger things to tackle. The way my husband looks a life (and so do I-NOW), he would rather have QUALITY QUALITY QUALITY (of life), than QUANTITY, QUANTITY, QUANTITY (living longer). Because in the end, all you have is the memories, the good times, everything you did and overcame despite all the obstacles in your way. His biggest fear/thing that he dreads the most, is laying in bed in his last few days or moments and wishing that he had done something, that he hadn't held back, that he had been LESS concerned about how it would affect his health and MORE concerned about how much fun it would be or what kind of memories/experiences would come of it. Sure, if they didn't work in the medical field, maybe they would live an extra 7 years (for example) but it might be doing some job they loathe instead of a job that they LOVE. Does that make sense.
The area where I think you should be concerned and maybe have a talk with them, is that if their health is going to jeporadize the type of paitens they work with (i.e. immuno comprimised patients, cancer patients, aid patients). The have NO right to put others in that position. If they want to put themselves in that postition because it is what they love, that is one thing. But a line is crossed when they are comprimising the health of other patients. If you are going to have a talk about anything relating to their line of work, this is the one I would recommend you choose.
Anyways, off my soap box. WELCOME to the site and i'm sorry you didn't get too many responses to your posts. I too get a little butt hurt when nobody responds to my posts. It usually doesn't happen that way, people love to jump in all over the place on this board and it's great! Also, for some reason, fridays and then the weekends seem to be the times when the least amount of people are visiting/posting. You might get a few more responses during this week??????
Please stick around, there are many of us on here who can share stories, "been there done that" stuff as well as Cfers who can give you their firsthand advice, "when a friend/loved one approached me in this mannor about this thing, here's what they did wrong" sort of stuff.
Welcome,
As I read over your post again, and then read the responses to the post of the link that mockingbird gave you (are you confused yet ? <img src="i/expressions/face-icon-small-smile.gif" border="0">) There is one thing I would like to say....
It's one thing if the CFer that you care about/love is making career decisions to work in the medical field, knowing that they are suseptible and might comprimise their health and in the long run shorten their life. That is a PERSONAL choice and although you have every right to voice your concern about it, don't push that one-there are bigger things to tackle. The way my husband looks a life (and so do I-NOW), he would rather have QUALITY QUALITY QUALITY (of life), than QUANTITY, QUANTITY, QUANTITY (living longer). Because in the end, all you have is the memories, the good times, everything you did and overcame despite all the obstacles in your way. His biggest fear/thing that he dreads the most, is laying in bed in his last few days or moments and wishing that he had done something, that he hadn't held back, that he had been LESS concerned about how it would affect his health and MORE concerned about how much fun it would be or what kind of memories/experiences would come of it. Sure, if they didn't work in the medical field, maybe they would live an extra 7 years (for example) but it might be doing some job they loathe instead of a job that they LOVE. Does that make sense.
The area where I think you should be concerned and maybe have a talk with them, is that if their health is going to jeporadize the type of paitens they work with (i.e. immuno comprimised patients, cancer patients, aid patients). The have NO right to put others in that position. If they want to put themselves in that postition because it is what they love, that is one thing. But a line is crossed when they are comprimising the health of other patients. If you are going to have a talk about anything relating to their line of work, this is the one I would recommend you choose.
Anyways, off my soap box. WELCOME to the site and i'm sorry you didn't get too many responses to your posts. I too get a little butt hurt when nobody responds to my posts. It usually doesn't happen that way, people love to jump in all over the place on this board and it's great! Also, for some reason, fridays and then the weekends seem to be the times when the least amount of people are visiting/posting. You might get a few more responses during this week??????
Please stick around, there are many of us on here who can share stories, "been there done that" stuff as well as Cfers who can give you their firsthand advice, "when a friend/loved one approached me in this mannor about this thing, here's what they did wrong" sort of stuff.
Welcome,
Thanks everyone...As you can tell...I'm not a computer wiz!! Ha! I didn't realize that "the thread"...was a link. Thanks for letting me know! I checked it out...and yes...it sounds very much like what I was talking about. I found it interesting...and helpful...especially the different responses. I appreciated the support given to JennifersHope...but also the advise given by another person who is involved in the medical field, and had a little different perspective from personal experiance. Once again...I really appreciate you taking the time to write, and help me! Chloe