Still no better

Jeana

New member
Actually, I think you may be right on with the inflammation, thing. I have been in the hospital 10 days being treated and my PFT's are about the same. My doctor said my creatine level (which deals with inflammation) was higher than when I came in, so he started me on steroids (prednisone). But he is only giving me four days of it and I'm not sure if that will help. I've already had two doses and don't seem to be better, yet. But, since I'm pregnant, I'm ready to say forget it. Maybe I'm just doomed to be unwell until the baby is born. I mean, how many drugs do I want to submit my baby to? Plus, I am out of sick leave and my husband is unemployed due to seasonal work. Arrg! Everything at once.
 

Jeana

New member
Actually, I think you may be right on with the inflammation, thing. I have been in the hospital 10 days being treated and my PFT's are about the same. My doctor said my creatine level (which deals with inflammation) was higher than when I came in, so he started me on steroids (prednisone). But he is only giving me four days of it and I'm not sure if that will help. I've already had two doses and don't seem to be better, yet. But, since I'm pregnant, I'm ready to say forget it. Maybe I'm just doomed to be unwell until the baby is born. I mean, how many drugs do I want to submit my baby to? Plus, I am out of sick leave and my husband is unemployed due to seasonal work. Arrg! Everything at once.
 

Jeana

New member
Actually, I think you may be right on with the inflammation, thing. I have been in the hospital 10 days being treated and my PFT's are about the same. My doctor said my creatine level (which deals with inflammation) was higher than when I came in, so he started me on steroids (prednisone). But he is only giving me four days of it and I'm not sure if that will help. I've already had two doses and don't seem to be better, yet. But, since I'm pregnant, I'm ready to say forget it. Maybe I'm just doomed to be unwell until the baby is born. I mean, how many drugs do I want to submit my baby to? Plus, I am out of sick leave and my husband is unemployed due to seasonal work. Arrg! Everything at once.
 

Jeana

New member
Actually, I think you may be right on with the inflammation, thing. I have been in the hospital 10 days being treated and my PFT's are about the same. My doctor said my creatine level (which deals with inflammation) was higher than when I came in, so he started me on steroids (prednisone). But he is only giving me four days of it and I'm not sure if that will help. I've already had two doses and don't seem to be better, yet. But, since I'm pregnant, I'm ready to say forget it. Maybe I'm just doomed to be unwell until the baby is born. I mean, how many drugs do I want to submit my baby to? Plus, I am out of sick leave and my husband is unemployed due to seasonal work. Arrg! Everything at once.
 

Jeana

New member
Actually, I think you may be right on with the inflammation, thing. I have been in the hospital 10 days being treated and my PFT's are about the same. My doctor said my creatine level (which deals with inflammation) was higher than when I came in, so he started me on steroids (prednisone). But he is only giving me four days of it and I'm not sure if that will help. I've already had two doses and don't seem to be better, yet. But, since I'm pregnant, I'm ready to say forget it. Maybe I'm just doomed to be unwell until the baby is born. I mean, how many drugs do I want to submit my baby to? Plus, I am out of sick leave and my husband is unemployed due to seasonal work. Arrg! Everything at once.
 

Nightwriter

New member
Hi Jeana,

I don't know anything about your individual situation, so it's hard to comment on it specifically. If you read any of my posts, inflammation is pretty much all I talk about. I think I'm sounding a bit like a broken record.

But let me say this about inflammation. A lot of doctors do not talk much about this (although yours did). They'll talk about viruses, bacterial infections, fungal infections...but usually not much about inflammation. They know that people are familiar with infection and many people feel secure getting antibiotics. That's why even normal people will say, " I've got a cold and my doctor put me on antibiotics." The fact that they kinda know antibiotics don't work on viruses, isn't important.

So then we come to C.F. Aside from Pulmozyme and Hypertonic Saline, what are CF drugs for the lungs? Well, we get antibiotics and Asthma drugs. Bronchodilators, drugs like Flovent, Advair, and so on...but yet many doctors never test patients for asthma (for which you can have no symptoms) allergies, explain how CF'ers probably have chemical sensitivities, as well as how other irritants are causing the airways to narrow, trapping bacteria causing infection.

Many doctors don't recognize that many exacerbations could be inflammation and NOT infection. They don't even note some of the clues including this one: that if nasal passages and eardrums are red and swollen, or if your throat has bright red capillaries: that that's how your lungs look too. Inflammation.

My doctor believes instead of loading every patient up with tons of Prednisone, sometimes she may give a cortisone injection, or maybe change the medications and always have the patient do an anti-inflammatory, protective measures regimen at home. Sometimes antibiotics are needed. It's a judgement call, one she makes. Not me.

So what do you do? You are pregnant and sick and antibiotics aren't helping you. And now on steroids.

You and your doctor will have to come to decision medically what to do. But in addition, you should learn how to control your environment, your food, your whole life actually. When the air you breath improves you will improve. When you reduce inflammation it's possible you will improve. You can do a lot of natural things. You can ask your doctor about Nasal Rinses, Hypertonic Saline if you're not doing this. You can yank up carpets, use fragrant free products, encase your pillow, buy an air filter...

Lastly, I am posting a link to a Time Magazine cover story: Inflammation - The Secret Killer. Feb.23, 2004. You will be amazed how science is proving that most diseases are caused by inflammation. If you read this, you will really understand how inflammation is wreaking havoc in your body.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.time.com/time/covers/0,16641,20040223,00.html
">http://www.time.com/time/cover...6641,20040223,00.html
</a>
 

Nightwriter

New member
Hi Jeana,

I don't know anything about your individual situation, so it's hard to comment on it specifically. If you read any of my posts, inflammation is pretty much all I talk about. I think I'm sounding a bit like a broken record.

But let me say this about inflammation. A lot of doctors do not talk much about this (although yours did). They'll talk about viruses, bacterial infections, fungal infections...but usually not much about inflammation. They know that people are familiar with infection and many people feel secure getting antibiotics. That's why even normal people will say, " I've got a cold and my doctor put me on antibiotics." The fact that they kinda know antibiotics don't work on viruses, isn't important.

So then we come to C.F. Aside from Pulmozyme and Hypertonic Saline, what are CF drugs for the lungs? Well, we get antibiotics and Asthma drugs. Bronchodilators, drugs like Flovent, Advair, and so on...but yet many doctors never test patients for asthma (for which you can have no symptoms) allergies, explain how CF'ers probably have chemical sensitivities, as well as how other irritants are causing the airways to narrow, trapping bacteria causing infection.

Many doctors don't recognize that many exacerbations could be inflammation and NOT infection. They don't even note some of the clues including this one: that if nasal passages and eardrums are red and swollen, or if your throat has bright red capillaries: that that's how your lungs look too. Inflammation.

My doctor believes instead of loading every patient up with tons of Prednisone, sometimes she may give a cortisone injection, or maybe change the medications and always have the patient do an anti-inflammatory, protective measures regimen at home. Sometimes antibiotics are needed. It's a judgement call, one she makes. Not me.

So what do you do? You are pregnant and sick and antibiotics aren't helping you. And now on steroids.

You and your doctor will have to come to decision medically what to do. But in addition, you should learn how to control your environment, your food, your whole life actually. When the air you breath improves you will improve. When you reduce inflammation it's possible you will improve. You can do a lot of natural things. You can ask your doctor about Nasal Rinses, Hypertonic Saline if you're not doing this. You can yank up carpets, use fragrant free products, encase your pillow, buy an air filter...

Lastly, I am posting a link to a Time Magazine cover story: Inflammation - The Secret Killer. Feb.23, 2004. You will be amazed how science is proving that most diseases are caused by inflammation. If you read this, you will really understand how inflammation is wreaking havoc in your body.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.time.com/time/covers/0,16641,20040223,00.html
">http://www.time.com/time/cover...6641,20040223,00.html
</a>
 

Nightwriter

New member
Hi Jeana,

I don't know anything about your individual situation, so it's hard to comment on it specifically. If you read any of my posts, inflammation is pretty much all I talk about. I think I'm sounding a bit like a broken record.

But let me say this about inflammation. A lot of doctors do not talk much about this (although yours did). They'll talk about viruses, bacterial infections, fungal infections...but usually not much about inflammation. They know that people are familiar with infection and many people feel secure getting antibiotics. That's why even normal people will say, " I've got a cold and my doctor put me on antibiotics." The fact that they kinda know antibiotics don't work on viruses, isn't important.

So then we come to C.F. Aside from Pulmozyme and Hypertonic Saline, what are CF drugs for the lungs? Well, we get antibiotics and Asthma drugs. Bronchodilators, drugs like Flovent, Advair, and so on...but yet many doctors never test patients for asthma (for which you can have no symptoms) allergies, explain how CF'ers probably have chemical sensitivities, as well as how other irritants are causing the airways to narrow, trapping bacteria causing infection.

Many doctors don't recognize that many exacerbations could be inflammation and NOT infection. They don't even note some of the clues including this one: that if nasal passages and eardrums are red and swollen, or if your throat has bright red capillaries: that that's how your lungs look too. Inflammation.

My doctor believes instead of loading every patient up with tons of Prednisone, sometimes she may give a cortisone injection, or maybe change the medications and always have the patient do an anti-inflammatory, protective measures regimen at home. Sometimes antibiotics are needed. It's a judgement call, one she makes. Not me.

So what do you do? You are pregnant and sick and antibiotics aren't helping you. And now on steroids.

You and your doctor will have to come to decision medically what to do. But in addition, you should learn how to control your environment, your food, your whole life actually. When the air you breath improves you will improve. When you reduce inflammation it's possible you will improve. You can do a lot of natural things. You can ask your doctor about Nasal Rinses, Hypertonic Saline if you're not doing this. You can yank up carpets, use fragrant free products, encase your pillow, buy an air filter...

Lastly, I am posting a link to a Time Magazine cover story: Inflammation - The Secret Killer. Feb.23, 2004. You will be amazed how science is proving that most diseases are caused by inflammation. If you read this, you will really understand how inflammation is wreaking havoc in your body.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.time.com/time/covers/0,16641,20040223,00.html
">http://www.time.com/time/cover...6641,20040223,00.html
</a>
 

Nightwriter

New member
Hi Jeana,

I don't know anything about your individual situation, so it's hard to comment on it specifically. If you read any of my posts, inflammation is pretty much all I talk about. I think I'm sounding a bit like a broken record.

But let me say this about inflammation. A lot of doctors do not talk much about this (although yours did). They'll talk about viruses, bacterial infections, fungal infections...but usually not much about inflammation. They know that people are familiar with infection and many people feel secure getting antibiotics. That's why even normal people will say, " I've got a cold and my doctor put me on antibiotics." The fact that they kinda know antibiotics don't work on viruses, isn't important.

So then we come to C.F. Aside from Pulmozyme and Hypertonic Saline, what are CF drugs for the lungs? Well, we get antibiotics and Asthma drugs. Bronchodilators, drugs like Flovent, Advair, and so on...but yet many doctors never test patients for asthma (for which you can have no symptoms) allergies, explain how CF'ers probably have chemical sensitivities, as well as how other irritants are causing the airways to narrow, trapping bacteria causing infection.

Many doctors don't recognize that many exacerbations could be inflammation and NOT infection. They don't even note some of the clues including this one: that if nasal passages and eardrums are red and swollen, or if your throat has bright red capillaries: that that's how your lungs look too. Inflammation.

My doctor believes instead of loading every patient up with tons of Prednisone, sometimes she may give a cortisone injection, or maybe change the medications and always have the patient do an anti-inflammatory, protective measures regimen at home. Sometimes antibiotics are needed. It's a judgement call, one she makes. Not me.

So what do you do? You are pregnant and sick and antibiotics aren't helping you. And now on steroids.

You and your doctor will have to come to decision medically what to do. But in addition, you should learn how to control your environment, your food, your whole life actually. When the air you breath improves you will improve. When you reduce inflammation it's possible you will improve. You can do a lot of natural things. You can ask your doctor about Nasal Rinses, Hypertonic Saline if you're not doing this. You can yank up carpets, use fragrant free products, encase your pillow, buy an air filter...

Lastly, I am posting a link to a Time Magazine cover story: Inflammation - The Secret Killer. Feb.23, 2004. You will be amazed how science is proving that most diseases are caused by inflammation. If you read this, you will really understand how inflammation is wreaking havoc in your body.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.time.com/time/covers/0,16641,20040223,00.html
">http://www.time.com/time/cover...6641,20040223,00.html
</a>
 

Nightwriter

New member
Hi Jeana,
<br />
<br />I don't know anything about your individual situation, so it's hard to comment on it specifically. If you read any of my posts, inflammation is pretty much all I talk about. I think I'm sounding a bit like a broken record.
<br />
<br />But let me say this about inflammation. A lot of doctors do not talk much about this (although yours did). They'll talk about viruses, bacterial infections, fungal infections...but usually not much about inflammation. They know that people are familiar with infection and many people feel secure getting antibiotics. That's why even normal people will say, " I've got a cold and my doctor put me on antibiotics." The fact that they kinda know antibiotics don't work on viruses, isn't important.
<br />
<br />So then we come to C.F. Aside from Pulmozyme and Hypertonic Saline, what are CF drugs for the lungs? Well, we get antibiotics and Asthma drugs. Bronchodilators, drugs like Flovent, Advair, and so on...but yet many doctors never test patients for asthma (for which you can have no symptoms) allergies, explain how CF'ers probably have chemical sensitivities, as well as how other irritants are causing the airways to narrow, trapping bacteria causing infection.
<br />
<br />Many doctors don't recognize that many exacerbations could be inflammation and NOT infection. They don't even note some of the clues including this one: that if nasal passages and eardrums are red and swollen, or if your throat has bright red capillaries: that that's how your lungs look too. Inflammation.
<br />
<br />My doctor believes instead of loading every patient up with tons of Prednisone, sometimes she may give a cortisone injection, or maybe change the medications and always have the patient do an anti-inflammatory, protective measures regimen at home. Sometimes antibiotics are needed. It's a judgement call, one she makes. Not me.
<br />
<br />So what do you do? You are pregnant and sick and antibiotics aren't helping you. And now on steroids.
<br />
<br />You and your doctor will have to come to decision medically what to do. But in addition, you should learn how to control your environment, your food, your whole life actually. When the air you breath improves you will improve. When you reduce inflammation it's possible you will improve. You can do a lot of natural things. You can ask your doctor about Nasal Rinses, Hypertonic Saline if you're not doing this. You can yank up carpets, use fragrant free products, encase your pillow, buy an air filter...
<br />
<br />Lastly, I am posting a link to a Time Magazine cover story: Inflammation - The Secret Killer. Feb.23, 2004. You will be amazed how science is proving that most diseases are caused by inflammation. If you read this, you will really understand how inflammation is wreaking havoc in your body.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.time.com/time/covers/0,16641,20040223,00.html
">http://www.time.com/time/cover...6641,20040223,00.html
</a><br />
<br />
<br />
<br />
 

Jeana

New member
Thanks, Nightwriter. I do saline rinses and I just started hypertonic, 10 days ago. I can't yank up any carpets, since I rent, but we have considered encasing pillows for dustmites. When I am sick, I know my cleaning suffers and so the air is probably not very clean also. (Less vacumming, dusting, etc.) I will read your article and thanks so much!
 

Jeana

New member
Thanks, Nightwriter. I do saline rinses and I just started hypertonic, 10 days ago. I can't yank up any carpets, since I rent, but we have considered encasing pillows for dustmites. When I am sick, I know my cleaning suffers and so the air is probably not very clean also. (Less vacumming, dusting, etc.) I will read your article and thanks so much!
 

Jeana

New member
Thanks, Nightwriter. I do saline rinses and I just started hypertonic, 10 days ago. I can't yank up any carpets, since I rent, but we have considered encasing pillows for dustmites. When I am sick, I know my cleaning suffers and so the air is probably not very clean also. (Less vacumming, dusting, etc.) I will read your article and thanks so much!
 

Jeana

New member
Thanks, Nightwriter. I do saline rinses and I just started hypertonic, 10 days ago. I can't yank up any carpets, since I rent, but we have considered encasing pillows for dustmites. When I am sick, I know my cleaning suffers and so the air is probably not very clean also. (Less vacumming, dusting, etc.) I will read your article and thanks so much!
 

Jeana

New member
Thanks, Nightwriter. I do saline rinses and I just started hypertonic, 10 days ago. I can't yank up any carpets, since I rent, but we have considered encasing pillows for dustmites. When I am sick, I know my cleaning suffers and so the air is probably not very clean also. (Less vacumming, dusting, etc.) I will read your article and thanks so much!
 
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