farbeyond1
New member
It's been months since I've logged onto the site, or since I've kept up with my emails. I guess my motivation has been slowly decreasing with each passing week that I'm not called in for transplant. Currenly my FEV1 is 24%, the transplant clinic (Brigham and Womens in Boston) tells me that I'm "high" on the list. As of March 29th there was 2 people that fit my criteria "size, blood type" ahead of me on the list. I'm assuming that I won't be called in until the end of this year.
What an interesting change of lifestyle. I've lived with CF for 28 years now, it's all I know. As a child I was sick, I have been to the hospital countless times from birth till now. Although I was sick, I did graduate high school attend the community college for a few years and work full time as a tax analyst for a life insurance company. Roughly 2 years ago I quit my job because of my health decline. I was going to just go back to college full time and find something meaningful to strive towards. College didn't go well, as I coudn't make it through a full semester without needing over a month out due to sickness. Since then I was able to find something I am passionate about. Helping others and finding ways to reach out brings me a sence of satisfaction that I've never had before. Before my health declined to this degree I started doing some work for the CF community to try and make our lives more understood to those who take care of us. I'm grateful to have been able to find something that gives me joy, but my life is now on pause until I am transplanted.
How are you all doing out there? Life brings us down at times, but we've gained a lot of strength from our experiences.
I hope you're all well,
Mike 28wCF/awaiting a lung transplant
What an interesting change of lifestyle. I've lived with CF for 28 years now, it's all I know. As a child I was sick, I have been to the hospital countless times from birth till now. Although I was sick, I did graduate high school attend the community college for a few years and work full time as a tax analyst for a life insurance company. Roughly 2 years ago I quit my job because of my health decline. I was going to just go back to college full time and find something meaningful to strive towards. College didn't go well, as I coudn't make it through a full semester without needing over a month out due to sickness. Since then I was able to find something I am passionate about. Helping others and finding ways to reach out brings me a sence of satisfaction that I've never had before. Before my health declined to this degree I started doing some work for the CF community to try and make our lives more understood to those who take care of us. I'm grateful to have been able to find something that gives me joy, but my life is now on pause until I am transplanted.
How are you all doing out there? Life brings us down at times, but we've gained a lot of strength from our experiences.
I hope you're all well,
Mike 28wCF/awaiting a lung transplant