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I am as alarmed as you at the amount of weight loss. Thank goodness they are at least testing for pancreatic insufficieny. They can also do blood work and test for vitamin levels (fat soluble vitamins are going to be low, if she is unable to digest fats). They can also test for Celiac via a blood test.
What makes me mad about this kind of thing is that docs (not necessarily in your case, but I've seen it happen) would order invasive tests like upper GI's, etc. before doing even the basic CF blood panel. Why why why!! Keep strong and trust your mommy instincts.
What makes me mad about this kind of thing is that docs (not necessarily in your case, but I've seen it happen) would order invasive tests like upper GI's, etc. before doing even the basic CF blood panel. Why why why!! Keep strong and trust your mommy instincts.
I am as alarmed as you at the amount of weight loss. Thank goodness they are at least testing for pancreatic insufficieny. They can also do blood work and test for vitamin levels (fat soluble vitamins are going to be low, if she is unable to digest fats). They can also test for Celiac via a blood test.
What makes me mad about this kind of thing is that docs (not necessarily in your case, but I've seen it happen) would order invasive tests like upper GI's, etc. before doing even the basic CF blood panel. Why why why!! Keep strong and trust your mommy instincts.
What makes me mad about this kind of thing is that docs (not necessarily in your case, but I've seen it happen) would order invasive tests like upper GI's, etc. before doing even the basic CF blood panel. Why why why!! Keep strong and trust your mommy instincts.
I am as alarmed as you at the amount of weight loss. Thank goodness they are at least testing for pancreatic insufficieny. They can also do blood work and test for vitamin levels (fat soluble vitamins are going to be low, if she is unable to digest fats). They can also test for Celiac via a blood test.
What makes me mad about this kind of thing is that docs (not necessarily in your case, but I've seen it happen) would order invasive tests like upper GI's, etc. before doing even the basic CF blood panel. Why why why!! Keep strong and trust your mommy instincts.
What makes me mad about this kind of thing is that docs (not necessarily in your case, but I've seen it happen) would order invasive tests like upper GI's, etc. before doing even the basic CF blood panel. Why why why!! Keep strong and trust your mommy instincts.
I am as alarmed as you at the amount of weight loss. Thank goodness they are at least testing for pancreatic insufficieny. They can also do blood work and test for vitamin levels (fat soluble vitamins are going to be low, if she is unable to digest fats). They can also test for Celiac via a blood test.
What makes me mad about this kind of thing is that docs (not necessarily in your case, but I've seen it happen) would order invasive tests like upper GI's, etc. before doing even the basic CF blood panel. Why why why!! Keep strong and trust your mommy instincts.
What makes me mad about this kind of thing is that docs (not necessarily in your case, but I've seen it happen) would order invasive tests like upper GI's, etc. before doing even the basic CF blood panel. Why why why!! Keep strong and trust your mommy instincts.
I am as alarmed as you at the amount of weight loss. Thank goodness they are at least testing for pancreatic insufficieny. They can also do blood work and test for vitamin levels (fat soluble vitamins are going to be low, if she is unable to digest fats). They can also test for Celiac via a blood test.
What makes me mad about this kind of thing is that docs (not necessarily in your case, but I've seen it happen) would order invasive tests like upper GI's, etc. before doing even the basic CF blood panel. Why why why!! Keep strong and trust your mommy instincts.
What makes me mad about this kind of thing is that docs (not necessarily in your case, but I've seen it happen) would order invasive tests like upper GI's, etc. before doing even the basic CF blood panel. Why why why!! Keep strong and trust your mommy instincts.
I am as alarmed as you at the amount of weight loss. Thank goodness they are at least testing for pancreatic insufficieny. They can also do blood work and test for vitamin levels (fat soluble vitamins are going to be low, if she is unable to digest fats). They can also test for Celiac via a blood test.
What makes me mad about this kind of thing is that docs (not necessarily in your case, but I've seen it happen) would order invasive tests like upper GI's, etc. before doing even the basic CF blood panel. Why why why!! Keep strong and trust your mommy instincts.
What makes me mad about this kind of thing is that docs (not necessarily in your case, but I've seen it happen) would order invasive tests like upper GI's, etc. before doing even the basic CF blood panel. Why why why!! Keep strong and trust your mommy instincts.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>
A suggestion was made to us by our attorney when we were having issues with a local doctor refusing to perform a test. He told us to ask the doctor to put in DS's file -- parents request a ___ test for patient, doctor refuses because....</end quote></div>
Oooo, that's a good thought!<img src=""> At the very least, why stick your child again for another blood test later?!? The less sticks for a child, the better (or for me too, for that matter <img src=""> ). I don't understand why they wouldn't order it, if you want it and <i>they</i> aren't paying for it...Sorry, that just irks me! How frustrating! I'm sorry they are being so...um, contrary. I hope you get some answers soon!
A suggestion was made to us by our attorney when we were having issues with a local doctor refusing to perform a test. He told us to ask the doctor to put in DS's file -- parents request a ___ test for patient, doctor refuses because....</end quote></div>
Oooo, that's a good thought!<img src=""> At the very least, why stick your child again for another blood test later?!? The less sticks for a child, the better (or for me too, for that matter <img src=""> ). I don't understand why they wouldn't order it, if you want it and <i>they</i> aren't paying for it...Sorry, that just irks me! How frustrating! I'm sorry they are being so...um, contrary. I hope you get some answers soon!
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>
A suggestion was made to us by our attorney when we were having issues with a local doctor refusing to perform a test. He told us to ask the doctor to put in DS's file -- parents request a ___ test for patient, doctor refuses because....</end quote></div>
Oooo, that's a good thought!<img src=""> At the very least, why stick your child again for another blood test later?!? The less sticks for a child, the better (or for me too, for that matter <img src=""> ). I don't understand why they wouldn't order it, if you want it and <i>they</i> aren't paying for it...Sorry, that just irks me! How frustrating! I'm sorry they are being so...um, contrary. I hope you get some answers soon!
A suggestion was made to us by our attorney when we were having issues with a local doctor refusing to perform a test. He told us to ask the doctor to put in DS's file -- parents request a ___ test for patient, doctor refuses because....</end quote></div>
Oooo, that's a good thought!<img src=""> At the very least, why stick your child again for another blood test later?!? The less sticks for a child, the better (or for me too, for that matter <img src=""> ). I don't understand why they wouldn't order it, if you want it and <i>they</i> aren't paying for it...Sorry, that just irks me! How frustrating! I'm sorry they are being so...um, contrary. I hope you get some answers soon!
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>
A suggestion was made to us by our attorney when we were having issues with a local doctor refusing to perform a test. He told us to ask the doctor to put in DS's file -- parents request a ___ test for patient, doctor refuses because....</end quote></div>
Oooo, that's a good thought!<img src=""> At the very least, why stick your child again for another blood test later?!? The less sticks for a child, the better (or for me too, for that matter <img src=""> ). I don't understand why they wouldn't order it, if you want it and <i>they</i> aren't paying for it...Sorry, that just irks me! How frustrating! I'm sorry they are being so...um, contrary. I hope you get some answers soon!
A suggestion was made to us by our attorney when we were having issues with a local doctor refusing to perform a test. He told us to ask the doctor to put in DS's file -- parents request a ___ test for patient, doctor refuses because....</end quote></div>
Oooo, that's a good thought!<img src=""> At the very least, why stick your child again for another blood test later?!? The less sticks for a child, the better (or for me too, for that matter <img src=""> ). I don't understand why they wouldn't order it, if you want it and <i>they</i> aren't paying for it...Sorry, that just irks me! How frustrating! I'm sorry they are being so...um, contrary. I hope you get some answers soon!
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>
A suggestion was made to us by our attorney when we were having issues with a local doctor refusing to perform a test. He told us to ask the doctor to put in DS's file -- parents request a ___ test for patient, doctor refuses because....</end quote></div>
Oooo, that's a good thought!<img src=""> At the very least, why stick your child again for another blood test later?!? The less sticks for a child, the better (or for me too, for that matter <img src=""> ). I don't understand why they wouldn't order it, if you want it and <i>they</i> aren't paying for it...Sorry, that just irks me! How frustrating! I'm sorry they are being so...um, contrary. I hope you get some answers soon!
A suggestion was made to us by our attorney when we were having issues with a local doctor refusing to perform a test. He told us to ask the doctor to put in DS's file -- parents request a ___ test for patient, doctor refuses because....</end quote></div>
Oooo, that's a good thought!<img src=""> At the very least, why stick your child again for another blood test later?!? The less sticks for a child, the better (or for me too, for that matter <img src=""> ). I don't understand why they wouldn't order it, if you want it and <i>they</i> aren't paying for it...Sorry, that just irks me! How frustrating! I'm sorry they are being so...um, contrary. I hope you get some answers soon!
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>
A suggestion was made to us by our attorney when we were having issues with a local doctor refusing to perform a test. He told us to ask the doctor to put in DS's file -- parents request a ___ test for patient, doctor refuses because....</end quote>
Oooo, that's a good thought!<img src=""> At the very least, why stick your child again for another blood test later?!? The less sticks for a child, the better (or for me too, for that matter <img src=""> ). I don't understand why they wouldn't order it, if you want it and <i>they</i> aren't paying for it...Sorry, that just irks me! How frustrating! I'm sorry they are being so...um, contrary. I hope you get some answers soon!
A suggestion was made to us by our attorney when we were having issues with a local doctor refusing to perform a test. He told us to ask the doctor to put in DS's file -- parents request a ___ test for patient, doctor refuses because....</end quote>
Oooo, that's a good thought!<img src=""> At the very least, why stick your child again for another blood test later?!? The less sticks for a child, the better (or for me too, for that matter <img src=""> ). I don't understand why they wouldn't order it, if you want it and <i>they</i> aren't paying for it...Sorry, that just irks me! How frustrating! I'm sorry they are being so...um, contrary. I hope you get some answers soon!
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>
A suggestion was made to us by our attorney when we were having issues with a local doctor refusing to perform a test. He told us to ask the doctor to put in DS's file -- parents request a ___ test for patient, doctor refuses because....</end quote>
Oooo, that's a good thought!<img src=""> At the very least, why stick your child again for another blood test later?!? The less sticks for a child, the better (or for me too, for that matter <img src=""> ). I don't understand why they wouldn't order it, if you want it and <i>they</i> aren't paying for it...Sorry, that just irks me! How frustrating! I'm sorry they are being so...um, contrary. I hope you get some answers soon!
A suggestion was made to us by our attorney when we were having issues with a local doctor refusing to perform a test. He told us to ask the doctor to put in DS's file -- parents request a ___ test for patient, doctor refuses because....</end quote>
Oooo, that's a good thought!<img src=""> At the very least, why stick your child again for another blood test later?!? The less sticks for a child, the better (or for me too, for that matter <img src=""> ). I don't understand why they wouldn't order it, if you want it and <i>they</i> aren't paying for it...Sorry, that just irks me! How frustrating! I'm sorry they are being so...um, contrary. I hope you get some answers soon!
W
worriedmom
Guest
Thanks so do we! that's not a bad idea about bringing it up to our attorney though. I never thought of that..this has all been happening so fast it seems but in another respect see, like forever..if that makes any sense. The doctors did want to order an GI series w/ small bowel test and I did ask if they could do a stool test first which they did agree to do. Alexis also has gallstones, which they have diagnosed genetic, and requires surgery..we have to go for a follow up CT scan of the abd and I asked if she could be sedated, as awful as it sounds she has become so uncooperative for tests lately I'm afraid she'll hurt herself by pulling out the IV for the contrast which has happened before. That was a fight to get him to agree to that because she's so small, he didn't want to sedate her. They are concerned about her weight loss, however she is still in the 20th%, so as long as she is maintaining he will address it at a later date. thank you for listening and for all your information..it has been very helpful. I will speak to my husband about contacting our attorney and see where that takes us. You have been more than helpful, even just to listen to me "vent".
W
worriedmom
Guest
Thanks so do we! that's not a bad idea about bringing it up to our attorney though. I never thought of that..this has all been happening so fast it seems but in another respect see, like forever..if that makes any sense. The doctors did want to order an GI series w/ small bowel test and I did ask if they could do a stool test first which they did agree to do. Alexis also has gallstones, which they have diagnosed genetic, and requires surgery..we have to go for a follow up CT scan of the abd and I asked if she could be sedated, as awful as it sounds she has become so uncooperative for tests lately I'm afraid she'll hurt herself by pulling out the IV for the contrast which has happened before. That was a fight to get him to agree to that because she's so small, he didn't want to sedate her. They are concerned about her weight loss, however she is still in the 20th%, so as long as she is maintaining he will address it at a later date. thank you for listening and for all your information..it has been very helpful. I will speak to my husband about contacting our attorney and see where that takes us. You have been more than helpful, even just to listen to me "vent".
W
worriedmom
Guest
Thanks so do we! that's not a bad idea about bringing it up to our attorney though. I never thought of that..this has all been happening so fast it seems but in another respect see, like forever..if that makes any sense. The doctors did want to order an GI series w/ small bowel test and I did ask if they could do a stool test first which they did agree to do. Alexis also has gallstones, which they have diagnosed genetic, and requires surgery..we have to go for a follow up CT scan of the abd and I asked if she could be sedated, as awful as it sounds she has become so uncooperative for tests lately I'm afraid she'll hurt herself by pulling out the IV for the contrast which has happened before. That was a fight to get him to agree to that because she's so small, he didn't want to sedate her. They are concerned about her weight loss, however she is still in the 20th%, so as long as she is maintaining he will address it at a later date. thank you for listening and for all your information..it has been very helpful. I will speak to my husband about contacting our attorney and see where that takes us. You have been more than helpful, even just to listen to me "vent".
W
worriedmom
Guest
Thanks so do we! that's not a bad idea about bringing it up to our attorney though. I never thought of that..this has all been happening so fast it seems but in another respect see, like forever..if that makes any sense. The doctors did want to order an GI series w/ small bowel test and I did ask if they could do a stool test first which they did agree to do. Alexis also has gallstones, which they have diagnosed genetic, and requires surgery..we have to go for a follow up CT scan of the abd and I asked if she could be sedated, as awful as it sounds she has become so uncooperative for tests lately I'm afraid she'll hurt herself by pulling out the IV for the contrast which has happened before. That was a fight to get him to agree to that because she's so small, he didn't want to sedate her. They are concerned about her weight loss, however she is still in the 20th%, so as long as she is maintaining he will address it at a later date. thank you for listening and for all your information..it has been very helpful. I will speak to my husband about contacting our attorney and see where that takes us. You have been more than helpful, even just to listen to me "vent".