stomach acid in lungs

G

Giggles

New member
So has anyone seen this in their sputum culture? My new doc is seeing stomach acid from acid reflux in his CF transplant patients and now is testing all CF'rs sputum for the stomach acid in the lungs. They are concerned because this acid causes it to kill the lung tissue and they do not want that cause we already deal with killed lung tissue from infection and inflammation. They are not sure why CF'rs sfincter that is at the end of the esophogus is loose maybe due to all our coughing and thus causing this stomach acid in the lungs. Well my sputum culture showed this acid in my lungs and I was told to be prepared to do a test where they place a metal probe down your nose and down your throat and then it hangs out your nose and is hooked up to a computer that measures the acid in the lungs etc. for 24hrs and then you go back and it get it removed. I am freaked over this procedure and it does NOT sound pleasant. Possible solutions depending on results could be surgery to tighten the sphfincer. Has anyone heard of this? I am at a new CF clinic and it is also a transplant center so they are super proactive, thorough and see stuff that maybe other clinics do not. Which is good but WOW, this knocked me off guard and kinda scared!

Any opinions, experience is welcomed!
Jennifer
38 with CF and CFRD
 
G

Giggles

New member
So has anyone seen this in their sputum culture? My new doc is seeing stomach acid from acid reflux in his CF transplant patients and now is testing all CF'rs sputum for the stomach acid in the lungs. They are concerned because this acid causes it to kill the lung tissue and they do not want that cause we already deal with killed lung tissue from infection and inflammation. They are not sure why CF'rs sfincter that is at the end of the esophogus is loose maybe due to all our coughing and thus causing this stomach acid in the lungs. Well my sputum culture showed this acid in my lungs and I was told to be prepared to do a test where they place a metal probe down your nose and down your throat and then it hangs out your nose and is hooked up to a computer that measures the acid in the lungs etc. for 24hrs and then you go back and it get it removed. I am freaked over this procedure and it does NOT sound pleasant. Possible solutions depending on results could be surgery to tighten the sphfincer. Has anyone heard of this? I am at a new CF clinic and it is also a transplant center so they are super proactive, thorough and see stuff that maybe other clinics do not. Which is good but WOW, this knocked me off guard and kinda scared!

Any opinions, experience is welcomed!
Jennifer
38 with CF and CFRD
 
G

Giggles

New member
So has anyone seen this in their sputum culture? My new doc is seeing stomach acid from acid reflux in his CF transplant patients and now is testing all CF'rs sputum for the stomach acid in the lungs. They are concerned because this acid causes it to kill the lung tissue and they do not want that cause we already deal with killed lung tissue from infection and inflammation. They are not sure why CF'rs sfincter that is at the end of the esophogus is loose maybe due to all our coughing and thus causing this stomach acid in the lungs. Well my sputum culture showed this acid in my lungs and I was told to be prepared to do a test where they place a metal probe down your nose and down your throat and then it hangs out your nose and is hooked up to a computer that measures the acid in the lungs etc. for 24hrs and then you go back and it get it removed. I am freaked over this procedure and it does NOT sound pleasant. Possible solutions depending on results could be surgery to tighten the sphfincer. Has anyone heard of this? I am at a new CF clinic and it is also a transplant center so they are super proactive, thorough and see stuff that maybe other clinics do not. Which is good but WOW, this knocked me off guard and kinda scared!
<br />
<br />Any opinions, experience is welcomed!
<br />Jennifer
<br />38 with CF and CFRD
 
M

mag6125

New member
I've heard this from a lot of people and have hear of other people on this site talk about the surgery to correct it. Are you currently taking anything like Prilosec for acid reflux? The test you're talking about it one they do routinely for anyone being considered for transplant as well and I can tell you its not plesant. I have a very strong gag reflex and they weren't able to do the test on me, I ended up doing a different type of test.
 
M

mag6125

New member
I've heard this from a lot of people and have hear of other people on this site talk about the surgery to correct it. Are you currently taking anything like Prilosec for acid reflux? The test you're talking about it one they do routinely for anyone being considered for transplant as well and I can tell you its not plesant. I have a very strong gag reflex and they weren't able to do the test on me, I ended up doing a different type of test.
 
M

mag6125

New member
I've heard this from a lot of people and have hear of other people on this site talk about the surgery to correct it. Are you currently taking anything like Prilosec for acid reflux? The test you're talking about it one they do routinely for anyone being considered for transplant as well and I can tell you its not plesant. I have a very strong gag reflex and they weren't able to do the test on me, I ended up doing a different type of test.
 
C

crickit715

New member
my daughter had the nissen fundolopication (sp?) procedure at 4 months because of severe aspiration on her stomach acid....i couldnt even lay her flat to change her diaper and she would start turning red and coughing and gasping. and she had chronic vomitting issues. ive heard of quite a few cf'ers who have had this procedure done.
 
C

crickit715

New member
my daughter had the nissen fundolopication (sp?) procedure at 4 months because of severe aspiration on her stomach acid....i couldnt even lay her flat to change her diaper and she would start turning red and coughing and gasping. and she had chronic vomitting issues. ive heard of quite a few cf'ers who have had this procedure done.
 
C

crickit715

New member
my daughter had the nissen fundolopication (sp?) procedure at 4 months because of severe aspiration on her stomach acid....i couldnt even lay her flat to change her diaper and she would start turning red and coughing and gasping. and she had chronic vomitting issues. ive heard of quite a few cf'ers who have had this procedure done.
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Giggles</b></i>

So has anyone seen this in their sputum culture? My new doc is seeing stomach acid from acid reflux in his CF transplant patients and now is testing all CF'rs sputum for the stomach acid in the lungs. They are concerned because this acid causes it to kill the lung tissue and they do not want that cause we already deal with killed lung tissue from infection and inflammation. They are not sure why CF'rs sfincter that is at the end of the esophogus is loose maybe due to all our coughing and thus causing this stomach acid in the lungs. Well my sputum culture showed this acid in my lungs and I was told to be prepared to do a test where they place a metal probe down your nose and down your throat and then it hangs out your nose and is hooked up to a computer that measures the acid in the lungs etc. for 24hrs and then you go back and it get it removed. I am freaked over this procedure and it does NOT sound pleasant. Possible solutions depending on results could be surgery to tighten the sphfincer. Has anyone heard of this? I am at a new CF clinic and it is also a transplant center so they are super proactive, thorough and see stuff that maybe other clinics do not. Which is good but WOW, this knocked me off guard and kinda scared!



Any opinions, experience is welcomed!

Jennifer

38 with CF and CFRD</end quote></div>



<a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/nocturnal%20aspiration%20of%20gastric%20juice
">http://noexcusesnoexcuses.blog...0of%20gastric%20juice
</a>
it has made a big difference in my night sweats!
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Giggles</b></i>

So has anyone seen this in their sputum culture? My new doc is seeing stomach acid from acid reflux in his CF transplant patients and now is testing all CF'rs sputum for the stomach acid in the lungs. They are concerned because this acid causes it to kill the lung tissue and they do not want that cause we already deal with killed lung tissue from infection and inflammation. They are not sure why CF'rs sfincter that is at the end of the esophogus is loose maybe due to all our coughing and thus causing this stomach acid in the lungs. Well my sputum culture showed this acid in my lungs and I was told to be prepared to do a test where they place a metal probe down your nose and down your throat and then it hangs out your nose and is hooked up to a computer that measures the acid in the lungs etc. for 24hrs and then you go back and it get it removed. I am freaked over this procedure and it does NOT sound pleasant. Possible solutions depending on results could be surgery to tighten the sphfincer. Has anyone heard of this? I am at a new CF clinic and it is also a transplant center so they are super proactive, thorough and see stuff that maybe other clinics do not. Which is good but WOW, this knocked me off guard and kinda scared!



Any opinions, experience is welcomed!

Jennifer

38 with CF and CFRD</end quote>



<a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/nocturnal%20aspiration%20of%20gastric%20juice
">http://noexcusesnoexcuses.blog...0of%20gastric%20juice
</a>
it has made a big difference in my night sweats!
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Giggles</b></i>
<br />
<br />So has anyone seen this in their sputum culture? My new doc is seeing stomach acid from acid reflux in his CF transplant patients and now is testing all CF'rs sputum for the stomach acid in the lungs. They are concerned because this acid causes it to kill the lung tissue and they do not want that cause we already deal with killed lung tissue from infection and inflammation. They are not sure why CF'rs sfincter that is at the end of the esophogus is loose maybe due to all our coughing and thus causing this stomach acid in the lungs. Well my sputum culture showed this acid in my lungs and I was told to be prepared to do a test where they place a metal probe down your nose and down your throat and then it hangs out your nose and is hooked up to a computer that measures the acid in the lungs etc. for 24hrs and then you go back and it get it removed. I am freaked over this procedure and it does NOT sound pleasant. Possible solutions depending on results could be surgery to tighten the sphfincer. Has anyone heard of this? I am at a new CF clinic and it is also a transplant center so they are super proactive, thorough and see stuff that maybe other clinics do not. Which is good but WOW, this knocked me off guard and kinda scared!
<br />
<br />
<br />
<br />Any opinions, experience is welcomed!
<br />
<br />Jennifer
<br />
<br />38 with CF and CFRD</end quote>
<br />
<br />
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/nocturnal%20aspiration%20of%20gastric%20juice
">http://noexcusesnoexcuses.blog...0of%20gastric%20juice
</a><br />
<br />it has made a big difference in my night sweats!
 
J

Jane

Digital opinion leader
Both my Boys have had the ph probe test twice. It is rather uncomfortable to have the tube but not painful. Jesse's results showed a high correlation between his cough and his reflux. His dr wants him to have the Nissen surgery, but we haven't met with the surgeon yet. We'd like to hear from any adults or older kids who have had it.
I think you should do the test, at least you can make informed decisions afterward. Good luck!
PM me if you have questions about the test- it's really not bad.
 
J

Jane

Digital opinion leader
Both my Boys have had the ph probe test twice. It is rather uncomfortable to have the tube but not painful. Jesse's results showed a high correlation between his cough and his reflux. His dr wants him to have the Nissen surgery, but we haven't met with the surgeon yet. We'd like to hear from any adults or older kids who have had it.
I think you should do the test, at least you can make informed decisions afterward. Good luck!
PM me if you have questions about the test- it's really not bad.
 
J

Jane

Digital opinion leader
Both my Boys have had the ph probe test twice. It is rather uncomfortable to have the tube but not painful. Jesse's results showed a high correlation between his cough and his reflux. His dr wants him to have the Nissen surgery, but we haven't met with the surgeon yet. We'd like to hear from any adults or older kids who have had it.
<br />I think you should do the test, at least you can make informed decisions afterward. Good luck!
<br />PM me if you have questions about the test- it's really not bad.
 
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