Hello,
I'm going to be seeing my doctor April 3 with an annual so it'll be the full check up and tests. I am planning on taking all my notes with me on OO, GHS, Hypertonic Saline, etc. so that I can tell him these are the things I'm interested in trying.
Here are my two questions and concerns:
1. I am wondering if stopping TOBI for continued use, and use only when I get sick would be something to discuss. I told my pharmacist last year that I felt I was starting to become immune to it. He told me that even after you become immune it has still proven to be helpfull in the long run for your lungs. I just wonder b/c I was off of it for about 2 months, instead of just 1, then started up on the 3rd month and felt better with it. I just wonder if it's worth trying to use it less so that it helps *more* during those special times.
2. I feel like I'm up against a wall with this MAC bacteria that I have. I am very very hesitant to start on the 4 different drugs that would be used to treat it b/c the side effects can cause kidney failure and hearing loss. I've already had kidney problems twice, and I don't want to take a medicine that I know most likely will hurt them again! For this solution, I REALLY am interested in trying the supplements listed above and see if any of those kill off this nasty bug, before risking my kidneys. I'm getting uptight about it b/c I don't know what my doctor will say and I really want to protect my little ol' kidneys. I think this bug is bringing me down, physically and I feel I need to do something or else I'll just get worse.
Also, I went for a massage and acupuncture today and the lady had a suggestion about OO and herbs in general. She said herbs are typically used until the body feels better, and not usually used for long term use. So this was an interesting point or thought. She also pointed out from Chinese medicine point of view, that I personally have a lot of heat inside my body, my organs and lungs and sinuses all have too much heat. This heat can cause more congestion and issues. She recommended to read up and start eatng more "cooling" foods and drinks to help lower congestion. Apparently, Oregano is a cooling agent and she thought I should try it, especially before taking any med that could hurt my kidneys. If it was a heat generating thing, she would have recommended against it. But that was neat to hear another positive perspective on it.
I think that's about it. I'll write more if I think of another question. I' getting axnxious about taking more control and doing other things than this BS stuff i'm doing now. I want to get better damn it.
I'm going to be seeing my doctor April 3 with an annual so it'll be the full check up and tests. I am planning on taking all my notes with me on OO, GHS, Hypertonic Saline, etc. so that I can tell him these are the things I'm interested in trying.
Here are my two questions and concerns:
1. I am wondering if stopping TOBI for continued use, and use only when I get sick would be something to discuss. I told my pharmacist last year that I felt I was starting to become immune to it. He told me that even after you become immune it has still proven to be helpfull in the long run for your lungs. I just wonder b/c I was off of it for about 2 months, instead of just 1, then started up on the 3rd month and felt better with it. I just wonder if it's worth trying to use it less so that it helps *more* during those special times.
2. I feel like I'm up against a wall with this MAC bacteria that I have. I am very very hesitant to start on the 4 different drugs that would be used to treat it b/c the side effects can cause kidney failure and hearing loss. I've already had kidney problems twice, and I don't want to take a medicine that I know most likely will hurt them again! For this solution, I REALLY am interested in trying the supplements listed above and see if any of those kill off this nasty bug, before risking my kidneys. I'm getting uptight about it b/c I don't know what my doctor will say and I really want to protect my little ol' kidneys. I think this bug is bringing me down, physically and I feel I need to do something or else I'll just get worse.
Also, I went for a massage and acupuncture today and the lady had a suggestion about OO and herbs in general. She said herbs are typically used until the body feels better, and not usually used for long term use. So this was an interesting point or thought. She also pointed out from Chinese medicine point of view, that I personally have a lot of heat inside my body, my organs and lungs and sinuses all have too much heat. This heat can cause more congestion and issues. She recommended to read up and start eatng more "cooling" foods and drinks to help lower congestion. Apparently, Oregano is a cooling agent and she thought I should try it, especially before taking any med that could hurt my kidneys. If it was a heat generating thing, she would have recommended against it. But that was neat to hear another positive perspective on it.
I think that's about it. I'll write more if I think of another question. I' getting axnxious about taking more control and doing other things than this BS stuff i'm doing now. I want to get better damn it.