stressed and still unsure (a bit long)

J

JORDYSMOM

New member
It sounds like you and the docs are on top of things. I don't know if you remember me posting that my son has a spine disorder too. His was labeled Sherman's Kyphosis. They told me it was not related to the CF, and we do have other spine problems in our family. One of my sisters has degenerative disk disease, and one has scoliosis. I have heard of other people with CF who have spine disorders also, so I'm not completely convinced that Jordan's isn't related in some way.

I know how much it helps to just bounce things off of other parents. This site has been my saving grace. I sincerely hope that you find some answers soon. If you just need to talk, feel free to send me a PM. Hang in there, and keep us posted.

Stacey
 
J

JORDYSMOM

New member
It sounds like you and the docs are on top of things. I don't know if you remember me posting that my son has a spine disorder too. His was labeled Sherman's Kyphosis. They told me it was not related to the CF, and we do have other spine problems in our family. One of my sisters has degenerative disk disease, and one has scoliosis. I have heard of other people with CF who have spine disorders also, so I'm not completely convinced that Jordan's isn't related in some way.

I know how much it helps to just bounce things off of other parents. This site has been my saving grace. I sincerely hope that you find some answers soon. If you just need to talk, feel free to send me a PM. Hang in there, and keep us posted.

Stacey
 
J

JORDYSMOM

New member
It sounds like you and the docs are on top of things. I don't know if you remember me posting that my son has a spine disorder too. His was labeled Sherman's Kyphosis. They told me it was not related to the CF, and we do have other spine problems in our family. One of my sisters has degenerative disk disease, and one has scoliosis. I have heard of other people with CF who have spine disorders also, so I'm not completely convinced that Jordan's isn't related in some way.

I know how much it helps to just bounce things off of other parents. This site has been my saving grace. I sincerely hope that you find some answers soon. If you just need to talk, feel free to send me a PM. Hang in there, and keep us posted.

Stacey
 
J

JORDYSMOM

New member
It sounds like you and the docs are on top of things. I don't know if you remember me posting that my son has a spine disorder too. His was labeled Sherman's Kyphosis. They told me it was not related to the CF, and we do have other spine problems in our family. One of my sisters has degenerative disk disease, and one has scoliosis. I have heard of other people with CF who have spine disorders also, so I'm not completely convinced that Jordan's isn't related in some way.

I know how much it helps to just bounce things off of other parents. This site has been my saving grace. I sincerely hope that you find some answers soon. If you just need to talk, feel free to send me a PM. Hang in there, and keep us posted.

Stacey
 
J

JORDYSMOM

New member
It sounds like you and the docs are on top of things. I don't know if you remember me posting that my son has a spine disorder too. His was labeled Sherman's Kyphosis. They told me it was not related to the CF, and we do have other spine problems in our family. One of my sisters has degenerative disk disease, and one has scoliosis. I have heard of other people with CF who have spine disorders also, so I'm not completely convinced that Jordan's isn't related in some way.
<br />
<br />I know how much it helps to just bounce things off of other parents. This site has been my saving grace. I sincerely hope that you find some answers soon. If you just need to talk, feel free to send me a PM. Hang in there, and keep us posted.
<br />
<br />Stacey
 
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