Study - PTSD in parents of CF'ers

J

JORDYSMOM

New member
I'm with you Heather. I cried last night telling my husband about this article. For so long I've felt like I needed to get a grip, and learn to handle my anxiety/panick disorder. I've felt that I'm a logical, intelligent person, so why can't I control my emotions?! Even feeling guilty about my seemingly unrealistic problems.
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<br />I told David that this article helps me see that there is a legitimate reason for my problems. It helps me see that I'm not the only one who feels this way. Even though I know you other parents here understand my fears, worries, and that waiting for the other shoe to drop feeling, I needed this article. Even though I've shared with everyone here that I have an anxiety/panick disorder, I've never really admitted the severity of it. Sometimes it's pretty bad. <img src="i/expressions/face-icon-small-sad.gif" border="0">
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<br />Stacey
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E

entropy

Guest
POST Traumatic Stress Syndrome?

I think it would be more appropriate to call it "Traumatic Stress Syndrome" since it's something that parents have to live with constantly.
 
E

entropy

Guest
POST Traumatic Stress Syndrome?

I think it would be more appropriate to call it "Traumatic Stress Syndrome" since it's something that parents have to live with constantly.
 
E

entropy

Guest
POST Traumatic Stress Syndrome?
<br />
<br />I think it would be more appropriate to call it "Traumatic Stress Syndrome" since it's something that parents have to live with constantly.
 
K

ktsmom

New member
As always, it is so gratifying to read your responses and a huge relief to know I'm not alone. I can relate to every single thing that has been said.

The fact that one of the study's authors has a daughter with CF - perhaps he himself suffers or has observed other parents suffering? It has been pointed out to me privately that there are limitations on the study but I don't care because reading it was a huge relief to me - as others have said it makes me feel more normal. And as I understand the study, some parents were diagnosed with only partial PTSD because they lacked the avoidance trait, which as I mentioned earlier is a trait that is pretty much impossible to have when treating CF 24/7.

Obviously I don't wallow in misery 24/7 or I could never get it all done. But sometimes as I prepare the night's nebs or fill the pill organizer or cajole my kid into her vest, I am completely overwhelmed. I relive the diagnosis, relive the 3 1/2 years it took to get the diagnosis. All the while wondering why in the world I can't just get over it! <img src="i/expressions/face-icon-small-mad.gif" border="0">

Anyway, you all have said it better than I could, so thanks, and hugs, to all. <img src="i/expressions/heart.gif" border="0">
 
K

ktsmom

New member
As always, it is so gratifying to read your responses and a huge relief to know I'm not alone. I can relate to every single thing that has been said.

The fact that one of the study's authors has a daughter with CF - perhaps he himself suffers or has observed other parents suffering? It has been pointed out to me privately that there are limitations on the study but I don't care because reading it was a huge relief to me - as others have said it makes me feel more normal. And as I understand the study, some parents were diagnosed with only partial PTSD because they lacked the avoidance trait, which as I mentioned earlier is a trait that is pretty much impossible to have when treating CF 24/7.

Obviously I don't wallow in misery 24/7 or I could never get it all done. But sometimes as I prepare the night's nebs or fill the pill organizer or cajole my kid into her vest, I am completely overwhelmed. I relive the diagnosis, relive the 3 1/2 years it took to get the diagnosis. All the while wondering why in the world I can't just get over it! <img src="i/expressions/face-icon-small-mad.gif" border="0">

Anyway, you all have said it better than I could, so thanks, and hugs, to all. <img src="i/expressions/heart.gif" border="0">
 
K

ktsmom

New member
As always, it is so gratifying to read your responses and a huge relief to know I'm not alone. I can relate to every single thing that has been said.
<br />
<br />The fact that one of the study's authors has a daughter with CF - perhaps he himself suffers or has observed other parents suffering? It has been pointed out to me privately that there are limitations on the study but I don't care because reading it was a huge relief to me - as others have said it makes me feel more normal. And as I understand the study, some parents were diagnosed with only partial PTSD because they lacked the avoidance trait, which as I mentioned earlier is a trait that is pretty much impossible to have when treating CF 24/7.
<br />
<br />Obviously I don't wallow in misery 24/7 or I could never get it all done. But sometimes as I prepare the night's nebs or fill the pill organizer or cajole my kid into her vest, I am completely overwhelmed. I relive the diagnosis, relive the 3 1/2 years it took to get the diagnosis. All the while wondering why in the world I can't just get over it! <img src="i/expressions/face-icon-small-mad.gif" border="0">
<br />
<br />Anyway, you all have said it better than I could, so thanks, and hugs, to all. <img src="i/expressions/heart.gif" border="0">
 
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