Suggestions for a Mom of Newly diagnosed infant?

M

MargaritaChic

New member
Please share with me any suggestions you have for a mom of a newborn (born 12/5/07) who has been diagnosed with CF.

What things do I need to know? What things are the most important to do? What do you wish someone would have told you when you found out your child had CF?

A little about me:
I work full-time (50 hours a week) and DH is going to be a Stay at home dad with our child. This is our first child and now due to the CF will be our only child.

We have 2 dogs (Yorkies) who are not potty trained and instead wear bellybands so they are unable to urinate in our home.

I have never been very good at cleaning. I have been a bit of a work-a-holic and never found the time to devote to cleaning. But I am now very worried about this because of CF lung issues. What tips do you have for me? What is the most important enviornmental tip you can give me? What should I spend the most time cleaning?

Any information you can share with me is greatly appreciated.
 
M

MargaritaChic

New member
Please share with me any suggestions you have for a mom of a newborn (born 12/5/07) who has been diagnosed with CF.

What things do I need to know? What things are the most important to do? What do you wish someone would have told you when you found out your child had CF?

A little about me:
I work full-time (50 hours a week) and DH is going to be a Stay at home dad with our child. This is our first child and now due to the CF will be our only child.

We have 2 dogs (Yorkies) who are not potty trained and instead wear bellybands so they are unable to urinate in our home.

I have never been very good at cleaning. I have been a bit of a work-a-holic and never found the time to devote to cleaning. But I am now very worried about this because of CF lung issues. What tips do you have for me? What is the most important enviornmental tip you can give me? What should I spend the most time cleaning?

Any information you can share with me is greatly appreciated.
 
M

MargaritaChic

New member
Please share with me any suggestions you have for a mom of a newborn (born 12/5/07) who has been diagnosed with CF.

What things do I need to know? What things are the most important to do? What do you wish someone would have told you when you found out your child had CF?

A little about me:
I work full-time (50 hours a week) and DH is going to be a Stay at home dad with our child. This is our first child and now due to the CF will be our only child.

We have 2 dogs (Yorkies) who are not potty trained and instead wear bellybands so they are unable to urinate in our home.

I have never been very good at cleaning. I have been a bit of a work-a-holic and never found the time to devote to cleaning. But I am now very worried about this because of CF lung issues. What tips do you have for me? What is the most important enviornmental tip you can give me? What should I spend the most time cleaning?

Any information you can share with me is greatly appreciated.
 
M

MargaritaChic

New member
Please share with me any suggestions you have for a mom of a newborn (born 12/5/07) who has been diagnosed with CF.

What things do I need to know? What things are the most important to do? What do you wish someone would have told you when you found out your child had CF?

A little about me:
I work full-time (50 hours a week) and DH is going to be a Stay at home dad with our child. This is our first child and now due to the CF will be our only child.

We have 2 dogs (Yorkies) who are not potty trained and instead wear bellybands so they are unable to urinate in our home.

I have never been very good at cleaning. I have been a bit of a work-a-holic and never found the time to devote to cleaning. But I am now very worried about this because of CF lung issues. What tips do you have for me? What is the most important enviornmental tip you can give me? What should I spend the most time cleaning?

Any information you can share with me is greatly appreciated.
 
M

MargaritaChic

New member
Please share with me any suggestions you have for a mom of a newborn (born 12/5/07) who has been diagnosed with CF.

What things do I need to know? What things are the most important to do? What do you wish someone would have told you when you found out your child had CF?

A little about me:
I work full-time (50 hours a week) and DH is going to be a Stay at home dad with our child. This is our first child and now due to the CF will be our only child.

We have 2 dogs (Yorkies) who are not potty trained and instead wear bellybands so they are unable to urinate in our home.

I have never been very good at cleaning. I have been a bit of a work-a-holic and never found the time to devote to cleaning. But I am now very worried about this because of CF lung issues. What tips do you have for me? What is the most important enviornmental tip you can give me? What should I spend the most time cleaning?

Any information you can share with me is greatly appreciated.
 
M

mneville

Guest
Sorry about the diagnosis but glad you are getting early treatments! Our son was diagnosed at 8 days old, he was our first as well. We thought he would be the only after the diagnosis but we opted for IVF/PGD which allowed us to have a child UNaffected by CF. That is always an option you could consider.

Aidan's first winter was pretty much spent at home. It is such a bad time of year for sickness. Try to keep away from large crowds the first winter. Our rule of thumb is just HANDWASHING. Wash your hands very often and anyone who touches your baby should also wash.

Congrats on your baby! We never thought it would get easier but Aidan is doing amazing! We hope the same for your baby.

Megan, mom to Aidan 3 w/CF and Gavin, 6 months no CF
 
M

mneville

Guest
Sorry about the diagnosis but glad you are getting early treatments! Our son was diagnosed at 8 days old, he was our first as well. We thought he would be the only after the diagnosis but we opted for IVF/PGD which allowed us to have a child UNaffected by CF. That is always an option you could consider.

Aidan's first winter was pretty much spent at home. It is such a bad time of year for sickness. Try to keep away from large crowds the first winter. Our rule of thumb is just HANDWASHING. Wash your hands very often and anyone who touches your baby should also wash.

Congrats on your baby! We never thought it would get easier but Aidan is doing amazing! We hope the same for your baby.

Megan, mom to Aidan 3 w/CF and Gavin, 6 months no CF
 
M

mneville

Guest
Sorry about the diagnosis but glad you are getting early treatments! Our son was diagnosed at 8 days old, he was our first as well. We thought he would be the only after the diagnosis but we opted for IVF/PGD which allowed us to have a child UNaffected by CF. That is always an option you could consider.

Aidan's first winter was pretty much spent at home. It is such a bad time of year for sickness. Try to keep away from large crowds the first winter. Our rule of thumb is just HANDWASHING. Wash your hands very often and anyone who touches your baby should also wash.

Congrats on your baby! We never thought it would get easier but Aidan is doing amazing! We hope the same for your baby.

Megan, mom to Aidan 3 w/CF and Gavin, 6 months no CF
 
M

mneville

Guest
Sorry about the diagnosis but glad you are getting early treatments! Our son was diagnosed at 8 days old, he was our first as well. We thought he would be the only after the diagnosis but we opted for IVF/PGD which allowed us to have a child UNaffected by CF. That is always an option you could consider.

Aidan's first winter was pretty much spent at home. It is such a bad time of year for sickness. Try to keep away from large crowds the first winter. Our rule of thumb is just HANDWASHING. Wash your hands very often and anyone who touches your baby should also wash.

Congrats on your baby! We never thought it would get easier but Aidan is doing amazing! We hope the same for your baby.

Megan, mom to Aidan 3 w/CF and Gavin, 6 months no CF
 
M

mneville

Guest
Sorry about the diagnosis but glad you are getting early treatments! Our son was diagnosed at 8 days old, he was our first as well. We thought he would be the only after the diagnosis but we opted for IVF/PGD which allowed us to have a child UNaffected by CF. That is always an option you could consider.

Aidan's first winter was pretty much spent at home. It is such a bad time of year for sickness. Try to keep away from large crowds the first winter. Our rule of thumb is just HANDWASHING. Wash your hands very often and anyone who touches your baby should also wash.

Congrats on your baby! We never thought it would get easier but Aidan is doing amazing! We hope the same for your baby.

Megan, mom to Aidan 3 w/CF and Gavin, 6 months no CF
 
M

Mommafirst

Guest
I'm so sorry to hear about your diagnosis. But congrats on your new baby! I know it is scary and overwhelming at first. It gets easier. You adapt. You create a new normal. And no matter what, you will love that little baby like you didn't believe was possible.

As for cleaning, most of the germs that get into CFers lungs are everywhere. In tap water, on our skin,....blech. You can keep a clean house, you can do everything, but if its going to get into your CFers lungs, its going to no matter what. Good hygeine and handwashing is most important. I wish we had invested in Purell stock, LOL, because we use a TON of it.

Hang in there -- take it day by day. As you get to know your child, CF will just be one part of a very well rounded and important person in your life.

HUGS -- and hang out on this board, you will learn so very much!!!
 
M

Mommafirst

Guest
I'm so sorry to hear about your diagnosis. But congrats on your new baby! I know it is scary and overwhelming at first. It gets easier. You adapt. You create a new normal. And no matter what, you will love that little baby like you didn't believe was possible.

As for cleaning, most of the germs that get into CFers lungs are everywhere. In tap water, on our skin,....blech. You can keep a clean house, you can do everything, but if its going to get into your CFers lungs, its going to no matter what. Good hygeine and handwashing is most important. I wish we had invested in Purell stock, LOL, because we use a TON of it.

Hang in there -- take it day by day. As you get to know your child, CF will just be one part of a very well rounded and important person in your life.

HUGS -- and hang out on this board, you will learn so very much!!!
 
M

Mommafirst

Guest
I'm so sorry to hear about your diagnosis. But congrats on your new baby! I know it is scary and overwhelming at first. It gets easier. You adapt. You create a new normal. And no matter what, you will love that little baby like you didn't believe was possible.

As for cleaning, most of the germs that get into CFers lungs are everywhere. In tap water, on our skin,....blech. You can keep a clean house, you can do everything, but if its going to get into your CFers lungs, its going to no matter what. Good hygeine and handwashing is most important. I wish we had invested in Purell stock, LOL, because we use a TON of it.

Hang in there -- take it day by day. As you get to know your child, CF will just be one part of a very well rounded and important person in your life.

HUGS -- and hang out on this board, you will learn so very much!!!
 
M

Mommafirst

Guest
I'm so sorry to hear about your diagnosis. But congrats on your new baby! I know it is scary and overwhelming at first. It gets easier. You adapt. You create a new normal. And no matter what, you will love that little baby like you didn't believe was possible.

As for cleaning, most of the germs that get into CFers lungs are everywhere. In tap water, on our skin,....blech. You can keep a clean house, you can do everything, but if its going to get into your CFers lungs, its going to no matter what. Good hygeine and handwashing is most important. I wish we had invested in Purell stock, LOL, because we use a TON of it.

Hang in there -- take it day by day. As you get to know your child, CF will just be one part of a very well rounded and important person in your life.

HUGS -- and hang out on this board, you will learn so very much!!!
 
M

Mommafirst

Guest
I'm so sorry to hear about your diagnosis. But congrats on your new baby! I know it is scary and overwhelming at first. It gets easier. You adapt. You create a new normal. And no matter what, you will love that little baby like you didn't believe was possible.

As for cleaning, most of the germs that get into CFers lungs are everywhere. In tap water, on our skin,....blech. You can keep a clean house, you can do everything, but if its going to get into your CFers lungs, its going to no matter what. Good hygeine and handwashing is most important. I wish we had invested in Purell stock, LOL, because we use a TON of it.

Hang in there -- take it day by day. As you get to know your child, CF will just be one part of a very well rounded and important person in your life.

HUGS -- and hang out on this board, you will learn so very much!!!
 
A

Alyssa

New member
Ditto to what others have said -- the bugs are everywhere in the environment, so don't stress out too much about having a surgically clean house - it's not necessary and will not help anyway -- which is not to say you should live in a pig sty either, but just normal cleaning is fine and follow cleaning instructions for the nebulizing cups/equipment.

The bigger issues are, hand washing, hand sanitizer, common sense around others with colds, sharing of toys with kids with colds and especially cross contamination issues at clinic. Common sense around smoking -- if you or anyone in the home smokes do ever do it in the house or car -- don't take your kid anywhere there is smoking indoors etc. Make and keep your clinic appointments and be complaint with meds and treatments. You might also want to consider getting a good HEPA air filter - we have bought 3 for our home(s) made by Austin Air. We have purchased them from www.alerg.com. They do a very good job of filtering out a lot of allergens - the air/house smells better and both my kids seemed to have fewer symptoms since running them 24/7. If you do buy one make sure it is a HEPA and not an ionic kind - they make carbon dioxide -- HEPA is the only filter approved by the American Lung Association.

Just by being here and posting shows you are a responsible, concerned parent, I'm sure you and your husband will do an excellent job raising your child.

Welcome to the site.
 
A

Alyssa

New member
Ditto to what others have said -- the bugs are everywhere in the environment, so don't stress out too much about having a surgically clean house - it's not necessary and will not help anyway -- which is not to say you should live in a pig sty either, but just normal cleaning is fine and follow cleaning instructions for the nebulizing cups/equipment.

The bigger issues are, hand washing, hand sanitizer, common sense around others with colds, sharing of toys with kids with colds and especially cross contamination issues at clinic. Common sense around smoking -- if you or anyone in the home smokes do ever do it in the house or car -- don't take your kid anywhere there is smoking indoors etc. Make and keep your clinic appointments and be complaint with meds and treatments. You might also want to consider getting a good HEPA air filter - we have bought 3 for our home(s) made by Austin Air. We have purchased them from www.alerg.com. They do a very good job of filtering out a lot of allergens - the air/house smells better and both my kids seemed to have fewer symptoms since running them 24/7. If you do buy one make sure it is a HEPA and not an ionic kind - they make carbon dioxide -- HEPA is the only filter approved by the American Lung Association.

Just by being here and posting shows you are a responsible, concerned parent, I'm sure you and your husband will do an excellent job raising your child.

Welcome to the site.
 
A

Alyssa

New member
Ditto to what others have said -- the bugs are everywhere in the environment, so don't stress out too much about having a surgically clean house - it's not necessary and will not help anyway -- which is not to say you should live in a pig sty either, but just normal cleaning is fine and follow cleaning instructions for the nebulizing cups/equipment.

The bigger issues are, hand washing, hand sanitizer, common sense around others with colds, sharing of toys with kids with colds and especially cross contamination issues at clinic. Common sense around smoking -- if you or anyone in the home smokes do ever do it in the house or car -- don't take your kid anywhere there is smoking indoors etc. Make and keep your clinic appointments and be complaint with meds and treatments. You might also want to consider getting a good HEPA air filter - we have bought 3 for our home(s) made by Austin Air. We have purchased them from www.alerg.com. They do a very good job of filtering out a lot of allergens - the air/house smells better and both my kids seemed to have fewer symptoms since running them 24/7. If you do buy one make sure it is a HEPA and not an ionic kind - they make carbon dioxide -- HEPA is the only filter approved by the American Lung Association.

Just by being here and posting shows you are a responsible, concerned parent, I'm sure you and your husband will do an excellent job raising your child.

Welcome to the site.
 
A

Alyssa

New member
Ditto to what others have said -- the bugs are everywhere in the environment, so don't stress out too much about having a surgically clean house - it's not necessary and will not help anyway -- which is not to say you should live in a pig sty either, but just normal cleaning is fine and follow cleaning instructions for the nebulizing cups/equipment.

The bigger issues are, hand washing, hand sanitizer, common sense around others with colds, sharing of toys with kids with colds and especially cross contamination issues at clinic. Common sense around smoking -- if you or anyone in the home smokes do ever do it in the house or car -- don't take your kid anywhere there is smoking indoors etc. Make and keep your clinic appointments and be complaint with meds and treatments. You might also want to consider getting a good HEPA air filter - we have bought 3 for our home(s) made by Austin Air. We have purchased them from www.alerg.com. They do a very good job of filtering out a lot of allergens - the air/house smells better and both my kids seemed to have fewer symptoms since running them 24/7. If you do buy one make sure it is a HEPA and not an ionic kind - they make carbon dioxide -- HEPA is the only filter approved by the American Lung Association.

Just by being here and posting shows you are a responsible, concerned parent, I'm sure you and your husband will do an excellent job raising your child.

Welcome to the site.
 
A

Alyssa

New member
Ditto to what others have said -- the bugs are everywhere in the environment, so don't stress out too much about having a surgically clean house - it's not necessary and will not help anyway -- which is not to say you should live in a pig sty either, but just normal cleaning is fine and follow cleaning instructions for the nebulizing cups/equipment.

The bigger issues are, hand washing, hand sanitizer, common sense around others with colds, sharing of toys with kids with colds and especially cross contamination issues at clinic. Common sense around smoking -- if you or anyone in the home smokes do ever do it in the house or car -- don't take your kid anywhere there is smoking indoors etc. Make and keep your clinic appointments and be complaint with meds and treatments. You might also want to consider getting a good HEPA air filter - we have bought 3 for our home(s) made by Austin Air. We have purchased them from www.alerg.com. They do a very good job of filtering out a lot of allergens - the air/house smells better and both my kids seemed to have fewer symptoms since running them 24/7. If you do buy one make sure it is a HEPA and not an ionic kind - they make carbon dioxide -- HEPA is the only filter approved by the American Lung Association.

Just by being here and posting shows you are a responsible, concerned parent, I'm sure you and your husband will do an excellent job raising your child.

Welcome to the site.
 
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