summer

anonymous

New member
I have a 15 year old no CF, 11 no CF and a 9month with Cf. Befor we had the baby we used to do alot of traveling and camping.
I'm alittle scare about this coming summer because of the baby with Cf.Is it ok to take him swimming, camping and out of the country? I also wonder if it is ok to take him to the zoo and pet the animals. If I take him swimming is it better to take him indoor or outdoor swimming? What can I do to keep him as much as germ free as possible. Can some one give me some advise for our next summer vacation. I'm been keepig my baby out of public places and he is doing good. I'm scare that he will get sick if I take him out to all those places.
 

JazzysMom

New member
There is no reason that you cant do the same things. It will just take more time, precautions & effort. He can pet the animals just be sure to wash hands (this applies to anyone not just a CFer) afterwards. Swimming in the water is fine. Some people even debate the clorine water being worse than lakes/seas for CF. I have always swam in both & dont think it has ever had an affect on me. As far as traveling out of the country...Be cautious, educate yourself about what needs to be adapted for treatments etc & try to keep a routine & needed rest. Otherwise ENJOY! Let your kid be a kid! Please realize that this is my opinion, but I didnt make it to almost 38 by accident!
 

julie

New member
Although it is both reasonable and understandable to want to protect your little CFer there are some things that you should keep in mind and always consider.

Whether you expose your child with CF to germs now, or in 4 years when he/she goes to kidergarten or keep them home and send them off to college in 18 years-THEY WILL BE EXPOSED. A majority of CF parents, adults who have CF and even some doctors will tell you the earlier you expose a child with CF to these germs, the better for their health in the long run. The immune system gets exposure young, has chance to build some immunity and adjust to and fight the germs and the body handles it better at a younger age.

It's reasonable to be fearful, I hope you know and understand that and you have every right to be... but your CF child should be allowed the same activities as your other children without CF.

This topic has been re-hashed a number of times, many CFers and parents agreeing with the above. Some parents do tend to disagree and think that protection, homeschooling and shelter is better. I suppose to each his own. But ask any number of adult or teen CFers on this board and they will tell you that they were allowed "regular" activities and LOVED IT! They were ill with typical CF ailments as children and teens but being exposed to germs didn't harm them in the long run. Those who did live protected lives (because it does happen) will tell you taht they wished their parents weren't so strict, that when they "went out" when they were older, they DID get really sick.

Swimming should be fine, but as with any child, make sure the facility takes good care of it's pool with the proper cleaning and chemicals. Camping out in the country should actually be good for your child, provided that they don't have any other non-CF related allergies. The open air, free of chemicals, good outdoor spaces... my husband always loves to go camping and use to hike a lot when he was younger. He says his sinuses feel a bit less pressurized and that he can breathe "smoother". The zoo and petting the animals at the Zoo can be dangerous for any child, CF or not. If they have a handwashing station wtih antibacterial soap, UTILIZE it. If they don't, this is one occasion that I would recommend you bring along some waterles antibacterial stuff. Bugs from petting zoo animals (by touch) can be dangerous to anyone, children and adults.

The bottom line is this, Your child with CF WILL get sick. The earlier it happens, the better for his immune system. I understand the want to protect, many people on this board do, but it's not necessairly the best thing for your baby.
 

Diana

New member
My eldest daughter with CF LOVES swimming and it is soooooo good for CF'ers. She had one winter where she had a few infections in a row and then I started her in swimming lessons. Her health improved dramatically and I believe the swimming is the main factor. I make sure she now goes to the local pools twice a week minimum and soon will start taking her to the beach once a week also. I have already started taking the baby swimming as well....but she doesn't do much yet....in fact she fell asleep in the pool the other day while I was holding her!

When it comes to swimming my only advice is to make sure that it is not stagnant (only a worry on the camping trips where a lake is present) water which is a perfect breeding ground for bacteria.

You really do question everything when your little one is first diagnosed with the CF and that turns out to be a really good thing. It is better to make educated decisions so keep on asking as many questions as you can think. You will find that you will be an expert in no time. In the meantime enjoy your child and don't give up any of the things you love doing as a family unless there are clear high risks involved.
 

anonymous

New member
One thing that Cf er's are not supposed to do is go in a hot tub. Too much of a risk for bacteria. I know you didn't ask this but some pools have a hot tub nearby.
 

anonymous

New member
DS is 2 1/2 and has had swimming lessons, gone in the lake. He's gone to a petting zoo, regular zoo and to the local fair with his daycare. I just make sure, that his hands are washed after being out and about -- I always use antibacterial wipes, daycare has all their kids wash their hands when they come in from outdoors, go on field trips, before meals and snacks.

We did have a hot tub, which we got rid of last summer before DS noticed it, expressed an interest. I'd stopped using it anyway 'cuz I was afraid of germs. So we gave it away to relatives.
 

CFTwins

New member
So, no one has had any pseudomonas problems with pools? I know that the risk is lower than hottubs.. but I'm curious. Thanks, Stacy
 

julie

New member
I've been on this board for about a year now (initially posted as anon for a long time) and have heard many pool discussions but nothing mentioned about pseudomonas resulting from any sort of swimming pool, or even a lake for that matter. Although the lake is a likely sitaution.
 

julie

New member
I've been on this board for about a year now (initially posted as anon for a long time) and have heard many pool discussions but nothing mentioned about pseudomonas resulting from any sort of swimming pool, or even a lake for that matter. Although the lake is a likely sitaution.
 

Diana

New member
I actually asked my daughters CF doctor this one because she spends a fair bit of time at the swimming pools nd they get quite crowded over the holidays. I was worried about germs in the water etc. He told me that a highly chlorinated pool is virtually a sterile environment and she is at very low risk of picking up germs there. And like I have previously stated, her health has been fantastic ever since she has become a regular swimmer.
 

Diana

New member
I actually asked my daughters CF doctor this one because she spends a fair bit of time at the swimming pools nd they get quite crowded over the holidays. I was worried about germs in the water etc. He told me that a highly chlorinated pool is virtually a sterile environment and she is at very low risk of picking up germs there. And like I have previously stated, her health has been fantastic ever since she has become a regular swimmer.
 

imondeck

New member
I would stay away from the lakes, especially in the heat of summer. My middle son (who does not have cf) would always get sick with high fevers and bacterial infections. The last time was several years ago on a trip to Lake Texoma. On that last trip, he got very, very sick.

As soon as we stopped him from swimming and or catching tadpoles/minnows in the lakes he was better and hasn't been sick since. Children are going to swallow water and play hard in water no matter how you watch. Why risk it?

We have never had a problem with swimming pools (that I am aware of anyways).
 

imondeck

New member
I would stay away from the lakes, especially in the heat of summer. My middle son (who does not have cf) would always get sick with high fevers and bacterial infections. The last time was several years ago on a trip to Lake Texoma. On that last trip, he got very, very sick.

As soon as we stopped him from swimming and or catching tadpoles/minnows in the lakes he was better and hasn't been sick since. Children are going to swallow water and play hard in water no matter how you watch. Why risk it?

We have never had a problem with swimming pools (that I am aware of anyways).
 

thelizardqueen

New member
I was always in lakes, pools and hottubs during the summer as a kid, and I've never had a problem. I've never gotten sick swimming in these locations either.
 

thelizardqueen

New member
I was always in lakes, pools and hottubs during the summer as a kid, and I've never had a problem. I've never gotten sick swimming in these locations either.
 

JazzysMom

New member
Lakes or any waters where geese & ducks are common visitors is a potential problem. The feces from the birds penetrates the water & can lead to instestinal bacterial infections. If there are no birds then the general rinse off & wash your hands should be sufficient. Pools is the same. In my local paper there was a story about a family that had a birthday party at a local hotel which included use of the pool & hot tub. Every kid broke out in a blistery type rash that the treating doctors said was a reaction to chemicals of some kind. All the parents figure its from the pool & hot tub chemicals. Although the hotel doesnt use chlorine like we think of they do use chemicals. This is an unusual case compared to the number of people that swim in pools, but just thought I would mention it. I grew up swimming in rivers, lake & rivers. I always preferred the lakes/rivers since they didnt have chemicals, but no medical reason & I never had any problems. I think EVERYONE is different & U have to see for yourself. Like any activity...take precautions!
 

JazzysMom

New member
Lakes or any waters where geese & ducks are common visitors is a potential problem. The feces from the birds penetrates the water & can lead to instestinal bacterial infections. If there are no birds then the general rinse off & wash your hands should be sufficient. Pools is the same. In my local paper there was a story about a family that had a birthday party at a local hotel which included use of the pool & hot tub. Every kid broke out in a blistery type rash that the treating doctors said was a reaction to chemicals of some kind. All the parents figure its from the pool & hot tub chemicals. Although the hotel doesnt use chlorine like we think of they do use chemicals. This is an unusual case compared to the number of people that swim in pools, but just thought I would mention it. I grew up swimming in rivers, lake & rivers. I always preferred the lakes/rivers since they didnt have chemicals, but no medical reason & I never had any problems. I think EVERYONE is different & U have to see for yourself. Like any activity...take precautions!
 

buggygurl321

New member
I am 15 w/CF and have been vacationing at a lake for two weeks every summer since I was three. We have bonfires, go swimming (my family and I do the "Froid Helga death swim" around three islands!), and all of that great stuff. I guess it really depends on the severity of the case of CF, and the location, etc. So, my advice is: be careful, but have fun!


Hope it helps

Katie
 

buggygurl321

New member
I am 15 w/CF and have been vacationing at a lake for two weeks every summer since I was three. We have bonfires, go swimming (my family and I do the "Froid Helga death swim" around three islands!), and all of that great stuff. I guess it really depends on the severity of the case of CF, and the location, etc. So, my advice is: be careful, but have fun!


Hope it helps

Katie
 

imondeck

New member
We had no problem with the lakes in PA. or Ohio when we lived there. It was when we moved to Oklahoma and spent time in the lakes here and in Texas. We get 100+ days on end in the summertime. Also doesn't help when you have a child who used to suck his thumb all the time.

I do remember the Lake Texoma lake having a big problem with bacteria that year my son got sick (we didn't know beforehand). Our doc back in Oklahoma even showed us the articles warning of lake swimming.
 
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