Good Morning Everyone...
My daughter, Kaitlyn, finally got out of the hospital yesterday. We are so happy to be home. She is far from back to normal but definately better than she was... Thanks for all the support on the two posts about her.
Now, this morning I have another question. I have a nephew (he lives 1500 miles away so I don't get to see him much), but in conversations I've had with his parents, I am so sure he has CF that it's scary. However, they have not had him tested. His mom said she did a blood test when she was pregnant and was shown not to be a carrier (the basic test, not the extended one). FOr that reason, she didn't think he could have CF. HOwever, since he was born 2 1/2 years ago, he has had nothing but problems. He has constant breathing problems (diagnosed as ashtma), terrible reflux problems, he is very small for his age, and the list goes on. He has a pot belly... I mean, everything I could think of he's got it. I explained to her that she needed to have him tested and she said she has tried but the drs will not do the test. She said they tell her she is paranoid and she needs to just relax.
THis morning she called me completely freaking out because when her son woke up this morning his chest was caved in. He still has the pot belly but his ribs are sticking out and one side of his chest is competely sunk in. She is scared and doesn't know what to do. She said he acts fine. He is not breathing differently or anything but he looks very different. She asked me if it could a symptom of CF. Well, my girls have never done that but I belive in the past I have heard other people mention it. I told her I would try to find out if it is common in CF since I really don't know.
ANyone have any info on this?
THanks much.
My daughter, Kaitlyn, finally got out of the hospital yesterday. We are so happy to be home. She is far from back to normal but definately better than she was... Thanks for all the support on the two posts about her.
Now, this morning I have another question. I have a nephew (he lives 1500 miles away so I don't get to see him much), but in conversations I've had with his parents, I am so sure he has CF that it's scary. However, they have not had him tested. His mom said she did a blood test when she was pregnant and was shown not to be a carrier (the basic test, not the extended one). FOr that reason, she didn't think he could have CF. HOwever, since he was born 2 1/2 years ago, he has had nothing but problems. He has constant breathing problems (diagnosed as ashtma), terrible reflux problems, he is very small for his age, and the list goes on. He has a pot belly... I mean, everything I could think of he's got it. I explained to her that she needed to have him tested and she said she has tried but the drs will not do the test. She said they tell her she is paranoid and she needs to just relax.
THis morning she called me completely freaking out because when her son woke up this morning his chest was caved in. He still has the pot belly but his ribs are sticking out and one side of his chest is competely sunk in. She is scared and doesn't know what to do. She said he acts fine. He is not breathing differently or anything but he looks very different. She asked me if it could a symptom of CF. Well, my girls have never done that but I belive in the past I have heard other people mention it. I told her I would try to find out if it is common in CF since I really don't know.
ANyone have any info on this?
THanks much.