supplimental security for baby

[TobysMom]

Hello all,

my son was in the NICU for 4 weeks, and during his stay, he was diagnosed after about 10 days from his newborn screening with CF. The hospital has a social worker that helps families apply for SSI for the children. We went through the process and today I received a letter stating that the claim was denied. I know there are people that have applied and been denied and appealed and eventually were approved for it. They claim that my baby's condition is not severe enough for him to receive the benefits.

I have yet to look into day cares for when I have to go back to work, but I am pretty sure that putting him in may not be worth the cost of me going back to work, because we need to make sure the day care is nice and clean and there aren't many other kids there. Plus, he's just 7 weeks old now and as we all know, kids with CF are at higher risk of catching a bug from another germ-ridden kid in the day care. My #1 concern is my son, but SSI would greatly help offset the cost of day care (or having a private sitter/nanny care for him)...

So my question to anyone that can help... since SSI has determined that his case isn't "severe" enough, what can I write in my appeals letter that may sway them to approve a claim??

The baby's father and I are NOT in a good place financially, as we're on only ONE income and it isn't much of an income at this point either. I may have to do a voluntary repo on my car and cut back to one car, so I am starting to get concerned about finances. If anyone knows of any other ways of receiving financial help that can go towards day care expenses or anything, it would be SO appreciated.

Thanks much!

 

[TobysMom]

Hello all,

my son was in the NICU for 4 weeks, and during his stay, he was diagnosed after about 10 days from his newborn screening with CF. The hospital has a social worker that helps families apply for SSI for the children. We went through the process and today I received a letter stating that the claim was denied. I know there are people that have applied and been denied and appealed and eventually were approved for it. They claim that my baby's condition is not severe enough for him to receive the benefits.

I have yet to look into day cares for when I have to go back to work, but I am pretty sure that putting him in may not be worth the cost of me going back to work, because we need to make sure the day care is nice and clean and there aren't many other kids there. Plus, he's just 7 weeks old now and as we all know, kids with CF are at higher risk of catching a bug from another germ-ridden kid in the day care. My #1 concern is my son, but SSI would greatly help offset the cost of day care (or having a private sitter/nanny care for him)...

So my question to anyone that can help... since SSI has determined that his case isn't "severe" enough, what can I write in my appeals letter that may sway them to approve a claim??

The baby's father and I are NOT in a good place financially, as we're on only ONE income and it isn't much of an income at this point either. I may have to do a voluntary repo on my car and cut back to one car, so I am starting to get concerned about finances. If anyone knows of any other ways of receiving financial help that can go towards day care expenses or anything, it would be SO appreciated.

Thanks much!

 

[TobysMom]

Hello all,

my son was in the NICU for 4 weeks, and during his stay, he was diagnosed after about 10 days from his newborn screening with CF. The hospital has a social worker that helps families apply for SSI for the children. We went through the process and today I received a letter stating that the claim was denied. I know there are people that have applied and been denied and appealed and eventually were approved for it. They claim that my baby's condition is not severe enough for him to receive the benefits.

I have yet to look into day cares for when I have to go back to work, but I am pretty sure that putting him in may not be worth the cost of me going back to work, because we need to make sure the day care is nice and clean and there aren't many other kids there. Plus, he's just 7 weeks old now and as we all know, kids with CF are at higher risk of catching a bug from another germ-ridden kid in the day care. My #1 concern is my son, but SSI would greatly help offset the cost of day care (or having a private sitter/nanny care for him)...

So my question to anyone that can help... since SSI has determined that his case isn't "severe" enough, what can I write in my appeals letter that may sway them to approve a claim??

The baby's father and I are NOT in a good place financially, as we're on only ONE income and it isn't much of an income at this point either. I may have to do a voluntary repo on my car and cut back to one car, so I am starting to get concerned about finances. If anyone knows of any other ways of receiving financial help that can go towards day care expenses or anything, it would be SO appreciated.

Thanks much!

 

[TobysMom]

Hello all,

my son was in the NICU for 4 weeks, and during his stay, he was diagnosed after about 10 days from his newborn screening with CF. The hospital has a social worker that helps families apply for SSI for the children. We went through the process and today I received a letter stating that the claim was denied. I know there are people that have applied and been denied and appealed and eventually were approved for it. They claim that my baby's condition is not severe enough for him to receive the benefits.

I have yet to look into day cares for when I have to go back to work, but I am pretty sure that putting him in may not be worth the cost of me going back to work, because we need to make sure the day care is nice and clean and there aren't many other kids there. Plus, he's just 7 weeks old now and as we all know, kids with CF are at higher risk of catching a bug from another germ-ridden kid in the day care. My #1 concern is my son, but SSI would greatly help offset the cost of day care (or having a private sitter/nanny care for him)...

So my question to anyone that can help... since SSI has determined that his case isn't "severe" enough, what can I write in my appeals letter that may sway them to approve a claim??

The baby's father and I are NOT in a good place financially, as we're on only ONE income and it isn't much of an income at this point either. I may have to do a voluntary repo on my car and cut back to one car, so I am starting to get concerned about finances. If anyone knows of any other ways of receiving financial help that can go towards day care expenses or anything, it would be SO appreciated.

Thanks much!

 

[TobysMom]

Hello all,
<br />
<br />my son was in the NICU for 4 weeks, and during his stay, he was diagnosed after about 10 days from his newborn screening with CF. The hospital has a social worker that helps families apply for SSI for the children. We went through the process and today I received a letter stating that the claim was denied. I know there are people that have applied and been denied and appealed and eventually were approved for it. They claim that my baby's condition is not severe enough for him to receive the benefits.
<br />
<br />I have yet to look into day cares for when I have to go back to work, but I am pretty sure that putting him in may not be worth the cost of me going back to work, because we need to make sure the day care is nice and clean and there aren't many other kids there. Plus, he's just 7 weeks old now and as we all know, kids with CF are at higher risk of catching a bug from another germ-ridden kid in the day care. My #1 concern is my son, but SSI would greatly help offset the cost of day care (or having a private sitter/nanny care for him)...
<br />
<br />So my question to anyone that can help... since SSI has determined that his case isn't "severe" enough, what can I write in my appeals letter that may sway them to approve a claim??
<br />
<br />The baby's father and I are NOT in a good place financially, as we're on only ONE income and it isn't much of an income at this point either. I may have to do a voluntary repo on my car and cut back to one car, so I am starting to get concerned about finances. If anyone knows of any other ways of receiving financial help that can go towards day care expenses or anything, it would be SO appreciated.
<br />
<br />Thanks much!

 

[shimmereestar]

I'm not sure how much help I can be, but I do know that in Texas there is a program called the medically dependent children's program. I believe you can do an internet search on it. We haven't applied for it yet, but are researching that now. Hopefully will be able to help as well.

 

[shimmereestar]

I'm not sure how much help I can be, but I do know that in Texas there is a program called the medically dependent children's program. I believe you can do an internet search on it. We haven't applied for it yet, but are researching that now. Hopefully will be able to help as well.

 

[shimmereestar]

I'm not sure how much help I can be, but I do know that in Texas there is a program called the medically dependent children's program. I believe you can do an internet search on it. We haven't applied for it yet, but are researching that now. Hopefully will be able to help as well.

 

[shimmereestar]

I'm not sure how much help I can be, but I do know that in Texas there is a program called the medically dependent children's program. I believe you can do an internet search on it. We haven't applied for it yet, but are researching that now. Hopefully will be able to help as well.

 

[shimmereestar]

I'm not sure how much help I can be, but I do know that in Texas there is a program called the medically dependent children's program. I believe you can do an internet search on it. We haven't applied for it yet, but are researching that now. Hopefully will be able to help as well.

 

[Mommafirst]

I don't really know how to go about the process, but I do know that you should just keep appealing. And while you wait, check out some of the other government programs. In Ohio there is a bureau of children with medical handicaps (BCMH) that will cover a good deal of expenses related to CF -- though I'm not sure that childcare would count.

Talk to your social worker and find what plans are in your area.

BTW, CF kids aren't more likely to catch bugs, its just that when they get a cold, just like any other kids gets, they can produce more mucus than normal and exacerbate any CF bugs they have colonized in their lungs. Even before we had a child with CF, we used in home sitters when I worked, and found that it was a more reasonable expense than we expected.

 

[Mommafirst]

I don't really know how to go about the process, but I do know that you should just keep appealing. And while you wait, check out some of the other government programs. In Ohio there is a bureau of children with medical handicaps (BCMH) that will cover a good deal of expenses related to CF -- though I'm not sure that childcare would count.

Talk to your social worker and find what plans are in your area.

BTW, CF kids aren't more likely to catch bugs, its just that when they get a cold, just like any other kids gets, they can produce more mucus than normal and exacerbate any CF bugs they have colonized in their lungs. Even before we had a child with CF, we used in home sitters when I worked, and found that it was a more reasonable expense than we expected.

 

[Mommafirst]

I don't really know how to go about the process, but I do know that you should just keep appealing. And while you wait, check out some of the other government programs. In Ohio there is a bureau of children with medical handicaps (BCMH) that will cover a good deal of expenses related to CF -- though I'm not sure that childcare would count.

Talk to your social worker and find what plans are in your area.

BTW, CF kids aren't more likely to catch bugs, its just that when they get a cold, just like any other kids gets, they can produce more mucus than normal and exacerbate any CF bugs they have colonized in their lungs. Even before we had a child with CF, we used in home sitters when I worked, and found that it was a more reasonable expense than we expected.

 

[Mommafirst]

I don't really know how to go about the process, but I do know that you should just keep appealing. And while you wait, check out some of the other government programs. In Ohio there is a bureau of children with medical handicaps (BCMH) that will cover a good deal of expenses related to CF -- though I'm not sure that childcare would count.

Talk to your social worker and find what plans are in your area.

BTW, CF kids aren't more likely to catch bugs, its just that when they get a cold, just like any other kids gets, they can produce more mucus than normal and exacerbate any CF bugs they have colonized in their lungs. Even before we had a child with CF, we used in home sitters when I worked, and found that it was a more reasonable expense than we expected.

 

[Mommafirst]

I don't really know how to go about the process, but I do know that you should just keep appealing. And while you wait, check out some of the other government programs. In Ohio there is a bureau of children with medical handicaps (BCMH) that will cover a good deal of expenses related to CF -- though I'm not sure that childcare would count.
<br />
<br />Talk to your social worker and find what plans are in your area.
<br />
<br />BTW, CF kids aren't more likely to catch bugs, its just that when they get a cold, just like any other kids gets, they can produce more mucus than normal and exacerbate any CF bugs they have colonized in their lungs. Even before we had a child with CF, we used in home sitters when I worked, and found that it was a more reasonable expense than we expected.

 

[shea14]

We were as well as a friend of mine with a cfer denied our first time. As an infant it is hard to prove how it is going to be disabling. We waited and until my son was 5 (he is almost 6) to reapply and were approved. But if you wait more than I believe it's six months to reapply then they won't backdate it. But don't get discouraged because it will eventually go through unless (one can only pray) that it never becomes bad enough to need it. Another thing I have noticed with any home a child (especially with lung problems) is in is the chemicals used to disfect. Bacteria killing does not always mean better for our cfer because a lot of chemicals used to kill bacteria are hard on lungs and can be damaging to tissue over time. Food for thought anyways.

 

[shea14]

We were as well as a friend of mine with a cfer denied our first time. As an infant it is hard to prove how it is going to be disabling. We waited and until my son was 5 (he is almost 6) to reapply and were approved. But if you wait more than I believe it's six months to reapply then they won't backdate it. But don't get discouraged because it will eventually go through unless (one can only pray) that it never becomes bad enough to need it. Another thing I have noticed with any home a child (especially with lung problems) is in is the chemicals used to disfect. Bacteria killing does not always mean better for our cfer because a lot of chemicals used to kill bacteria are hard on lungs and can be damaging to tissue over time. Food for thought anyways.

 

[shea14]

We were as well as a friend of mine with a cfer denied our first time. As an infant it is hard to prove how it is going to be disabling. We waited and until my son was 5 (he is almost 6) to reapply and were approved. But if you wait more than I believe it's six months to reapply then they won't backdate it. But don't get discouraged because it will eventually go through unless (one can only pray) that it never becomes bad enough to need it. Another thing I have noticed with any home a child (especially with lung problems) is in is the chemicals used to disfect. Bacteria killing does not always mean better for our cfer because a lot of chemicals used to kill bacteria are hard on lungs and can be damaging to tissue over time. Food for thought anyways.

 

[shea14]

We were as well as a friend of mine with a cfer denied our first time. As an infant it is hard to prove how it is going to be disabling. We waited and until my son was 5 (he is almost 6) to reapply and were approved. But if you wait more than I believe it's six months to reapply then they won't backdate it. But don't get discouraged because it will eventually go through unless (one can only pray) that it never becomes bad enough to need it. Another thing I have noticed with any home a child (especially with lung problems) is in is the chemicals used to disfect. Bacteria killing does not always mean better for our cfer because a lot of chemicals used to kill bacteria are hard on lungs and can be damaging to tissue over time. Food for thought anyways.

 

[shea14]

We were as well as a friend of mine with a cfer denied our first time. As an infant it is hard to prove how it is going to be disabling. We waited and until my son was 5 (he is almost 6) to reapply and were approved. But if you wait more than I believe it's six months to reapply then they won't backdate it. But don't get discouraged because it will eventually go through unless (one can only pray) that it never becomes bad enough to need it. Another thing I have noticed with any home a child (especially with lung problems) is in is the chemicals used to disfect. Bacteria killing does not always mean better for our cfer because a lot of chemicals used to kill bacteria are hard on lungs and can be damaging to tissue over time. Food for thought anyways.