try asking Julie on this site - she helps a lot of people, but it might be with SSDI instead of SSI. Send her a private message - I believe her user name is just <b>Julie</b>
You could also try contacting Beth - she is an attorney in Texas who also has CF. She can help you for free because of some grant money available to her. See below for all of her information.
Beth Sufian
<a target=_blank class=ftalternatingbarlinklarge href="http://esiason.org/newsResourcesRights.html
">http://esiason.org/newsResourcesRights.html
</a>
CF Legal Information Hotline
1-800-622-0385
The Hotline is sponsored by a grant from Chiron Corporation. Individuals with CF and their families members and healthcare providers can contact the Hotline for information on the laws that protect people with CF and their families. The phone number for the Hotline is 1-800-622-0385. The Hotline is run by Beth Sufian, Esquire. Beth is an attorney who also has CF. Beth has practiced law for 14 years and focuses her practice on representing individuals with CF and other medical conditions in matters concerning Social Security benefits, insurance coverage, and long term disability benefits, education and employment. All calls to the Hotline are free and confidential.
About Beth Sufian
Beth Sufian, ESQ., a Houston, Texas lawyer with CF who specializes in laws to protect people with disabilities, will be answering legal questions pertaining to the rights of people with CF once a month.
You may send questions of a legal nature, regarding cystic fibrosis, to:
Beth S. Sufian
Sufian & Passamano, L.L.P.
811 Rusk Avenue, Suite 712
Houston, Texas 77002
Telephone: 713-224-1166
Facsimile: 713-224-1161
Beth Sufian on Social Security Disability Insurance (PFD)
Other Legal Information and Links
To learn how the Americans with Disabilities Act (ADA) applies to you, contact the Disability Rights Education and Defense Fund (DREDF) at 1-800-466-4232 between the hours of 9 a.m. and 3 p.m. Pacific Time. The DREDF has received a federal grant to inform individuals, who may be subject to discrimination, of their rights and remedies.
To report a violation of the ADA, call the Equal Employment Opportunity Commission (EEOC) at 1-800-669-3362.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthlaw.org/consumer.shtml
">http://www.healthlaw.org/consumer.shtml
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://lectlaw.com/tmed.html
">http://lectlaw.com/tmed.html
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.harp.org
">http://www.harp.org
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://consumerlawpage.com/intro.html
">http://consumerlawpage.com/intro.html
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.law.cornell.edu/topics/health.html
">http://www.law.cornell.edu/topics/health.html
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.lawforum.net/services/medical.htm
">http://www.lawforum.net/services/medical.htm
</a>
You could also try contacting Beth - she is an attorney in Texas who also has CF. She can help you for free because of some grant money available to her. See below for all of her information.
Beth Sufian
<a target=_blank class=ftalternatingbarlinklarge href="http://esiason.org/newsResourcesRights.html
">http://esiason.org/newsResourcesRights.html
</a>
CF Legal Information Hotline
1-800-622-0385
The Hotline is sponsored by a grant from Chiron Corporation. Individuals with CF and their families members and healthcare providers can contact the Hotline for information on the laws that protect people with CF and their families. The phone number for the Hotline is 1-800-622-0385. The Hotline is run by Beth Sufian, Esquire. Beth is an attorney who also has CF. Beth has practiced law for 14 years and focuses her practice on representing individuals with CF and other medical conditions in matters concerning Social Security benefits, insurance coverage, and long term disability benefits, education and employment. All calls to the Hotline are free and confidential.
About Beth Sufian
Beth Sufian, ESQ., a Houston, Texas lawyer with CF who specializes in laws to protect people with disabilities, will be answering legal questions pertaining to the rights of people with CF once a month.
You may send questions of a legal nature, regarding cystic fibrosis, to:
Beth S. Sufian
Sufian & Passamano, L.L.P.
811 Rusk Avenue, Suite 712
Houston, Texas 77002
Telephone: 713-224-1166
Facsimile: 713-224-1161
Beth Sufian on Social Security Disability Insurance (PFD)
Other Legal Information and Links
To learn how the Americans with Disabilities Act (ADA) applies to you, contact the Disability Rights Education and Defense Fund (DREDF) at 1-800-466-4232 between the hours of 9 a.m. and 3 p.m. Pacific Time. The DREDF has received a federal grant to inform individuals, who may be subject to discrimination, of their rights and remedies.
To report a violation of the ADA, call the Equal Employment Opportunity Commission (EEOC) at 1-800-669-3362.
<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthlaw.org/consumer.shtml
">http://www.healthlaw.org/consumer.shtml
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://lectlaw.com/tmed.html
">http://lectlaw.com/tmed.html
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.harp.org
">http://www.harp.org
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://consumerlawpage.com/intro.html
">http://consumerlawpage.com/intro.html
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.law.cornell.edu/topics/health.html
">http://www.law.cornell.edu/topics/health.html
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.lawforum.net/services/medical.htm
">http://www.lawforum.net/services/medical.htm
</a>