Support Groups

B

beleache

New member
I got dxd about 13 yrs ago. I felt scared, confused, you name it i felt it.. I joined a support group that was run by another CFer .. We were patients & parents & it was so good to have that connection .. It was so up setting that we had to stop <img src="i/expressions/face-icon-small-sad.gif" border="0">

Fast forward to now.. I # 1 thank God for this site ...... I do meet up w/ other CFers from time to time, am a little nervous but try to take all precautions i can.. Im not sure i would do a support group on a regular basis.. I would prob be to nervous to get much out of it lol

If i were a parent of a child w/ cf i doubt i would let my child attend any kind of meeting/get together.. As an adult i feel you should be able to make the call yourself... <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thats my 2 cents <img src="i/expressions/face-icon-small-tongue.gif" border="0">

Take care guys <img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
I got dxd about 13 yrs ago. I felt scared, confused, you name it i felt it.. I joined a support group that was run by another CFer .. We were patients & parents & it was so good to have that connection .. It was so up setting that we had to stop <img src="i/expressions/face-icon-small-sad.gif" border="0">

Fast forward to now.. I # 1 thank God for this site ...... I do meet up w/ other CFers from time to time, am a little nervous but try to take all precautions i can.. Im not sure i would do a support group on a regular basis.. I would prob be to nervous to get much out of it lol

If i were a parent of a child w/ cf i doubt i would let my child attend any kind of meeting/get together.. As an adult i feel you should be able to make the call yourself... <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thats my 2 cents <img src="i/expressions/face-icon-small-tongue.gif" border="0">

Take care guys <img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
I got dxd about 13 yrs ago. I felt scared, confused, you name it i felt it.. I joined a support group that was run by another CFer .. We were patients & parents & it was so good to have that connection .. It was so up setting that we had to stop <img src="i/expressions/face-icon-small-sad.gif" border="0">

Fast forward to now.. I # 1 thank God for this site ...... I do meet up w/ other CFers from time to time, am a little nervous but try to take all precautions i can.. Im not sure i would do a support group on a regular basis.. I would prob be to nervous to get much out of it lol

If i were a parent of a child w/ cf i doubt i would let my child attend any kind of meeting/get together.. As an adult i feel you should be able to make the call yourself... <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thats my 2 cents <img src="i/expressions/face-icon-small-tongue.gif" border="0">

Take care guys <img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
I got dxd about 13 yrs ago. I felt scared, confused, you name it i felt it.. I joined a support group that was run by another CFer .. We were patients & parents & it was so good to have that connection .. It was so up setting that we had to stop <img src="i/expressions/face-icon-small-sad.gif" border="0">

Fast forward to now.. I # 1 thank God for this site ...... I do meet up w/ other CFers from time to time, am a little nervous but try to take all precautions i can.. Im not sure i would do a support group on a regular basis.. I would prob be to nervous to get much out of it lol

If i were a parent of a child w/ cf i doubt i would let my child attend any kind of meeting/get together.. As an adult i feel you should be able to make the call yourself... <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thats my 2 cents <img src="i/expressions/face-icon-small-tongue.gif" border="0">

Take care guys <img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
I got dxd about 13 yrs ago. I felt scared, confused, you name it i felt it.. I joined a support group that was run by another CFer .. We were patients & parents & it was so good to have that connection .. It was so up setting that we had to stop <img src="i/expressions/face-icon-small-sad.gif" border="0">
<br />
<br /> Fast forward to now.. I # 1 thank God for this site ...... I do meet up w/ other CFers from time to time, am a little nervous but try to take all precautions i can.. Im not sure i would do a support group on a regular basis.. I would prob be to nervous to get much out of it lol
<br />
<br />If i were a parent of a child w/ cf i doubt i would let my child attend any kind of meeting/get together.. As an adult i feel you should be able to make the call yourself... <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thats my 2 cents <img src="i/expressions/face-icon-small-tongue.gif" border="0">
<br />
<br />Take care guys <img src="i/expressions/heart.gif" border="0"> joni
 
D

Diane

New member
I myself would not go to a cf support group either. I have had cepacia for 12 years and for the last 8 months it hasnt shown up in my cultures. Even so, i still consider myself as having it and still avoid contact with other cf patients just in case.
I do a car show each summer that benefits cf and there is at least one guy there that i know that has cf. We always keep the 3 ( or more) foot rule, but how do i know if there aren't any others there who have cf?
In reality none of us really know that we are "safely" avoiding anyone else with cf. Some with cf absolutely do not look like the typical cf patient. Until i lost weight recently you would have had NO idea i have cf, so we can't rely on "looks " alone.

With that said i would not willing go to a meeting with other cf patients (for their safety and mine).If i can avoid direct contact with another cf patient i do, but like someone else mentioned we probably have more contact with other cf patients than we know about.
 
D

Diane

New member
I myself would not go to a cf support group either. I have had cepacia for 12 years and for the last 8 months it hasnt shown up in my cultures. Even so, i still consider myself as having it and still avoid contact with other cf patients just in case.
I do a car show each summer that benefits cf and there is at least one guy there that i know that has cf. We always keep the 3 ( or more) foot rule, but how do i know if there aren't any others there who have cf?
In reality none of us really know that we are "safely" avoiding anyone else with cf. Some with cf absolutely do not look like the typical cf patient. Until i lost weight recently you would have had NO idea i have cf, so we can't rely on "looks " alone.

With that said i would not willing go to a meeting with other cf patients (for their safety and mine).If i can avoid direct contact with another cf patient i do, but like someone else mentioned we probably have more contact with other cf patients than we know about.
 
D

Diane

New member
I myself would not go to a cf support group either. I have had cepacia for 12 years and for the last 8 months it hasnt shown up in my cultures. Even so, i still consider myself as having it and still avoid contact with other cf patients just in case.
I do a car show each summer that benefits cf and there is at least one guy there that i know that has cf. We always keep the 3 ( or more) foot rule, but how do i know if there aren't any others there who have cf?
In reality none of us really know that we are "safely" avoiding anyone else with cf. Some with cf absolutely do not look like the typical cf patient. Until i lost weight recently you would have had NO idea i have cf, so we can't rely on "looks " alone.

With that said i would not willing go to a meeting with other cf patients (for their safety and mine).If i can avoid direct contact with another cf patient i do, but like someone else mentioned we probably have more contact with other cf patients than we know about.
 
D

Diane

New member
I myself would not go to a cf support group either. I have had cepacia for 12 years and for the last 8 months it hasnt shown up in my cultures. Even so, i still consider myself as having it and still avoid contact with other cf patients just in case.
I do a car show each summer that benefits cf and there is at least one guy there that i know that has cf. We always keep the 3 ( or more) foot rule, but how do i know if there aren't any others there who have cf?
In reality none of us really know that we are "safely" avoiding anyone else with cf. Some with cf absolutely do not look like the typical cf patient. Until i lost weight recently you would have had NO idea i have cf, so we can't rely on "looks " alone.

With that said i would not willing go to a meeting with other cf patients (for their safety and mine).If i can avoid direct contact with another cf patient i do, but like someone else mentioned we probably have more contact with other cf patients than we know about.
 
D

Diane

New member
I myself would not go to a cf support group either. I have had cepacia for 12 years and for the last 8 months it hasnt shown up in my cultures. Even so, i still consider myself as having it and still avoid contact with other cf patients just in case.
<br /> I do a car show each summer that benefits cf and there is at least one guy there that i know that has cf. We always keep the 3 ( or more) foot rule, but how do i know if there aren't any others there who have cf?
<br />In reality none of us really know that we are "safely" avoiding anyone else with cf. Some with cf absolutely do not look like the typical cf patient. Until i lost weight recently you would have had NO idea i have cf, so we can't rely on "looks " alone.
<br />
<br />With that said i would not willing go to a meeting with other cf patients (for their safety and mine).If i can avoid direct contact with another cf patient i do, but like someone else mentioned we probably have more contact with other cf patients than we know about.
 
G

Giggles

New member
I would not attend either cause I too work very hard to stay healthy and do not want to expose myself to any more or additional bugs. I know I can not hide in a bubble but if I can avoid being around people that could or may be sick then I do it but yeah, going to the mall, movies etc. you never know who is around you and with what but in those cases you have no choice or live in a bubble. If I have a choice and can possibly avoid a situation that might be harmful to my health then I do.

This forum is good so we do not have to be around others with CF but in a perfect world it would be nice to be around eachother in person. Although, in a perfect world we would not have CF, ha ha.

Jennifer 37 with CF and CFRD
 
G

Giggles

New member
I would not attend either cause I too work very hard to stay healthy and do not want to expose myself to any more or additional bugs. I know I can not hide in a bubble but if I can avoid being around people that could or may be sick then I do it but yeah, going to the mall, movies etc. you never know who is around you and with what but in those cases you have no choice or live in a bubble. If I have a choice and can possibly avoid a situation that might be harmful to my health then I do.

This forum is good so we do not have to be around others with CF but in a perfect world it would be nice to be around eachother in person. Although, in a perfect world we would not have CF, ha ha.

Jennifer 37 with CF and CFRD
 
G

Giggles

New member
I would not attend either cause I too work very hard to stay healthy and do not want to expose myself to any more or additional bugs. I know I can not hide in a bubble but if I can avoid being around people that could or may be sick then I do it but yeah, going to the mall, movies etc. you never know who is around you and with what but in those cases you have no choice or live in a bubble. If I have a choice and can possibly avoid a situation that might be harmful to my health then I do.

This forum is good so we do not have to be around others with CF but in a perfect world it would be nice to be around eachother in person. Although, in a perfect world we would not have CF, ha ha.

Jennifer 37 with CF and CFRD
 
G

Giggles

New member
I would not attend either cause I too work very hard to stay healthy and do not want to expose myself to any more or additional bugs. I know I can not hide in a bubble but if I can avoid being around people that could or may be sick then I do it but yeah, going to the mall, movies etc. you never know who is around you and with what but in those cases you have no choice or live in a bubble. If I have a choice and can possibly avoid a situation that might be harmful to my health then I do.

This forum is good so we do not have to be around others with CF but in a perfect world it would be nice to be around eachother in person. Although, in a perfect world we would not have CF, ha ha.

Jennifer 37 with CF and CFRD
 
G

Giggles

New member
I would not attend either cause I too work very hard to stay healthy and do not want to expose myself to any more or additional bugs. I know I can not hide in a bubble but if I can avoid being around people that could or may be sick then I do it but yeah, going to the mall, movies etc. you never know who is around you and with what but in those cases you have no choice or live in a bubble. If I have a choice and can possibly avoid a situation that might be harmful to my health then I do.
<br />
<br />This forum is good so we do not have to be around others with CF but in a perfect world it would be nice to be around eachother in person. Although, in a perfect world we would not have CF, ha ha.
<br />
<br />Jennifer 37 with CF and CFRD
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>megcfgirl05</b></i>

A simple cold can trun in to a bad bacteria. </end quote></div>

That's not true....viruses can NOT turn into bacteria.

And we're commenting because the OP asked for our thoughts.
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>megcfgirl05</b></i>

A simple cold can trun in to a bad bacteria. </end quote></div>

That's not true....viruses can NOT turn into bacteria.

And we're commenting because the OP asked for our thoughts.
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>megcfgirl05</b></i>

A simple cold can trun in to a bad bacteria. </end quote></div>

That's not true....viruses can NOT turn into bacteria.

And we're commenting because the OP asked for our thoughts.
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>megcfgirl05</b></i>

A simple cold can trun in to a bad bacteria. </end quote>

That's not true....viruses can NOT turn into bacteria.

And we're commenting because the OP asked for our thoughts.
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>megcfgirl05</b></i>
<br />
<br /> A simple cold can trun in to a bad bacteria. </end quote>
<br />
<br />That's not true....viruses can NOT turn into bacteria.
<br />
<br />And we're commenting because the OP asked for our thoughts.
 
You must log in or register to reply here.
Top