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Suspected CF-looking for information
- Thread starter fallenarches
- Start date
<P>Please understand that I was in no way suggesting that there was any urgency to her condition. She's gone 16 years and been just fine. I was saying that as a mom you might feel better to "get the ball rolling". I am sorry if I made you feel worried in any way. </P>
<P>When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from. </P>
<P>And yes, I agree with Bill that she's going to be fine no matter what the tests say. </P>
<P>When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from. </P>
<P>And yes, I agree with Bill that she's going to be fine no matter what the tests say. </P>
<P>Please understand that I was in no way suggesting that there was any urgency to her condition. She's gone 16 years and been just fine. I was saying that as a mom you might feel better to "get the ball rolling". I am sorry if I made you feel worried in any way. </P>
<P>When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from. </P>
<P>And yes, I agree with Bill that she's going to be fine no matter what the tests say. </P>
<P>When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from. </P>
<P>And yes, I agree with Bill that she's going to be fine no matter what the tests say. </P>
<P><BR>Please understand that I was in no way suggesting that there was any urgency to her condition. She's gone 16 years and been just fine. I was saying that as a mom you might feel better to "get the ball rolling". I am sorry if I made you feel worried in any way. </P>
<P>When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from. </P>
<P>And yes, I agree with Bill that she's going to be fine no matter what the tests say. </P>
<P>When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from. </P>
<P>And yes, I agree with Bill that she's going to be fine no matter what the tests say. </P>
fallenarches
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>khavice</b></i>
Please understand that I was in no way suggesting that there was any urgency to her condition. She's gone 16 years and been just fine. I was saying that as a mom you might feel better to "get the ball rolling". I am sorry if I made you feel worried in any way.
When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from.
And yes, I agree with Bill that she's going to be fine no matter what the tests say. </end quote></div>
<div><br></div><div>You didn't make me feel any more worried, so no worries <img src="i/expressions/face-icon-small-smile.gif" border="0">. I am with you though, I would have preferred to have the appointment earlier but it is what it is I guess.</div><div><br></div><div>One other finding on her lab results from the other day, no indication of any "allergy antibodies". I know that the blood work isn't as accurate for allergy testing but I think the doctor was expected to see some eosinophils and that her polyps were allergy related. </div>
Please understand that I was in no way suggesting that there was any urgency to her condition. She's gone 16 years and been just fine. I was saying that as a mom you might feel better to "get the ball rolling". I am sorry if I made you feel worried in any way.
When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from.
And yes, I agree with Bill that she's going to be fine no matter what the tests say. </end quote></div>
<div><br></div><div>You didn't make me feel any more worried, so no worries <img src="i/expressions/face-icon-small-smile.gif" border="0">. I am with you though, I would have preferred to have the appointment earlier but it is what it is I guess.</div><div><br></div><div>One other finding on her lab results from the other day, no indication of any "allergy antibodies". I know that the blood work isn't as accurate for allergy testing but I think the doctor was expected to see some eosinophils and that her polyps were allergy related. </div>
fallenarches
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>khavice</b></i>
Please understand that I was in no way suggesting that there was any urgency to her condition. She's gone 16 years and been just fine. I was saying that as a mom you might feel better to "get the ball rolling". I am sorry if I made you feel worried in any way.
When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from.
And yes, I agree with Bill that she's going to be fine no matter what the tests say. </end quote>
<br>You didn't make me feel any more worried, so no worries <img src="i/expressions/face-icon-small-smile.gif" border="0">. I am with you though, I would have preferred to have the appointment earlier but it is what it is I guess.<br>One other finding on her lab results from the other day, no indication of any "allergy antibodies". I know that the blood work isn't as accurate for allergy testing but I think the doctor was expected to see some eosinophils and that her polyps were allergy related.
Please understand that I was in no way suggesting that there was any urgency to her condition. She's gone 16 years and been just fine. I was saying that as a mom you might feel better to "get the ball rolling". I am sorry if I made you feel worried in any way.
When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from.
And yes, I agree with Bill that she's going to be fine no matter what the tests say. </end quote>
<br>You didn't make me feel any more worried, so no worries <img src="i/expressions/face-icon-small-smile.gif" border="0">. I am with you though, I would have preferred to have the appointment earlier but it is what it is I guess.<br>One other finding on her lab results from the other day, no indication of any "allergy antibodies". I know that the blood work isn't as accurate for allergy testing but I think the doctor was expected to see some eosinophils and that her polyps were allergy related.
fallenarches
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>khavice</b></i>
Please understand that I was in no way suggesting that there was any urgency to her condition. She's gone 16 years and been just fine. I was saying that as a mom you might feel better to "get the ball rolling". I am sorry if I made you feel worried in any way. <p>
When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from. <p>
And yes, I agree with Bill that she's going to be fine no matter what the tests say. <p></end quote>
<br>You didn't make me feel any more worried, so no worries <img src="i/expressions/face-icon-small-smile.gif" border="0">. I am with you though, I would have preferred to have the appointment earlier but it is what it is I guess.<br>One other finding on her lab results from the other day, no indication of any "allergy antibodies". I know that the blood work isn't as accurate for allergy testing but I think the doctor was expected to see some eosinophils and that her polyps were allergy related.
Please understand that I was in no way suggesting that there was any urgency to her condition. She's gone 16 years and been just fine. I was saying that as a mom you might feel better to "get the ball rolling". I am sorry if I made you feel worried in any way. <p>
When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from. <p>
And yes, I agree with Bill that she's going to be fine no matter what the tests say. <p></end quote>
<br>You didn't make me feel any more worried, so no worries <img src="i/expressions/face-icon-small-smile.gif" border="0">. I am with you though, I would have preferred to have the appointment earlier but it is what it is I guess.<br>One other finding on her lab results from the other day, no indication of any "allergy antibodies". I know that the blood work isn't as accurate for allergy testing but I think the doctor was expected to see some eosinophils and that her polyps were allergy related.
fallenarches
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>khavice</b></i>
Please understand that I was in no way suggesting that there was any urgency to her condition. She's gone 16 years and been just fine. I was saying that as a mom you might feel better to "get the ball rolling". I am sorry if I made you feel worried in any way.
When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from.
And yes, I agree with Bill that she's going to be fine no matter what the tests say. </end quote></div>
<div><br></div><div>You didn't make me feel any more worried, so no worries <img src="i/expressions/face-icon-small-smile.gif" border="0">. I am with you though, I would have preferred to have the appointment earlier but it is what it is I guess.</div><div><br></div><div>One other finding on her lab results from the other day, no indication of any "allergy antibodies". I know that the blood work isn't as accurate for allergy testing but I think the doctor was expected to see some eosinophils and that her polyps were allergy related. </div>
Please understand that I was in no way suggesting that there was any urgency to her condition. She's gone 16 years and been just fine. I was saying that as a mom you might feel better to "get the ball rolling". I am sorry if I made you feel worried in any way.
When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from.
And yes, I agree with Bill that she's going to be fine no matter what the tests say. </end quote></div>
<div><br></div><div>You didn't make me feel any more worried, so no worries <img src="i/expressions/face-icon-small-smile.gif" border="0">. I am with you though, I would have preferred to have the appointment earlier but it is what it is I guess.</div><div><br></div><div>One other finding on her lab results from the other day, no indication of any "allergy antibodies". I know that the blood work isn't as accurate for allergy testing but I think the doctor was expected to see some eosinophils and that her polyps were allergy related. </div>
fallenarches
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>khavice</b></i>
Please understand that I was in no way suggesting that there was any urgency to her condition. She's gone 16 years and been just fine. I was saying that as a mom you might feel better to "get the ball rolling". I am sorry if I made you feel worried in any way.
When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from.
And yes, I agree with Bill that she's going to be fine no matter what the tests say. </end quote>
<br>You didn't make me feel any more worried, so no worries <img src="i/expressions/face-icon-small-smile.gif" border="0">. I am with you though, I would have preferred to have the appointment earlier but it is what it is I guess.<br>One other finding on her lab results from the other day, no indication of any "allergy antibodies". I know that the blood work isn't as accurate for allergy testing but I think the doctor was expected to see some eosinophils and that her polyps were allergy related.
Please understand that I was in no way suggesting that there was any urgency to her condition. She's gone 16 years and been just fine. I was saying that as a mom you might feel better to "get the ball rolling". I am sorry if I made you feel worried in any way.
When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from.
And yes, I agree with Bill that she's going to be fine no matter what the tests say. </end quote>
<br>You didn't make me feel any more worried, so no worries <img src="i/expressions/face-icon-small-smile.gif" border="0">. I am with you though, I would have preferred to have the appointment earlier but it is what it is I guess.<br>One other finding on her lab results from the other day, no indication of any "allergy antibodies". I know that the blood work isn't as accurate for allergy testing but I think the doctor was expected to see some eosinophils and that her polyps were allergy related.
fallenarches
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>khavice</b></i>
Please understand that I was in no way suggesting that there was any urgency to her condition. She's gone 16 years and been just fine. I was saying that as a mom you might feel better to "get the ball rolling". I am sorry if I made you feel worried in any way. <p>
When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from. <p>
And yes, I agree with Bill that she's going to be fine no matter what the tests say. <p></end quote>
<br>You didn't make me feel any more worried, so no worries <img src="i/expressions/face-icon-small-smile.gif" border="0">. I am with you though, I would have preferred to have the appointment earlier but it is what it is I guess.<br>One other finding on her lab results from the other day, no indication of any "allergy antibodies". I know that the blood work isn't as accurate for allergy testing but I think the doctor was expected to see some eosinophils and that her polyps were allergy related.
Please understand that I was in no way suggesting that there was any urgency to her condition. She's gone 16 years and been just fine. I was saying that as a mom you might feel better to "get the ball rolling". I am sorry if I made you feel worried in any way. <p>
When CF was suggested to us as a possible reason for my daughter's symptoms, I had reached a stage where I wanted an answer to her constant battles with cough and other lung issues. That's where I was coming from. <p>
And yes, I agree with Bill that she's going to be fine no matter what the tests say. <p></end quote>
<br>You didn't make me feel any more worried, so no worries <img src="i/expressions/face-icon-small-smile.gif" border="0">. I am with you though, I would have preferred to have the appointment earlier but it is what it is I guess.<br>One other finding on her lab results from the other day, no indication of any "allergy antibodies". I know that the blood work isn't as accurate for allergy testing but I think the doctor was expected to see some eosinophils and that her polyps were allergy related.
My daughter was not dx'ed until she was 7.5. She was not well at all by that time, but obviously after all the waiting and worrying we'd already done for several years, a week or two in one direction or the other would not really change anything. However- let me tell you- once we'd seen the dr that ordered the sweat test, I was SO grateful that it was going to be the coming Monday morning (only 4 days away) and not weeks away. Once you've reached that point where some kind of answer may be within your grasp (though I must say I knew almost nothing about cf at that time), you just.want.to.know.
However- I am glad you have it set up the way you do- the sweat test and then seeing the drs in person right away, esp should the results be positive. We got our results via phone call later that day. Now- calling and telling me to come in would not have been practical (we live well over an hour away) and I would have known something was 'wrong' if they refused to tell me over the phone, so the dr calling me herself the way they did was merciful- but it was HARD, hearing that at home, and then waiting a couple days to go in for our big CF 101 Appt etc.
Much lower odds of allergies causing the nasal polyps is a bit concerning and increases the importance of getting this workup done.
However- I am glad you have it set up the way you do- the sweat test and then seeing the drs in person right away, esp should the results be positive. We got our results via phone call later that day. Now- calling and telling me to come in would not have been practical (we live well over an hour away) and I would have known something was 'wrong' if they refused to tell me over the phone, so the dr calling me herself the way they did was merciful- but it was HARD, hearing that at home, and then waiting a couple days to go in for our big CF 101 Appt etc.
Much lower odds of allergies causing the nasal polyps is a bit concerning and increases the importance of getting this workup done.
My daughter was not dx'ed until she was 7.5. She was not well at all by that time, but obviously after all the waiting and worrying we'd already done for several years, a week or two in one direction or the other would not really change anything. However- let me tell you- once we'd seen the dr that ordered the sweat test, I was SO grateful that it was going to be the coming Monday morning (only 4 days away) and not weeks away. Once you've reached that point where some kind of answer may be within your grasp (though I must say I knew almost nothing about cf at that time), you just.want.to.know.
However- I am glad you have it set up the way you do- the sweat test and then seeing the drs in person right away, esp should the results be positive. We got our results via phone call later that day. Now- calling and telling me to come in would not have been practical (we live well over an hour away) and I would have known something was 'wrong' if they refused to tell me over the phone, so the dr calling me herself the way they did was merciful- but it was HARD, hearing that at home, and then waiting a couple days to go in for our big CF 101 Appt etc.
Much lower odds of allergies causing the nasal polyps is a bit concerning and increases the importance of getting this workup done.
However- I am glad you have it set up the way you do- the sweat test and then seeing the drs in person right away, esp should the results be positive. We got our results via phone call later that day. Now- calling and telling me to come in would not have been practical (we live well over an hour away) and I would have known something was 'wrong' if they refused to tell me over the phone, so the dr calling me herself the way they did was merciful- but it was HARD, hearing that at home, and then waiting a couple days to go in for our big CF 101 Appt etc.
Much lower odds of allergies causing the nasal polyps is a bit concerning and increases the importance of getting this workup done.
My daughter was not dx'ed until she was 7.5. She was not well at all by that time, but obviously after all the waiting and worrying we'd already done for several years, a week or two in one direction or the other would not really change anything. However- let me tell you- once we'd seen the dr that ordered the sweat test, I was SO grateful that it was going to be the coming Monday morning (only 4 days away) and not weeks away. Once you've reached that point where some kind of answer may be within your grasp (though I must say I knew almost nothing about cf at that time), you just.want.to.know.
<br />
<br />However- I am glad you have it set up the way you do- the sweat test and then seeing the drs in person right away, esp should the results be positive. We got our results via phone call later that day. Now- calling and telling me to come in would not have been practical (we live well over an hour away) and I would have known something was 'wrong' if they refused to tell me over the phone, so the dr calling me herself the way they did was merciful- but it was HARD, hearing that at home, and then waiting a couple days to go in for our big CF 101 Appt etc.
<br />
<br />Much lower odds of allergies causing the nasal polyps is a bit concerning and increases the importance of getting this workup done.
<br />
<br />However- I am glad you have it set up the way you do- the sweat test and then seeing the drs in person right away, esp should the results be positive. We got our results via phone call later that day. Now- calling and telling me to come in would not have been practical (we live well over an hour away) and I would have known something was 'wrong' if they refused to tell me over the phone, so the dr calling me herself the way they did was merciful- but it was HARD, hearing that at home, and then waiting a couple days to go in for our big CF 101 Appt etc.
<br />
<br />Much lower odds of allergies causing the nasal polyps is a bit concerning and increases the importance of getting this workup done.
fallenarches
New member
Well, today is the day. She has a sweat test scheduled at 11:00, Lung function test at 12:30 and a consult with the doctor at 1:10. She is happy she gets to sleep in today.
fallenarches
New member
Well, today is the day. She has a sweat test scheduled at 11:00, Lung function test at 12:30 and a consult with the doctor at 1:10. She is happy she gets to sleep in today.
fallenarches
New member
Well, today is the day. She has a sweat test scheduled at 11:00, Lung function test at 12:30 and a consult with the doctor at 1:10. She is happy she gets to sleep in today.