hockeymomnc
New member
I have been reading this cite for a couple of months and want to get some input on something.
I have two children-6y/o and 19 mo. my 6y/o was diagnosed with reactive airway disease at age 3 months after a 1-2 month bout with bronchitis/croup. he has been on flovent and albuterol since then. he has chronic sinusitis and nothing works(he is on nasonex and claritin), but we tried everything over the counter and including zyrtec and singulair with no avail. he has "flares" every few months, more in winter, where he coughs constantly and the albuterol does not relieve it, and it always results in "throwing up" phlegm along with whatever he ate. He is i believe 25-50 % for height and weight, but eats like a grown man.
my 19m/o is also small and eats like an adult, and her stools are always very mushy and it looks like chunks in it. her daycare reports diahrea EVERY day, usually 2-4 on average per day. she also has chronic sinusitis and coughs when asleep every night. i asked her peds for a sweat test for both, only because of the ongoing diahrea and the lung issues with her brother. He does not think it is CF. i know it sounds wierd, and maybe i am a hypochondriac, but something feels wrong. i asked for a sweat test for her brother when he was an infant and was throwing up the phlegm and his ped at the time also said it is not CF.
i have been seeing comments from people diagnosed later in life, not always as an infant, as the mutations can determine severity of symptoms. i also know of a teenager who had such a mild case of CF he rarely went to the doctor let alone had symptoms that were evident.
what do you all think? am I paranoid? i hope so, because i don't want to become a regular on this site, it breaks my heart. any advice would be great and appreciated.
I have two children-6y/o and 19 mo. my 6y/o was diagnosed with reactive airway disease at age 3 months after a 1-2 month bout with bronchitis/croup. he has been on flovent and albuterol since then. he has chronic sinusitis and nothing works(he is on nasonex and claritin), but we tried everything over the counter and including zyrtec and singulair with no avail. he has "flares" every few months, more in winter, where he coughs constantly and the albuterol does not relieve it, and it always results in "throwing up" phlegm along with whatever he ate. He is i believe 25-50 % for height and weight, but eats like a grown man.
my 19m/o is also small and eats like an adult, and her stools are always very mushy and it looks like chunks in it. her daycare reports diahrea EVERY day, usually 2-4 on average per day. she also has chronic sinusitis and coughs when asleep every night. i asked her peds for a sweat test for both, only because of the ongoing diahrea and the lung issues with her brother. He does not think it is CF. i know it sounds wierd, and maybe i am a hypochondriac, but something feels wrong. i asked for a sweat test for her brother when he was an infant and was throwing up the phlegm and his ped at the time also said it is not CF.
i have been seeing comments from people diagnosed later in life, not always as an infant, as the mutations can determine severity of symptoms. i also know of a teenager who had such a mild case of CF he rarely went to the doctor let alone had symptoms that were evident.
what do you all think? am I paranoid? i hope so, because i don't want to become a regular on this site, it breaks my heart. any advice would be great and appreciated.