Sweat In Port Dressing?

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DarbSkull

New member
Yeah Nicole, I understand the needle companies recommend changing every week as well, but I wonder if they aren't just trying to sell more needles. Just the cynic in me I suppose. Honestly, I trust my doc more than just about anyone, especially when it comes to CF.
 
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DarbSkull

New member
Yeah Nicole, I understand the needle companies recommend changing every week as well, but I wonder if they aren't just trying to sell more needles. Just the cynic in me I suppose. Honestly, I trust my doc more than just about anyone, especially when it comes to CF.
 
D

DarbSkull

New member
Yeah Nicole, I understand the needle companies recommend changing every week as well, but I wonder if they aren't just trying to sell more needles. Just the cynic in me I suppose. Honestly, I trust my doc more than just about anyone, especially when it comes to CF.
 
D

DarbSkull

New member
Yeah Nicole, I understand the needle companies recommend changing every week as well, but I wonder if they aren't just trying to sell more needles. Just the cynic in me I suppose. Honestly, I trust my doc more than just about anyone, especially when it comes to CF.
 
D

DarbSkull

New member
Yeah Nicole, I understand the needle companies recommend changing every week as well, but I wonder if they aren't just trying to sell more needles. Just the cynic in me I suppose. Honestly, I trust my doc more than just about anyone, especially when it comes to CF.
 
D

DarbSkull

New member
Yeah Nicole, I understand the needle companies recommend changing every week as well, but I wonder if they aren't just trying to sell more needles. Just the cynic in me I suppose. Honestly, I trust my doc more than just about anyone, especially when it comes to CF.
 
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Wheezie

New member
I'm really interested in Nicole's post about how she had to really force the issue to get her port. I had the complete opposite experience - I REALLY didn't want one and my entire CF team (docs, nurses, etc.) just hounded me every time I saw them about how much easier my life would be if I would just get the port. I was never told, and actually had no idea until reading Nicole's post, that there were only so many sites that could be used. I was also never told that the stupid thing would have to be flushed every month when it wasn't being used. Needless to say, I got the port and ultimately it was the right decision for me. It's been in place for almost 7 years now, it's a double lumen (meaning I get stuck with TWO needles every month) and both are still working perfectly. About dressing/needle changes: I've heard so many different "protocols" I really have no idea what's best. I change the needle and the dressing weekly and that seems to have worked for me, sweat build-up and itchiness and all.
 
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Wheezie

New member
I'm really interested in Nicole's post about how she had to really force the issue to get her port. I had the complete opposite experience - I REALLY didn't want one and my entire CF team (docs, nurses, etc.) just hounded me every time I saw them about how much easier my life would be if I would just get the port. I was never told, and actually had no idea until reading Nicole's post, that there were only so many sites that could be used. I was also never told that the stupid thing would have to be flushed every month when it wasn't being used. Needless to say, I got the port and ultimately it was the right decision for me. It's been in place for almost 7 years now, it's a double lumen (meaning I get stuck with TWO needles every month) and both are still working perfectly. About dressing/needle changes: I've heard so many different "protocols" I really have no idea what's best. I change the needle and the dressing weekly and that seems to have worked for me, sweat build-up and itchiness and all.
 
W

Wheezie

New member
I'm really interested in Nicole's post about how she had to really force the issue to get her port. I had the complete opposite experience - I REALLY didn't want one and my entire CF team (docs, nurses, etc.) just hounded me every time I saw them about how much easier my life would be if I would just get the port. I was never told, and actually had no idea until reading Nicole's post, that there were only so many sites that could be used. I was also never told that the stupid thing would have to be flushed every month when it wasn't being used. Needless to say, I got the port and ultimately it was the right decision for me. It's been in place for almost 7 years now, it's a double lumen (meaning I get stuck with TWO needles every month) and both are still working perfectly. About dressing/needle changes: I've heard so many different "protocols" I really have no idea what's best. I change the needle and the dressing weekly and that seems to have worked for me, sweat build-up and itchiness and all.
 
W

Wheezie

New member
I'm really interested in Nicole's post about how she had to really force the issue to get her port. I had the complete opposite experience - I REALLY didn't want one and my entire CF team (docs, nurses, etc.) just hounded me every time I saw them about how much easier my life would be if I would just get the port. I was never told, and actually had no idea until reading Nicole's post, that there were only so many sites that could be used. I was also never told that the stupid thing would have to be flushed every month when it wasn't being used. Needless to say, I got the port and ultimately it was the right decision for me. It's been in place for almost 7 years now, it's a double lumen (meaning I get stuck with TWO needles every month) and both are still working perfectly. About dressing/needle changes: I've heard so many different "protocols" I really have no idea what's best. I change the needle and the dressing weekly and that seems to have worked for me, sweat build-up and itchiness and all.
 
W

Wheezie

New member
I'm really interested in Nicole's post about how she had to really force the issue to get her port. I had the complete opposite experience - I REALLY didn't want one and my entire CF team (docs, nurses, etc.) just hounded me every time I saw them about how much easier my life would be if I would just get the port. I was never told, and actually had no idea until reading Nicole's post, that there were only so many sites that could be used. I was also never told that the stupid thing would have to be flushed every month when it wasn't being used. Needless to say, I got the port and ultimately it was the right decision for me. It's been in place for almost 7 years now, it's a double lumen (meaning I get stuck with TWO needles every month) and both are still working perfectly. About dressing/needle changes: I've heard so many different "protocols" I really have no idea what's best. I change the needle and the dressing weekly and that seems to have worked for me, sweat build-up and itchiness and all.
 
W

Wheezie

New member
I'm really interested in Nicole's post about how she had to really force the issue to get her port. I had the complete opposite experience - I REALLY didn't want one and my entire CF team (docs, nurses, etc.) just hounded me every time I saw them about how much easier my life would be if I would just get the port. I was never told, and actually had no idea until reading Nicole's post, that there were only so many sites that could be used. I was also never told that the stupid thing would have to be flushed every month when it wasn't being used. Needless to say, I got the port and ultimately it was the right decision for me. It's been in place for almost 7 years now, it's a double lumen (meaning I get stuck with TWO needles every month) and both are still working perfectly. About dressing/needle changes: I've heard so many different "protocols" I really have no idea what's best. I change the needle and the dressing weekly and that seems to have worked for me, sweat build-up and itchiness and all.
 
M

mom2lillian

New member
don't trust my word on how many sites there are to 'use' I was told that when they were trying to convince me NOT to get it so it might have been an exageration or a fib <img src="i/expressions/face-icon-small-wink.gif" border="0">.

I am using the cotton slip around the port and the gauze and it is working well to help with the sweat.

Thanks!
 
M

mom2lillian

New member
don't trust my word on how many sites there are to 'use' I was told that when they were trying to convince me NOT to get it so it might have been an exageration or a fib <img src="i/expressions/face-icon-small-wink.gif" border="0">.

I am using the cotton slip around the port and the gauze and it is working well to help with the sweat.

Thanks!
 
M

mom2lillian

New member
don't trust my word on how many sites there are to 'use' I was told that when they were trying to convince me NOT to get it so it might have been an exageration or a fib <img src="i/expressions/face-icon-small-wink.gif" border="0">.

I am using the cotton slip around the port and the gauze and it is working well to help with the sweat.

Thanks!
 
M

mom2lillian

New member
don't trust my word on how many sites there are to 'use' I was told that when they were trying to convince me NOT to get it so it might have been an exageration or a fib <img src="i/expressions/face-icon-small-wink.gif" border="0">.

I am using the cotton slip around the port and the gauze and it is working well to help with the sweat.

Thanks!
 
M

mom2lillian

New member
don't trust my word on how many sites there are to 'use' I was told that when they were trying to convince me NOT to get it so it might have been an exageration or a fib <img src="i/expressions/face-icon-small-wink.gif" border="0">.

I am using the cotton slip around the port and the gauze and it is working well to help with the sweat.

Thanks!
 
M

mom2lillian

New member
don't trust my word on how many sites there are to 'use' I was told that when they were trying to convince me NOT to get it so it might have been an exageration or a fib <img src="i/expressions/face-icon-small-wink.gif" border="0">.

I am using the cotton slip around the port and the gauze and it is working well to help with the sweat.

Thanks!
 
S

sunflower

New member
Hi Nic,

I haven't been active on the web site for some time. You know me I go through good and bad days of wanting to get away from the CF . I guess that it is down to my late dx's and acceptance. ANyway, I am sorry to see you are not feeling well and I hope you have picked up!! I was checking out your blog and saw the photos of the lovely Lillian she has got big. I think she has the daddy's eyes and your hair colouring and lips. I hope to hear from you soon. Holidays was nice and the weather since we returned is not so good. I will talk to you soon Pm later. Hope you are ok.
Hey!Sorry about your friend but, he has you on hand to help him and you will be a great Advocate for him.

-------------------
sunflower
DXs 33yrs old
ABPA/
Cepacia(not cultured since Nov)
Mutations DF508/P67L
 
S

sunflower

New member
Hi Nic,

I haven't been active on the web site for some time. You know me I go through good and bad days of wanting to get away from the CF . I guess that it is down to my late dx's and acceptance. ANyway, I am sorry to see you are not feeling well and I hope you have picked up!! I was checking out your blog and saw the photos of the lovely Lillian she has got big. I think she has the daddy's eyes and your hair colouring and lips. I hope to hear from you soon. Holidays was nice and the weather since we returned is not so good. I will talk to you soon Pm later. Hope you are ok.
Hey!Sorry about your friend but, he has you on hand to help him and you will be a great Advocate for him.

-------------------
sunflower
DXs 33yrs old
ABPA/
Cepacia(not cultured since Nov)
Mutations DF508/P67L
 
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