Sweat test 133

[Ratatosk]

Would it help to talk to legal aid or an attorney who could help you wade thru all the insurance information? Maybe write a letter on your behalf appealing insurance regs? Or write a letter indicating that a delay in medical treatment could cost more and cause more problems in the future?

Also, you indicated it's too late to change your insurance info for 2007.... Is that your office's deadline or the insurance company. I know we once got grief from our benefits person until DH asked for a copy of the section of our policy, which indicated DS wasn't covered or we couldn't change coverage. When he pushed, turned out there wasn't a limitation on our benefits. The rep, just didn't want to make any changes, and wanted all the info turned in by the beginning of December.

 

[westonsmom]

Have you spoken with someone about applying for SSI? This is available to any child with disabilities. It takes a while to process but it may be an avenue for you. Ask the social worker at your CF clinic for more info. She may also have more ideas. My husband and i were in sort of the same boat were we were paying in full for insurance. Thankfully, we had chosen the plan that was the most expensive but covered mostly everything. We also had to move in with my parents to afford it, but thankfully we had it.
If you need any support or any other questions you can PM me. I am new to this myself, but the feeling of getting those test results back are crisp in my mind. West was 98 on both arms. This summer I started to think that maybe the test was wrong...I had myself convinced because he was doing so well. It was denial. We got the blood test back. Good luck. Hope this helps.

Jenn
mom of Ella 3yrs no cF and Weston 13mos. cF

 

[westonsmom]

Have you spoken with someone about applying for SSI? This is available to any child with disabilities. It takes a while to process but it may be an avenue for you. Ask the social worker at your CF clinic for more info. She may also have more ideas. My husband and i were in sort of the same boat were we were paying in full for insurance. Thankfully, we had chosen the plan that was the most expensive but covered mostly everything. We also had to move in with my parents to afford it, but thankfully we had it.
If you need any support or any other questions you can PM me. I am new to this myself, but the feeling of getting those test results back are crisp in my mind. West was 98 on both arms. This summer I started to think that maybe the test was wrong...I had myself convinced because he was doing so well. It was denial. We got the blood test back. Good luck. Hope this helps.

Jenn
mom of Ella 3yrs no cF and Weston 13mos. cF

 

[westonsmom]

Have you spoken with someone about applying for SSI? This is available to any child with disabilities. It takes a while to process but it may be an avenue for you. Ask the social worker at your CF clinic for more info. She may also have more ideas. My husband and i were in sort of the same boat were we were paying in full for insurance. Thankfully, we had chosen the plan that was the most expensive but covered mostly everything. We also had to move in with my parents to afford it, but thankfully we had it.
If you need any support or any other questions you can PM me. I am new to this myself, but the feeling of getting those test results back are crisp in my mind. West was 98 on both arms. This summer I started to think that maybe the test was wrong...I had myself convinced because he was doing so well. It was denial. We got the blood test back. Good luck. Hope this helps.

Jenn
mom of Ella 3yrs no cF and Weston 13mos. cF

 

[westonsmom]

p.s.
If you need assistance with enzymes there is a program called WECARE that offers them free for the first two years of your child's life. I don't know how old your child is but this would also be a question for the clinic social worker. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Jenn

 

[westonsmom]

p.s.
If you need assistance with enzymes there is a program called WECARE that offers them free for the first two years of your child's life. I don't know how old your child is but this would also be a question for the clinic social worker. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Jenn

 

[westonsmom]

p.s.
If you need assistance with enzymes there is a program called WECARE that offers them free for the first two years of your child's life. I don't know how old your child is but this would also be a question for the clinic social worker. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Jenn

 

[sweetwhite30]

WECARE is a exceptional program they give you free vitamax and free enzymes until your child is 2 years old, in south florida where i used to live and in alabama i got it and it helped so much especially when 250 caps cost 265.00 dollars with out insurance...And also your c.f center has programs it does not tell you about too like the rehab program will pay any unpaid hospital bills and they will pay for equipment that insurance won't pay for too. also local churches will help you out once a month with 2 meds per month if you need help ....regardless of income the churches will help you! Hope this helps.
mother to a 4 yr old with c.f.

 

[sweetwhite30]

WECARE is a exceptional program they give you free vitamax and free enzymes until your child is 2 years old, in south florida where i used to live and in alabama i got it and it helped so much especially when 250 caps cost 265.00 dollars with out insurance...And also your c.f center has programs it does not tell you about too like the rehab program will pay any unpaid hospital bills and they will pay for equipment that insurance won't pay for too. also local churches will help you out once a month with 2 meds per month if you need help ....regardless of income the churches will help you! Hope this helps.
mother to a 4 yr old with c.f.

 

[sweetwhite30]

WECARE is a exceptional program they give you free vitamax and free enzymes until your child is 2 years old, in south florida where i used to live and in alabama i got it and it helped so much especially when 250 caps cost 265.00 dollars with out insurance...And also your c.f center has programs it does not tell you about too like the rehab program will pay any unpaid hospital bills and they will pay for equipment that insurance won't pay for too. also local churches will help you out once a month with 2 meds per month if you need help ....regardless of income the churches will help you! Hope this helps.
mother to a 4 yr old with c.f.

 

[mom4holly]

Thank you so much everyone. I have found so much information and support on this site. I will update as soon as I have more information.

 

[mom4holly]

Thank you so much everyone. I have found so much information and support on this site. I will update as soon as I have more information.

 

[mom4holly]

Thank you so much everyone. I have found so much information and support on this site. I will update as soon as I have more information.