Sweat Test mix up

Chaggie

New member
This is the only paper I could find on it.

<a target=_blank class=ftalternatingbarlinklarge href="http://fn.bmj.com/cgi/content/full/89/5/F463">http://fn.bmj.com/cgi/content/full/89/5/F463</a>
 

Chaggie

New member
This is the only paper I could find on it.

<a target=_blank class=ftalternatingbarlinklarge href="http://fn.bmj.com/cgi/content/full/89/5/F463">http://fn.bmj.com/cgi/content/full/89/5/F463</a>
 

Chaggie

New member
This is the only paper I could find on it.

<a target=_blank class=ftalternatingbarlinklarge href="http://fn.bmj.com/cgi/content/full/89/5/F463">http://fn.bmj.com/cgi/content/full/89/5/F463</a>
 

Chaggie

New member
This is the only paper I could find on it.

<a target=_blank class=ftalternatingbarlinklarge href="http://fn.bmj.com/cgi/content/full/89/5/F463">http://fn.bmj.com/cgi/content/full/89/5/F463</a>
 

Chaggie

New member
This is the only paper I could find on it.

<a target=_blank class=ftalternatingbarlinklarge href="http://fn.bmj.com/cgi/content/full/89/5/F463">http://fn.bmj.com/cgi/content/full/89/5/F463</a>
 
M

Mommafirst

Guest
Here is an article on Atypical CF -- including situations where a child displays the symptoms but comes back with a low sweat test and other non-confirmatory testing.

I hope this is helpful

<a target=_blank class=ftalternatingbarlinklarge href="http://www.rsmpress.co.uk/S43_2.pdf">Atypical CF -- diagnostic and management dilemmas</a>
 
M

Mommafirst

Guest
Here is an article on Atypical CF -- including situations where a child displays the symptoms but comes back with a low sweat test and other non-confirmatory testing.

I hope this is helpful

<a target=_blank class=ftalternatingbarlinklarge href="http://www.rsmpress.co.uk/S43_2.pdf">Atypical CF -- diagnostic and management dilemmas</a>
 
M

Mommafirst

Guest
Here is an article on Atypical CF -- including situations where a child displays the symptoms but comes back with a low sweat test and other non-confirmatory testing.

I hope this is helpful

<a target=_blank class=ftalternatingbarlinklarge href="http://www.rsmpress.co.uk/S43_2.pdf">Atypical CF -- diagnostic and management dilemmas</a>
 

mom4holly

New member
When I was pregnant I qualified for "free" insurance/Medicaid but that was prior to me getting a promotion and getting a raise--now I make too much money, so they say or think.

Julie,

Where can I find this information about my insurance? My dr has req pa but it was denied because my insurance states NO EXCEPTIONS. My personal email is blcoff@express-scripts.com if you want to email me or just repost how I can find this information I would love to forward it to you to hopefully find a loopwhole.


Chris,

This is useful information but alot, I am goin to read through it and bring it my dr's appt-we have been on a steady weekly sched doing test and various things so hopefully I will have a better understanding of this to bring to my dr/insurance.
 

mom4holly

New member
When I was pregnant I qualified for "free" insurance/Medicaid but that was prior to me getting a promotion and getting a raise--now I make too much money, so they say or think.

Julie,

Where can I find this information about my insurance? My dr has req pa but it was denied because my insurance states NO EXCEPTIONS. My personal email is blcoff@express-scripts.com if you want to email me or just repost how I can find this information I would love to forward it to you to hopefully find a loopwhole.


Chris,

This is useful information but alot, I am goin to read through it and bring it my dr's appt-we have been on a steady weekly sched doing test and various things so hopefully I will have a better understanding of this to bring to my dr/insurance.
 

mom4holly

New member
When I was pregnant I qualified for "free" insurance/Medicaid but that was prior to me getting a promotion and getting a raise--now I make too much money, so they say or think.

Julie,

Where can I find this information about my insurance? My dr has req pa but it was denied because my insurance states NO EXCEPTIONS. My personal email is blcoff@express-scripts.com if you want to email me or just repost how I can find this information I would love to forward it to you to hopefully find a loopwhole.


Chris,

This is useful information but alot, I am goin to read through it and bring it my dr's appt-we have been on a steady weekly sched doing test and various things so hopefully I will have a better understanding of this to bring to my dr/insurance.
 

julie

New member
IN some states the state ins. is wonderful and in others it sucks.... I'm sorry you arne't still on it for your child so you can get the tests! Ahhh life.

What is your ins. company's name? Do you have a group/policy number? There are a few places you can get specific information. One woudl be online, another would be to call and request a book on your benefits. Do you have a health benefits coordinator at work? If so, I would talk to them also.

I'm willing to help you out, I'm on vacation this week and have some free time when the babies sleep. I'll also read through what chris found and see if I can pull out some excerpts from it that would be useful in getting your ins. company to cover it.

The "no exceptions" statement has me wondering, are you aware of how your ins. companies appeals process works? Every company is different, but many times there are "higher ups" who can make executive decisions that defy the rules and regulations. I would FIGHT FIGHT FIGHT.

Let me know what help you need, and if you feel more comfortable sending the ins. info via email, feel free to email me at division902@hotmail.com or PM me.
 

julie

New member
IN some states the state ins. is wonderful and in others it sucks.... I'm sorry you arne't still on it for your child so you can get the tests! Ahhh life.

What is your ins. company's name? Do you have a group/policy number? There are a few places you can get specific information. One woudl be online, another would be to call and request a book on your benefits. Do you have a health benefits coordinator at work? If so, I would talk to them also.

I'm willing to help you out, I'm on vacation this week and have some free time when the babies sleep. I'll also read through what chris found and see if I can pull out some excerpts from it that would be useful in getting your ins. company to cover it.

The "no exceptions" statement has me wondering, are you aware of how your ins. companies appeals process works? Every company is different, but many times there are "higher ups" who can make executive decisions that defy the rules and regulations. I would FIGHT FIGHT FIGHT.

Let me know what help you need, and if you feel more comfortable sending the ins. info via email, feel free to email me at division902@hotmail.com or PM me.
 

julie

New member
IN some states the state ins. is wonderful and in others it sucks.... I'm sorry you arne't still on it for your child so you can get the tests! Ahhh life.

What is your ins. company's name? Do you have a group/policy number? There are a few places you can get specific information. One woudl be online, another would be to call and request a book on your benefits. Do you have a health benefits coordinator at work? If so, I would talk to them also.

I'm willing to help you out, I'm on vacation this week and have some free time when the babies sleep. I'll also read through what chris found and see if I can pull out some excerpts from it that would be useful in getting your ins. company to cover it.

The "no exceptions" statement has me wondering, are you aware of how your ins. companies appeals process works? Every company is different, but many times there are "higher ups" who can make executive decisions that defy the rules and regulations. I would FIGHT FIGHT FIGHT.

Let me know what help you need, and if you feel more comfortable sending the ins. info via email, feel free to email me at division902@hotmail.com or PM me.
 

julie

New member
Here are some other options for some testing, which may open the door in convincing the ins. company that genetic testing in your case is necessary. What about:
1. Nasal mucosal potential difference (PD)
2. chest X ray (to look for damage)
3. exocrine pancreatic function testing
4. rectal PD (potential difference
 

julie

New member
Here are some other options for some testing, which may open the door in convincing the ins. company that genetic testing in your case is necessary. What about:
1. Nasal mucosal potential difference (PD)
2. chest X ray (to look for damage)
3. exocrine pancreatic function testing
4. rectal PD (potential difference
 

julie

New member
Here are some other options for some testing, which may open the door in convincing the ins. company that genetic testing in your case is necessary. What about:
1. Nasal mucosal potential difference (PD)
2. chest X ray (to look for damage)
3. exocrine pancreatic function testing
4. rectal PD (potential difference
 
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