Sweat test results - Very Frustrated - Vent

[Paige3]

Ds had his appt. at the plumonologist last week. Found out the result of his positive sweat test at our local hospital was a 63. The nurse practioner we saw said she could tell us that she was 98% sure ds did NOT have cf. They had had 2 patients in the last month that had false positive sweat tests from our local hospital. Sons chest x-ray was normal and lung function was almost normal and nurse said was normal for someone with asthma, so of course we were thrilled to hear this. He did have the dna test that day and the nurse made an appointment for a dual sweat test at their lab which he had done today. When they called with the results they said it was a high normal, a 37 and 39 and said we now have to wait for the results of the dna test which is another one to five weeks.

Since the tests were both below 40 I thought that would be enough to rule cf out but guess not. I know others on here are in the same boat with the wait. Just needing to vent<img src="i/expressions/face-icon-small-confused.gif" border="0">.

 

[Paige3]

Ds had his appt. at the plumonologist last week. Found out the result of his positive sweat test at our local hospital was a 63. The nurse practioner we saw said she could tell us that she was 98% sure ds did NOT have cf. They had had 2 patients in the last month that had false positive sweat tests from our local hospital. Sons chest x-ray was normal and lung function was almost normal and nurse said was normal for someone with asthma, so of course we were thrilled to hear this. He did have the dna test that day and the nurse made an appointment for a dual sweat test at their lab which he had done today. When they called with the results they said it was a high normal, a 37 and 39 and said we now have to wait for the results of the dna test which is another one to five weeks.

Since the tests were both below 40 I thought that would be enough to rule cf out but guess not. I know others on here are in the same boat with the wait. Just needing to vent<img src="i/expressions/face-icon-small-confused.gif" border="0">.

 

[Paige3]

Ds had his appt. at the plumonologist last week. Found out the result of his positive sweat test at our local hospital was a 63. The nurse practioner we saw said she could tell us that she was 98% sure ds did NOT have cf. They had had 2 patients in the last month that had false positive sweat tests from our local hospital. Sons chest x-ray was normal and lung function was almost normal and nurse said was normal for someone with asthma, so of course we were thrilled to hear this. He did have the dna test that day and the nurse made an appointment for a dual sweat test at their lab which he had done today. When they called with the results they said it was a high normal, a 37 and 39 and said we now have to wait for the results of the dna test which is another one to five weeks.

Since the tests were both below 40 I thought that would be enough to rule cf out but guess not. I know others on here are in the same boat with the wait. Just needing to vent<img src="i/expressions/face-icon-small-confused.gif" border="0">.

 

[Paige3]

Ds had his appt. at the plumonologist last week. Found out the result of his positive sweat test at our local hospital was a 63. The nurse practioner we saw said she could tell us that she was 98% sure ds did NOT have cf. They had had 2 patients in the last month that had false positive sweat tests from our local hospital. Sons chest x-ray was normal and lung function was almost normal and nurse said was normal for someone with asthma, so of course we were thrilled to hear this. He did have the dna test that day and the nurse made an appointment for a dual sweat test at their lab which he had done today. When they called with the results they said it was a high normal, a 37 and 39 and said we now have to wait for the results of the dna test which is another one to five weeks.

Since the tests were both below 40 I thought that would be enough to rule cf out but guess not. I know others on here are in the same boat with the wait. Just needing to vent<img src="i/expressions/face-icon-small-confused.gif" border="0">.

 

[Paige3]

Ds had his appt. at the plumonologist last week. Found out the result of his positive sweat test at our local hospital was a 63. The nurse practioner we saw said she could tell us that she was 98% sure ds did NOT have cf. They had had 2 patients in the last month that had false positive sweat tests from our local hospital. Sons chest x-ray was normal and lung function was almost normal and nurse said was normal for someone with asthma, so of course we were thrilled to hear this. He did have the dna test that day and the nurse made an appointment for a dual sweat test at their lab which he had done today. When they called with the results they said it was a high normal, a 37 and 39 and said we now have to wait for the results of the dna test which is another one to five weeks.
<br />
<br />Since the tests were both below 40 I thought that would be enough to rule cf out but guess not. I know others on here are in the same boat with the wait. Just needing to vent<img src="i/expressions/face-icon-small-confused.gif" border="0">.

 

[Ratatosk]

DS' sweat test was 32; however, because he was born with a bowel obstruction, a doctor suspected CF and ordered genetic tests. No lung issues. I know the waiting is hard, stressful and you feel as if you're in limbo until you get answers, but at least they're trying to find out what, if anything is wrong with your son.

 

[Ratatosk]

DS' sweat test was 32; however, because he was born with a bowel obstruction, a doctor suspected CF and ordered genetic tests. No lung issues. I know the waiting is hard, stressful and you feel as if you're in limbo until you get answers, but at least they're trying to find out what, if anything is wrong with your son.

 

[Ratatosk]

DS' sweat test was 32; however, because he was born with a bowel obstruction, a doctor suspected CF and ordered genetic tests. No lung issues. I know the waiting is hard, stressful and you feel as if you're in limbo until you get answers, but at least they're trying to find out what, if anything is wrong with your son.

 

[Ratatosk]

DS' sweat test was 32; however, because he was born with a bowel obstruction, a doctor suspected CF and ordered genetic tests. No lung issues. I know the waiting is hard, stressful and you feel as if you're in limbo until you get answers, but at least they're trying to find out what, if anything is wrong with your son.

 

[Ratatosk]

DS' sweat test was 32; however, because he was born with a bowel obstruction, a doctor suspected CF and ordered genetic tests. No lung issues. I know the waiting is hard, stressful and you feel as if you're in limbo until you get answers, but at least they're trying to find out what, if anything is wrong with your son.

 

[Paige3]

I'm very thankful that he was able to have the dna test to hopefully get a diagnosis one way or the other. It's just been such a rollercoaster of emotions, starting to adjust to him maybe having cf to then being thrilled and so relieved at the nurse saying she was 98% sure he didn't have cf to now being told we have to wait for the dna test results.

Also if it turns out he does have cf I'm very concerned that his older brother may have it as well. Older ds was sweat tested as a baby due to failure to thrive but we were told it was negative. Thinking of asking for a sweat test for him while we wait on the dna test results for his brother.

It makes it a little easier to accept, knowing that other people know what it's like to go through all the testing and waiting <img src="i/expressions/face-icon-small-smile.gif" border="0">.

 

[Paige3]

I'm very thankful that he was able to have the dna test to hopefully get a diagnosis one way or the other. It's just been such a rollercoaster of emotions, starting to adjust to him maybe having cf to then being thrilled and so relieved at the nurse saying she was 98% sure he didn't have cf to now being told we have to wait for the dna test results.

Also if it turns out he does have cf I'm very concerned that his older brother may have it as well. Older ds was sweat tested as a baby due to failure to thrive but we were told it was negative. Thinking of asking for a sweat test for him while we wait on the dna test results for his brother.

It makes it a little easier to accept, knowing that other people know what it's like to go through all the testing and waiting <img src="i/expressions/face-icon-small-smile.gif" border="0">.

 

[Paige3]

I'm very thankful that he was able to have the dna test to hopefully get a diagnosis one way or the other. It's just been such a rollercoaster of emotions, starting to adjust to him maybe having cf to then being thrilled and so relieved at the nurse saying she was 98% sure he didn't have cf to now being told we have to wait for the dna test results.

Also if it turns out he does have cf I'm very concerned that his older brother may have it as well. Older ds was sweat tested as a baby due to failure to thrive but we were told it was negative. Thinking of asking for a sweat test for him while we wait on the dna test results for his brother.

It makes it a little easier to accept, knowing that other people know what it's like to go through all the testing and waiting <img src="i/expressions/face-icon-small-smile.gif" border="0">.

 

[Paige3]

I'm very thankful that he was able to have the dna test to hopefully get a diagnosis one way or the other. It's just been such a rollercoaster of emotions, starting to adjust to him maybe having cf to then being thrilled and so relieved at the nurse saying she was 98% sure he didn't have cf to now being told we have to wait for the dna test results.

Also if it turns out he does have cf I'm very concerned that his older brother may have it as well. Older ds was sweat tested as a baby due to failure to thrive but we were told it was negative. Thinking of asking for a sweat test for him while we wait on the dna test results for his brother.

It makes it a little easier to accept, knowing that other people know what it's like to go through all the testing and waiting <img src="i/expressions/face-icon-small-smile.gif" border="0">.

 

[Paige3]

I'm very thankful that he was able to have the dna test to hopefully get a diagnosis one way or the other. It's just been such a rollercoaster of emotions, starting to adjust to him maybe having cf to then being thrilled and so relieved at the nurse saying she was 98% sure he didn't have cf to now being told we have to wait for the dna test results.
<br />
<br />Also if it turns out he does have cf I'm very concerned that his older brother may have it as well. Older ds was sweat tested as a baby due to failure to thrive but we were told it was negative. Thinking of asking for a sweat test for him while we wait on the dna test results for his brother.
<br />
<br />It makes it a little easier to accept, knowing that other people know what it's like to go through all the testing and waiting <img src="i/expressions/face-icon-small-smile.gif" border="0">.

 

[serendipity730]

Paige,

I am sorry to hear that this process have been so drawn out for your family. Where the last two sweat tests down at a hospital that has a CF center? Local hospitals that do not do sweat tests often have been known to give false positives.

How old is your little guy? Many states do newborn screening for CF now, if he is an infant, he may have been tested via newborn screening.

Even though, I am sure it is very frustrating, it is best to get all of the tests done. If your son has negative genetic testing (1 or no mutations - and has had ALL of the genetic testing), you can know for sure he doesn't have CF.

Your family will be in my thoughts!

 

[serendipity730]

Paige,

I am sorry to hear that this process have been so drawn out for your family. Where the last two sweat tests down at a hospital that has a CF center? Local hospitals that do not do sweat tests often have been known to give false positives.

How old is your little guy? Many states do newborn screening for CF now, if he is an infant, he may have been tested via newborn screening.

Even though, I am sure it is very frustrating, it is best to get all of the tests done. If your son has negative genetic testing (1 or no mutations - and has had ALL of the genetic testing), you can know for sure he doesn't have CF.

Your family will be in my thoughts!

 

[serendipity730]

Paige,

I am sorry to hear that this process have been so drawn out for your family. Where the last two sweat tests down at a hospital that has a CF center? Local hospitals that do not do sweat tests often have been known to give false positives.

How old is your little guy? Many states do newborn screening for CF now, if he is an infant, he may have been tested via newborn screening.

Even though, I am sure it is very frustrating, it is best to get all of the tests done. If your son has negative genetic testing (1 or no mutations - and has had ALL of the genetic testing), you can know for sure he doesn't have CF.

Your family will be in my thoughts!

 

[serendipity730]

Paige,

I am sorry to hear that this process have been so drawn out for your family. Where the last two sweat tests down at a hospital that has a CF center? Local hospitals that do not do sweat tests often have been known to give false positives.

How old is your little guy? Many states do newborn screening for CF now, if he is an infant, he may have been tested via newborn screening.

Even though, I am sure it is very frustrating, it is best to get all of the tests done. If your son has negative genetic testing (1 or no mutations - and has had ALL of the genetic testing), you can know for sure he doesn't have CF.

Your family will be in my thoughts!

 

[serendipity730]

Paige,
<br />
<br />I am sorry to hear that this process have been so drawn out for your family. Where the last two sweat tests down at a hospital that has a CF center? Local hospitals that do not do sweat tests often have been known to give false positives.
<br />
<br />How old is your little guy? Many states do newborn screening for CF now, if he is an infant, he may have been tested via newborn screening.
<br />
<br />Even though, I am sure it is very frustrating, it is best to get all of the tests done. If your son has negative genetic testing (1 or no mutations - and has had ALL of the genetic testing), you can know for sure he doesn't have CF.
<br />
<br />Your family will be in my thoughts!