sweat test results

[braydenzmom]

well...brayden's medicaid finally gave the OKAY for him to get the sweat test done. we went to the joe dimaggio childrens hospital on friday. the CF center called me later on that day with the results...38. they didnt really explain it to me that well...so does anyone know what this number really means?!? brayden was diagnosed through amnio, so we already know hes positive for CF. hes pancreatic sufficient and the doctor said with such a low sweat test number that brayden is "not showing any symptoms". can someone fill me in a little bit more on the specifics of the sweat test? thanks in advance...youre all AMAZING on this site. x0x0x

 

[braydenzmom]

well...brayden's medicaid finally gave the OKAY for him to get the sweat test done. we went to the joe dimaggio childrens hospital on friday. the CF center called me later on that day with the results...38. they didnt really explain it to me that well...so does anyone know what this number really means?!? brayden was diagnosed through amnio, so we already know hes positive for CF. hes pancreatic sufficient and the doctor said with such a low sweat test number that brayden is "not showing any symptoms". can someone fill me in a little bit more on the specifics of the sweat test? thanks in advance...youre all AMAZING on this site. x0x0x

 

[braydenzmom]

well...brayden's medicaid finally gave the OKAY for him to get the sweat test done. we went to the joe dimaggio childrens hospital on friday. the CF center called me later on that day with the results...38. they didnt really explain it to me that well...so does anyone know what this number really means?!? brayden was diagnosed through amnio, so we already know hes positive for CF. hes pancreatic sufficient and the doctor said with such a low sweat test number that brayden is "not showing any symptoms". can someone fill me in a little bit more on the specifics of the sweat test? thanks in advance...youre all AMAZING on this site. x0x0x

 

[braydenzmom]

well...brayden's medicaid finally gave the OKAY for him to get the sweat test done. we went to the joe dimaggio childrens hospital on friday. the CF center called me later on that day with the results...38. they didnt really explain it to me that well...so does anyone know what this number really means?!? brayden was diagnosed through amnio, so we already know hes positive for CF. hes pancreatic sufficient and the doctor said with such a low sweat test number that brayden is "not showing any symptoms". can someone fill me in a little bit more on the specifics of the sweat test? thanks in advance...youre all AMAZING on this site. x0x0x

 

[braydenzmom]

well...brayden's medicaid finally gave the OKAY for him to get the sweat test done. we went to the joe dimaggio childrens hospital on friday. the CF center called me later on that day with the results...38. they didnt really explain it to me that well...so does anyone know what this number really means?!? brayden was diagnosed through amnio, so we already know hes positive for CF. hes pancreatic sufficient and the doctor said with such a low sweat test number that brayden is "not showing any symptoms". can someone fill me in a little bit more on the specifics of the sweat test? thanks in advance...youre all AMAZING on this site. x0x0x

 

[Ratatosk]

DS was diagnosed with a blood test and his sweat test was a normal 32; however, he has pancreatic insufficiency -- was born with a bowel obstruction and needs to take digestive enzymes. At 3 months he cultured psuedomonas.

I would hope despite the lack of symptoms that your clinic would be proactive in treating your son's CF -- have you started doing CPT? We were told that CFers are born with normal lungs but with infections, thick sticky mucus that eventually the lungs will become affected, so the key is being agressive in keeping those lungs healthy and happy.

 

[Ratatosk]

DS was diagnosed with a blood test and his sweat test was a normal 32; however, he has pancreatic insufficiency -- was born with a bowel obstruction and needs to take digestive enzymes. At 3 months he cultured psuedomonas.

I would hope despite the lack of symptoms that your clinic would be proactive in treating your son's CF -- have you started doing CPT? We were told that CFers are born with normal lungs but with infections, thick sticky mucus that eventually the lungs will become affected, so the key is being agressive in keeping those lungs healthy and happy.

 

[Ratatosk]

DS was diagnosed with a blood test and his sweat test was a normal 32; however, he has pancreatic insufficiency -- was born with a bowel obstruction and needs to take digestive enzymes. At 3 months he cultured psuedomonas.

I would hope despite the lack of symptoms that your clinic would be proactive in treating your son's CF -- have you started doing CPT? We were told that CFers are born with normal lungs but with infections, thick sticky mucus that eventually the lungs will become affected, so the key is being agressive in keeping those lungs healthy and happy.

 

[Ratatosk]

DS was diagnosed with a blood test and his sweat test was a normal 32; however, he has pancreatic insufficiency -- was born with a bowel obstruction and needs to take digestive enzymes. At 3 months he cultured psuedomonas.

I would hope despite the lack of symptoms that your clinic would be proactive in treating your son's CF -- have you started doing CPT? We were told that CFers are born with normal lungs but with infections, thick sticky mucus that eventually the lungs will become affected, so the key is being agressive in keeping those lungs healthy and happy.

 

[Ratatosk]

DS was diagnosed with a blood test and his sweat test was a normal 32; however, he has pancreatic insufficiency -- was born with a bowel obstruction and needs to take digestive enzymes. At 3 months he cultured psuedomonas.
<br />
<br />I would hope despite the lack of symptoms that your clinic would be proactive in treating your son's CF -- have you started doing CPT? We were told that CFers are born with normal lungs but with infections, thick sticky mucus that eventually the lungs will become affected, so the key is being agressive in keeping those lungs healthy and happy.

 

[Mommafirst]

I think the 38 indicates that his CFTR protein is functioning at some capacity. Its a high normal result, 40-60 is considered borderline, 60 and over positive. As far as I can tell, there is no correlation between severity and sweat number -- but I'm not an expert. My daughter's sweat was a 53 and she has no "symptoms" -- ie: she's pancreatic sufficient (but hovering on the line) and a bronch in October revealed no current lung involvement. Its great that he has no symptoms, but unfortunately its not a free pass. Keep moving forward to all the preventative care and hopefully you can keep him this healthy for a long long long time!!!

 

[Mommafirst]

I think the 38 indicates that his CFTR protein is functioning at some capacity. Its a high normal result, 40-60 is considered borderline, 60 and over positive. As far as I can tell, there is no correlation between severity and sweat number -- but I'm not an expert. My daughter's sweat was a 53 and she has no "symptoms" -- ie: she's pancreatic sufficient (but hovering on the line) and a bronch in October revealed no current lung involvement. Its great that he has no symptoms, but unfortunately its not a free pass. Keep moving forward to all the preventative care and hopefully you can keep him this healthy for a long long long time!!!

 

[Mommafirst]

I think the 38 indicates that his CFTR protein is functioning at some capacity. Its a high normal result, 40-60 is considered borderline, 60 and over positive. As far as I can tell, there is no correlation between severity and sweat number -- but I'm not an expert. My daughter's sweat was a 53 and she has no "symptoms" -- ie: she's pancreatic sufficient (but hovering on the line) and a bronch in October revealed no current lung involvement. Its great that he has no symptoms, but unfortunately its not a free pass. Keep moving forward to all the preventative care and hopefully you can keep him this healthy for a long long long time!!!

 

[Mommafirst]

I think the 38 indicates that his CFTR protein is functioning at some capacity. Its a high normal result, 40-60 is considered borderline, 60 and over positive. As far as I can tell, there is no correlation between severity and sweat number -- but I'm not an expert. My daughter's sweat was a 53 and she has no "symptoms" -- ie: she's pancreatic sufficient (but hovering on the line) and a bronch in October revealed no current lung involvement. Its great that he has no symptoms, but unfortunately its not a free pass. Keep moving forward to all the preventative care and hopefully you can keep him this healthy for a long long long time!!!

 

[Mommafirst]

I think the 38 indicates that his CFTR protein is functioning at some capacity. Its a high normal result, 40-60 is considered borderline, 60 and over positive. As far as I can tell, there is no correlation between severity and sweat number -- but I'm not an expert. My daughter's sweat was a 53 and she has no "symptoms" -- ie: she's pancreatic sufficient (but hovering on the line) and a bronch in October revealed no current lung involvement. Its great that he has no symptoms, but unfortunately its not a free pass. Keep moving forward to all the preventative care and hopefully you can keep him this healthy for a long long long time!!!

 

[Ratatosk]

I was thinking too of a friend of mine's granddaughter whose the same age as DS and has the same mutation (double d508). She wasn't diagnosed until she was almost two -- had numerous respiratory infections, constipation issues and the doctor decided to do a sweat test to "rule out cf" Her levels were over the top 100+

Who knows why their test results were so different. Could be different testing locations or the difference in ages -- maybe DS' clinic didn't get a good enough sample...

 

[Ratatosk]

I was thinking too of a friend of mine's granddaughter whose the same age as DS and has the same mutation (double d508). She wasn't diagnosed until she was almost two -- had numerous respiratory infections, constipation issues and the doctor decided to do a sweat test to "rule out cf" Her levels were over the top 100+

Who knows why their test results were so different. Could be different testing locations or the difference in ages -- maybe DS' clinic didn't get a good enough sample...

 

[Ratatosk]

I was thinking too of a friend of mine's granddaughter whose the same age as DS and has the same mutation (double d508). She wasn't diagnosed until she was almost two -- had numerous respiratory infections, constipation issues and the doctor decided to do a sweat test to "rule out cf" Her levels were over the top 100+

Who knows why their test results were so different. Could be different testing locations or the difference in ages -- maybe DS' clinic didn't get a good enough sample...

 

[Ratatosk]

I was thinking too of a friend of mine's granddaughter whose the same age as DS and has the same mutation (double d508). She wasn't diagnosed until she was almost two -- had numerous respiratory infections, constipation issues and the doctor decided to do a sweat test to "rule out cf" Her levels were over the top 100+

Who knows why their test results were so different. Could be different testing locations or the difference in ages -- maybe DS' clinic didn't get a good enough sample...

 

[Ratatosk]

I was thinking too of a friend of mine's granddaughter whose the same age as DS and has the same mutation (double d508). She wasn't diagnosed until she was almost two -- had numerous respiratory infections, constipation issues and the doctor decided to do a sweat test to "rule out cf" Her levels were over the top 100+
<br />
<br />Who knows why their test results were so different. Could be different testing locations or the difference in ages -- maybe DS' clinic didn't get a good enough sample...