sweat test results

M

MargaritaChic

New member
I have heard that the numbers can be very misleading when you are being told normal or borderline. Many people with confirmed genetics of CF have low sweat test numbers.

But here is the official scale:

under 40 = normal
40-60 = borderline
60+ = positive

----------------------

My daughter scored 95/96.
 
M

MargaritaChic

New member
I have heard that the numbers can be very misleading when you are being told normal or borderline. Many people with confirmed genetics of CF have low sweat test numbers.

But here is the official scale:

under 40 = normal
40-60 = borderline
60+ = positive

----------------------

My daughter scored 95/96.
 
M

MargaritaChic

New member
I have heard that the numbers can be very misleading when you are being told normal or borderline. Many people with confirmed genetics of CF have low sweat test numbers.

But here is the official scale:

under 40 = normal
40-60 = borderline
60+ = positive

----------------------

My daughter scored 95/96.
 
M

MargaritaChic

New member
I have heard that the numbers can be very misleading when you are being told normal or borderline. Many people with confirmed genetics of CF have low sweat test numbers.

But here is the official scale:

under 40 = normal
40-60 = borderline
60+ = positive

----------------------

My daughter scored 95/96.
 
M

MargaritaChic

New member
I have heard that the numbers can be very misleading when you are being told normal or borderline. Many people with confirmed genetics of CF have low sweat test numbers.
<br />
<br />But here is the official scale:
<br />
<br />under 40 = normal
<br />40-60 = borderline
<br />60+ = positive
<br />
<br />----------------------
<br />
<br />My daughter scored 95/96.
 
A

Alyssa

New member
Jessica,

<b>My kids have the same mutations as Brayden</b>. The R117H is very well known for producing pancreatic sufficiency. It is also good news to have the 7T. According to our doctor and Steve on the Ambry post - those with the R117H 7T are considered mild variant / A-Typical. Symptoms are usually later onset and are less sever for a much longer period of time than those with "classic CF symptoms"

His sweat test #38 is exactly the same as my daughter's too -- yes, after the fact (knowing the mutations already) it means very little -- if you were trying to get genetic testing as a result of a 38 it might be of more interest.

There is no correlation between sweat test number and severity of disease, but it does most likely demonstrate that the cells are working closer to normal than someone with a higher sweat test number. The most important information about sweat test numbers is the higher they are the more likely a person is to become dehydrated. People with sweat tests above 75 have to be more careful to stay hydrated with things like gaterade and eating salty snacks and food.

<b>Please see my blog for more details about my kids</b>..If you have any questions please feel free to send me a private message or ask on here...I'd be happy to chat with you...everyone I've ever met with the same gene combo has had a fairly similar experience with regard to their symptoms/health.
 
A

Alyssa

New member
Jessica,

<b>My kids have the same mutations as Brayden</b>. The R117H is very well known for producing pancreatic sufficiency. It is also good news to have the 7T. According to our doctor and Steve on the Ambry post - those with the R117H 7T are considered mild variant / A-Typical. Symptoms are usually later onset and are less sever for a much longer period of time than those with "classic CF symptoms"

His sweat test #38 is exactly the same as my daughter's too -- yes, after the fact (knowing the mutations already) it means very little -- if you were trying to get genetic testing as a result of a 38 it might be of more interest.

There is no correlation between sweat test number and severity of disease, but it does most likely demonstrate that the cells are working closer to normal than someone with a higher sweat test number. The most important information about sweat test numbers is the higher they are the more likely a person is to become dehydrated. People with sweat tests above 75 have to be more careful to stay hydrated with things like gaterade and eating salty snacks and food.

<b>Please see my blog for more details about my kids</b>..If you have any questions please feel free to send me a private message or ask on here...I'd be happy to chat with you...everyone I've ever met with the same gene combo has had a fairly similar experience with regard to their symptoms/health.
 
A

Alyssa

New member
Jessica,

<b>My kids have the same mutations as Brayden</b>. The R117H is very well known for producing pancreatic sufficiency. It is also good news to have the 7T. According to our doctor and Steve on the Ambry post - those with the R117H 7T are considered mild variant / A-Typical. Symptoms are usually later onset and are less sever for a much longer period of time than those with "classic CF symptoms"

His sweat test #38 is exactly the same as my daughter's too -- yes, after the fact (knowing the mutations already) it means very little -- if you were trying to get genetic testing as a result of a 38 it might be of more interest.

There is no correlation between sweat test number and severity of disease, but it does most likely demonstrate that the cells are working closer to normal than someone with a higher sweat test number. The most important information about sweat test numbers is the higher they are the more likely a person is to become dehydrated. People with sweat tests above 75 have to be more careful to stay hydrated with things like gaterade and eating salty snacks and food.

<b>Please see my blog for more details about my kids</b>..If you have any questions please feel free to send me a private message or ask on here...I'd be happy to chat with you...everyone I've ever met with the same gene combo has had a fairly similar experience with regard to their symptoms/health.
 
A

Alyssa

New member
Jessica,

<b>My kids have the same mutations as Brayden</b>. The R117H is very well known for producing pancreatic sufficiency. It is also good news to have the 7T. According to our doctor and Steve on the Ambry post - those with the R117H 7T are considered mild variant / A-Typical. Symptoms are usually later onset and are less sever for a much longer period of time than those with "classic CF symptoms"

His sweat test #38 is exactly the same as my daughter's too -- yes, after the fact (knowing the mutations already) it means very little -- if you were trying to get genetic testing as a result of a 38 it might be of more interest.

There is no correlation between sweat test number and severity of disease, but it does most likely demonstrate that the cells are working closer to normal than someone with a higher sweat test number. The most important information about sweat test numbers is the higher they are the more likely a person is to become dehydrated. People with sweat tests above 75 have to be more careful to stay hydrated with things like gaterade and eating salty snacks and food.

<b>Please see my blog for more details about my kids</b>..If you have any questions please feel free to send me a private message or ask on here...I'd be happy to chat with you...everyone I've ever met with the same gene combo has had a fairly similar experience with regard to their symptoms/health.
 
A

Alyssa

New member
Jessica,
<br />
<br /><b>My kids have the same mutations as Brayden</b>. The R117H is very well known for producing pancreatic sufficiency. It is also good news to have the 7T. According to our doctor and Steve on the Ambry post - those with the R117H 7T are considered mild variant / A-Typical. Symptoms are usually later onset and are less sever for a much longer period of time than those with "classic CF symptoms"
<br />
<br />His sweat test #38 is exactly the same as my daughter's too -- yes, after the fact (knowing the mutations already) it means very little -- if you were trying to get genetic testing as a result of a 38 it might be of more interest.
<br />
<br />There is no correlation between sweat test number and severity of disease, but it does most likely demonstrate that the cells are working closer to normal than someone with a higher sweat test number. The most important information about sweat test numbers is the higher they are the more likely a person is to become dehydrated. People with sweat tests above 75 have to be more careful to stay hydrated with things like gaterade and eating salty snacks and food.
<br />
<br /><b>Please see my blog for more details about my kids</b>..If you have any questions please feel free to send me a private message or ask on here...I'd be happy to chat with you...everyone I've ever met with the same gene combo has had a fairly similar experience with regard to their symptoms/health.
 
H

hopesiris

Guest
My sweat test was 36, which is considered "near borderline". I was told that sweat tests can vary a bit so if it was repeated a few times it could be a little higher or lower. My CF genetics are also "atypical" and usually result in mild-moderate CF. My CF is very mild still and I am pancreatic sufficient.

A low sweat test doesn't mean a CFer isn't showing symptoms, other tests indicate health baseline (sputum cultures, lung CT scans). Not showing symptoms now doesn't mean the CFer should not begin doing airway clearance. The mucus is likely in there and it needs to come out so the lungs don't become a breeding ground for the "bugs" CFers get with age. Hope that makes sense.

Any questions PM me.

Bonnie
 
H

hopesiris

Guest
My sweat test was 36, which is considered "near borderline". I was told that sweat tests can vary a bit so if it was repeated a few times it could be a little higher or lower. My CF genetics are also "atypical" and usually result in mild-moderate CF. My CF is very mild still and I am pancreatic sufficient.

A low sweat test doesn't mean a CFer isn't showing symptoms, other tests indicate health baseline (sputum cultures, lung CT scans). Not showing symptoms now doesn't mean the CFer should not begin doing airway clearance. The mucus is likely in there and it needs to come out so the lungs don't become a breeding ground for the "bugs" CFers get with age. Hope that makes sense.

Any questions PM me.

Bonnie
 
H

hopesiris

Guest
My sweat test was 36, which is considered "near borderline". I was told that sweat tests can vary a bit so if it was repeated a few times it could be a little higher or lower. My CF genetics are also "atypical" and usually result in mild-moderate CF. My CF is very mild still and I am pancreatic sufficient.

A low sweat test doesn't mean a CFer isn't showing symptoms, other tests indicate health baseline (sputum cultures, lung CT scans). Not showing symptoms now doesn't mean the CFer should not begin doing airway clearance. The mucus is likely in there and it needs to come out so the lungs don't become a breeding ground for the "bugs" CFers get with age. Hope that makes sense.

Any questions PM me.

Bonnie
 
H

hopesiris

Guest
My sweat test was 36, which is considered "near borderline". I was told that sweat tests can vary a bit so if it was repeated a few times it could be a little higher or lower. My CF genetics are also "atypical" and usually result in mild-moderate CF. My CF is very mild still and I am pancreatic sufficient.

A low sweat test doesn't mean a CFer isn't showing symptoms, other tests indicate health baseline (sputum cultures, lung CT scans). Not showing symptoms now doesn't mean the CFer should not begin doing airway clearance. The mucus is likely in there and it needs to come out so the lungs don't become a breeding ground for the "bugs" CFers get with age. Hope that makes sense.

Any questions PM me.

Bonnie
 
H

hopesiris

Guest
My sweat test was 36, which is considered "near borderline". I was told that sweat tests can vary a bit so if it was repeated a few times it could be a little higher or lower. My CF genetics are also "atypical" and usually result in mild-moderate CF. My CF is very mild still and I am pancreatic sufficient.
<br />
<br />A low sweat test doesn't mean a CFer isn't showing symptoms, other tests indicate health baseline (sputum cultures, lung CT scans). Not showing symptoms now doesn't mean the CFer should not begin doing airway clearance. The mucus is likely in there and it needs to come out so the lungs don't become a breeding ground for the "bugs" CFers get with age. Hope that makes sense.
<br />
<br />Any questions PM me.
<br />
<br />Bonnie
 
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