sweat test results

Marjolein · Apr 25, 2008

I would ask for a full panel(over 1500 mutations) genetic test too. There have been lots of false negative sweattests, even when they had done a few and even then you can still have CF. Sweattests don't say everything, I think a doctor in an accredited CF center should know that.

Good luck with everything! Don't hesitate to ask more questions

X

Marjolein · Apr 25, 2008

I would ask for a full panel(over 1500 mutations) genetic test too. There have been lots of false negative sweattests, even when they had done a few and even then you can still have CF. Sweattests don't say everything, I think a doctor in an accredited CF center should know that.

Good luck with everything! Don't hesitate to ask more questions

X

Marjolein · Apr 25, 2008

I would ask for a full panel(over 1500 mutations) genetic test too. There have been lots of false negative sweattests, even when they had done a few and even then you can still have CF. Sweattests don't say everything, I think a doctor in an accredited CF center should know that.

Good luck with everything! Don't hesitate to ask more questions

X

Marjolein · Apr 25, 2008

I would ask for a full panel(over 1500 mutations) genetic test too. There have been lots of false negative sweattests, even when they had done a few and even then you can still have CF. Sweattests don't say everything, I think a doctor in an accredited CF center should know that.

Good luck with everything! Don't hesitate to ask more questions

X

Marjolein · Apr 25, 2008

I would ask for a full panel(over 1500 mutations) genetic test too. There have been lots of false negative sweattests, even when they had done a few and even then you can still have CF. Sweattests don't say everything, I think a doctor in an accredited CF center should know that.
 
 Good luck with everything! Don't hesitate to ask more questions
 
 X

Alyssa · Apr 26, 2008

I'm not an expert but when most people talk about how many genes they were tested for it is usually one of the following:
12
32
97
Full - 1651

So for someone to tell you over 1000, seems to imply it was full genetic testing but you should clarify just to make sure.

Generally speaking I am the biggest pusher of normal sweat tests doesn't always mean no CF, but in your case, if you were given the full genetic test, at an accredited facility and his only symptom is lung function (which can be explained by high IgE number... I would tend to lean towards no CF.

Alyssa · Apr 26, 2008

I'm not an expert but when most people talk about how many genes they were tested for it is usually one of the following:
12
32
97
Full - 1651

So for someone to tell you over 1000, seems to imply it was full genetic testing but you should clarify just to make sure.

Generally speaking I am the biggest pusher of normal sweat tests doesn't always mean no CF, but in your case, if you were given the full genetic test, at an accredited facility and his only symptom is lung function (which can be explained by high IgE number... I would tend to lean towards no CF.

Alyssa · Apr 26, 2008

I'm not an expert but when most people talk about how many genes they were tested for it is usually one of the following:
12
32
97
Full - 1651

So for someone to tell you over 1000, seems to imply it was full genetic testing but you should clarify just to make sure.

Generally speaking I am the biggest pusher of normal sweat tests doesn't always mean no CF, but in your case, if you were given the full genetic test, at an accredited facility and his only symptom is lung function (which can be explained by high IgE number... I would tend to lean towards no CF.

Alyssa · Apr 26, 2008

I'm not an expert but when most people talk about how many genes they were tested for it is usually one of the following:
12
32
97
Full - 1651

So for someone to tell you over 1000, seems to imply it was full genetic testing but you should clarify just to make sure.

Generally speaking I am the biggest pusher of normal sweat tests doesn't always mean no CF, but in your case, if you were given the full genetic test, at an accredited facility and his only symptom is lung function (which can be explained by high IgE number... I would tend to lean towards no CF.

Alyssa · Apr 26, 2008

I'm not an expert but when most people talk about how many genes they were tested for it is usually one of the following:
 12
 32
 97
 Full - 1651
 
 So for someone to tell you over 1000, seems to imply it was full genetic testing but you should clarify just to make sure.
 
 Generally speaking I am the biggest pusher of normal sweat tests doesn't always mean no CF, but in your case, if you were given the full genetic test, at an accredited facility and his only symptom is lung function (which can be explained by high IgE number... I would tend to lean towards no CF.

ljhwill · Apr 27, 2008