You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
Sweat Test
- Thread starter Guidance
- Start date
geminifire39
New member
I have been researching and researching with no real answers. My daughter has had the pancreatic insufficiency symptoms of CF than respiratory. Chronic diarrhea, Failure to thrive, can be gassy and she belches a bit, but it's more like reflux. She has been tested for Celiac disease which came back normal. She had blood work, Alk Phos came back elevated, actually 5 times the normal limit. Had more blood work, to tell whether Alk Phos is high due to the liver or bone. We are still waiting for the test results to come back. Although the Alk Phos has dropped down, it is now only 3 times the normal limit. We had the sweat test yesterday, which came back in the normal range. Doctor said it was 31 or 38. From what I have been able to gather there is not real certainty with the sweat test. CF symptoms are various between one person and the next. That there is also another disease called SDS that has the same symptoms of CF. I have done as much research as I can, but I guess my question is, Can anyone suggest where to go from here? The fact that she is below the 0% on the growth chart, which she dropped from 50% at birth, the chronic diarrhea and despite a high calorie and fat diet she still hasn't gained any weight.
geminifire39
New member
I have been researching and researching with no real answers. My daughter has had the pancreatic insufficiency symptoms of CF than respiratory. Chronic diarrhea, Failure to thrive, can be gassy and she belches a bit, but it's more like reflux. She has been tested for Celiac disease which came back normal. She had blood work, Alk Phos came back elevated, actually 5 times the normal limit. Had more blood work, to tell whether Alk Phos is high due to the liver or bone. We are still waiting for the test results to come back. Although the Alk Phos has dropped down, it is now only 3 times the normal limit. We had the sweat test yesterday, which came back in the normal range. Doctor said it was 31 or 38. From what I have been able to gather there is not real certainty with the sweat test. CF symptoms are various between one person and the next. That there is also another disease called SDS that has the same symptoms of CF. I have done as much research as I can, but I guess my question is, Can anyone suggest where to go from here? The fact that she is below the 0% on the growth chart, which she dropped from 50% at birth, the chronic diarrhea and despite a high calorie and fat diet she still hasn't gained any weight.
geminifire39
New member
I have been researching and researching with no real answers. My daughter has had the pancreatic insufficiency symptoms of CF than respiratory. Chronic diarrhea, Failure to thrive, can be gassy and she belches a bit, but it's more like reflux. She has been tested for Celiac disease which came back normal. She had blood work, Alk Phos came back elevated, actually 5 times the normal limit. Had more blood work, to tell whether Alk Phos is high due to the liver or bone. We are still waiting for the test results to come back. Although the Alk Phos has dropped down, it is now only 3 times the normal limit. We had the sweat test yesterday, which came back in the normal range. Doctor said it was 31 or 38. From what I have been able to gather there is not real certainty with the sweat test. CF symptoms are various between one person and the next. That there is also another disease called SDS that has the same symptoms of CF. I have done as much research as I can, but I guess my question is, Can anyone suggest where to go from here? The fact that she is below the 0% on the growth chart, which she dropped from 50% at birth, the chronic diarrhea and despite a high calorie and fat diet she still hasn't gained any weight.
Emily65Roses
New member
Hahahaha. I was 103. I've always been a salty little pretzel.
Emily65Roses
New member
Hahahaha. I was 103. I've always been a salty little pretzel.
Emily65Roses
New member
Hahahaha. I was 103. I've always been a salty little pretzel.
Geminifire39
There are several people on here with confirmed genetic proof of CF and their sweat tests are in the 30's, so her reading of 31 or 38 says to me, CF is still a possibility.
My daughter's results are always 38 (she has had 4 sweat tests), my son's is 41.
If I were you I would continue to pursue the possibility of CF. Has anyone suggested genetic testing yet? You should insist on a FULL panel. A lot of doctors & insurance companies want to do the cheaper tests of something like testing for 98 mutations, but there are 1500 genes to test for, so anything less than a full test will still leave you wondering if she has two genes that were not tested for.
See my blog page for more details about my kids (link in my signature line)
There are several people on here with confirmed genetic proof of CF and their sweat tests are in the 30's, so her reading of 31 or 38 says to me, CF is still a possibility.
My daughter's results are always 38 (she has had 4 sweat tests), my son's is 41.
If I were you I would continue to pursue the possibility of CF. Has anyone suggested genetic testing yet? You should insist on a FULL panel. A lot of doctors & insurance companies want to do the cheaper tests of something like testing for 98 mutations, but there are 1500 genes to test for, so anything less than a full test will still leave you wondering if she has two genes that were not tested for.
See my blog page for more details about my kids (link in my signature line)
Geminifire39
There are several people on here with confirmed genetic proof of CF and their sweat tests are in the 30's, so her reading of 31 or 38 says to me, CF is still a possibility.
My daughter's results are always 38 (she has had 4 sweat tests), my son's is 41.
If I were you I would continue to pursue the possibility of CF. Has anyone suggested genetic testing yet? You should insist on a FULL panel. A lot of doctors & insurance companies want to do the cheaper tests of something like testing for 98 mutations, but there are 1500 genes to test for, so anything less than a full test will still leave you wondering if she has two genes that were not tested for.
See my blog page for more details about my kids (link in my signature line)
There are several people on here with confirmed genetic proof of CF and their sweat tests are in the 30's, so her reading of 31 or 38 says to me, CF is still a possibility.
My daughter's results are always 38 (she has had 4 sweat tests), my son's is 41.
If I were you I would continue to pursue the possibility of CF. Has anyone suggested genetic testing yet? You should insist on a FULL panel. A lot of doctors & insurance companies want to do the cheaper tests of something like testing for 98 mutations, but there are 1500 genes to test for, so anything less than a full test will still leave you wondering if she has two genes that were not tested for.
See my blog page for more details about my kids (link in my signature line)
Geminifire39
There are several people on here with confirmed genetic proof of CF and their sweat tests are in the 30's, so her reading of 31 or 38 says to me, CF is still a possibility.
My daughter's results are always 38 (she has had 4 sweat tests), my son's is 41.
If I were you I would continue to pursue the possibility of CF. Has anyone suggested genetic testing yet? You should insist on a FULL panel. A lot of doctors & insurance companies want to do the cheaper tests of something like testing for 98 mutations, but there are 1500 genes to test for, so anything less than a full test will still leave you wondering if she has two genes that were not tested for.
See my blog page for more details about my kids (link in my signature line)
There are several people on here with confirmed genetic proof of CF and their sweat tests are in the 30's, so her reading of 31 or 38 says to me, CF is still a possibility.
My daughter's results are always 38 (she has had 4 sweat tests), my son's is 41.
If I were you I would continue to pursue the possibility of CF. Has anyone suggested genetic testing yet? You should insist on a FULL panel. A lot of doctors & insurance companies want to do the cheaper tests of something like testing for 98 mutations, but there are 1500 genes to test for, so anything less than a full test will still leave you wondering if she has two genes that were not tested for.
See my blog page for more details about my kids (link in my signature line)