DS has the same mutation and he too had a relatively low sweat test number -- 32. He was born with a bowel obstruction caused by meconium illeus, so was put on enzymes right away. We also started doing CPT and neb treatments 3-4 times a day when he was just a few days old. The way it was explained to us is that people wcf are born with normal lungs; however, with infections, extra sticky mucus, eventually the lungs WILL become affected. So it's important to practice good lung care.
Our local clinic is more reactive and they tended to question, almost discourage us from doing cpt until the lungs were affected...
So we try to be proactive to keep his lungs healthy. It's just part of our daily routine.
When DS had his normal sweat test as a baby, I can remember thinking that maybe it was all just a big mistake -- that someday someone would say that he was misdiagnosd. But today, I would suspect his sweat test results would be off the charts. When he sweats he tends to get salt crystals in his hair and his hat gets white salt stains.
Our local clinic is more reactive and they tended to question, almost discourage us from doing cpt until the lungs were affected...
So we try to be proactive to keep his lungs healthy. It's just part of our daily routine.
When DS had his normal sweat test as a baby, I can remember thinking that maybe it was all just a big mistake -- that someday someone would say that he was misdiagnosd. But today, I would suspect his sweat test results would be off the charts. When he sweats he tends to get salt crystals in his hair and his hat gets white salt stains.