Take a deep breath

[vinsmom]

Hi, it's been way too long since I've been on this site. Good in a way....my 8 year old son has been so healthy. His PFT's usually run around 95...what a shock when we went in twice now and they were down to 60. He looks great, plays, has energy but much to my surprise...here we are. I look at him and "take a deep breath" because it's days like this that the reality of his disease really knocks me off my feet. I just read "littledebbies" message and it's all too real. I can't imagine life without my son, he is my sunshine, my light, my smiles, my everything. I can see his face, cute little feet..hear his annoying sounds he makes all day .....I never want to be without any of them. I take every moment I can and make it count with him.......life is too precious.

Please stop and take a moment just to give hugs and say I love yous. We do a zillion times a day. I always go to bed knowing he has the comfort of us telling each other our "good part of the day" and our " bad part of the day".

Happy Friday,
Vins Mom

 

[vinsmom]

Hi, it's been way too long since I've been on this site. Good in a way....my 8 year old son has been so healthy. His PFT's usually run around 95...what a shock when we went in twice now and they were down to 60. He looks great, plays, has energy but much to my surprise...here we are. I look at him and "take a deep breath" because it's days like this that the reality of his disease really knocks me off my feet. I just read "littledebbies" message and it's all too real. I can't imagine life without my son, he is my sunshine, my light, my smiles, my everything. I can see his face, cute little feet..hear his annoying sounds he makes all day .....I never want to be without any of them. I take every moment I can and make it count with him.......life is too precious.

Please stop and take a moment just to give hugs and say I love yous. We do a zillion times a day. I always go to bed knowing he has the comfort of us telling each other our "good part of the day" and our " bad part of the day".

Happy Friday,
Vins Mom

 

[vinsmom]

Hi, it's been way too long since I've been on this site. Good in a way....my 8 year old son has been so healthy. His PFT's usually run around 95...what a shock when we went in twice now and they were down to 60. He looks great, plays, has energy but much to my surprise...here we are. I look at him and "take a deep breath" because it's days like this that the reality of his disease really knocks me off my feet. I just read "littledebbies" message and it's all too real. I can't imagine life without my son, he is my sunshine, my light, my smiles, my everything. I can see his face, cute little feet..hear his annoying sounds he makes all day .....I never want to be without any of them. I take every moment I can and make it count with him.......life is too precious.

Please stop and take a moment just to give hugs and say I love yous. We do a zillion times a day. I always go to bed knowing he has the comfort of us telling each other our "good part of the day" and our " bad part of the day".

Happy Friday,
Vins Mom

 

[vinsmom]

Hi, it's been way too long since I've been on this site. Good in a way....my 8 year old son has been so healthy. His PFT's usually run around 95...what a shock when we went in twice now and they were down to 60. He looks great, plays, has energy but much to my surprise...here we are. I look at him and "take a deep breath" because it's days like this that the reality of his disease really knocks me off my feet. I just read "littledebbies" message and it's all too real. I can't imagine life without my son, he is my sunshine, my light, my smiles, my everything. I can see his face, cute little feet..hear his annoying sounds he makes all day .....I never want to be without any of them. I take every moment I can and make it count with him.......life is too precious.

Please stop and take a moment just to give hugs and say I love yous. We do a zillion times a day. I always go to bed knowing he has the comfort of us telling each other our "good part of the day" and our " bad part of the day".

Happy Friday,
Vins Mom

 

[vinsmom]

Hi, it's been way too long since I've been on this site. Good in a way....my 8 year old son has been so healthy. His PFT's usually run around 95...what a shock when we went in twice now and they were down to 60. He looks great, plays, has energy but much to my surprise...here we are. I look at him and "take a deep breath" because it's days like this that the reality of his disease really knocks me off my feet. I just read "littledebbies" message and it's all too real. I can't imagine life without my son, he is my sunshine, my light, my smiles, my everything. I can see his face, cute little feet..hear his annoying sounds he makes all day .....I never want to be without any of them. I take every moment I can and make it count with him.......life is too precious.

Please stop and take a moment just to give hugs and say I love yous. We do a zillion times a day. I always go to bed knowing he has the comfort of us telling each other our "good part of the day" and our " bad part of the day".

Happy Friday,
Vins Mom

 

[vinsmom]

Hi, it's been way too long since I've been on this site. Good in a way....my 8 year old son has been so healthy. His PFT's usually run around 95...what a shock when we went in twice now and they were down to 60. He looks great, plays, has energy but much to my surprise...here we are. I look at him and "take a deep breath" because it's days like this that the reality of his disease really knocks me off my feet. I just read "littledebbies" message and it's all too real. I can't imagine life without my son, he is my sunshine, my light, my smiles, my everything. I can see his face, cute little feet..hear his annoying sounds he makes all day .....I never want to be without any of them. I take every moment I can and make it count with him.......life is too precious.

Please stop and take a moment just to give hugs and say I love yous. We do a zillion times a day. I always go to bed knowing he has the comfort of us telling each other our "good part of the day" and our " bad part of the day".

Happy Friday,
Vins Mom

 

[blkmsmommy]

can anyone tell me what pfts are?

 

[blkmsmommy]

can anyone tell me what pfts are?

 

[blkmsmommy]

can anyone tell me what pfts are?

 

[blkmsmommy]

can anyone tell me what pfts are?

 

[blkmsmommy]

can anyone tell me what pfts are?

 

[blkmsmommy]

can anyone tell me what pfts are?

 

[hbollotte]

pulmonary function test. major thing to keep up with CF patients. the most looked at category is the FEV 1.

 

[hbollotte]

pulmonary function test. major thing to keep up with CF patients. the most looked at category is the FEV 1.

 

[hbollotte]

pulmonary function test. major thing to keep up with CF patients. the most looked at category is the FEV 1.

 

[hbollotte]

pulmonary function test. major thing to keep up with CF patients. the most looked at category is the FEV 1.

 

[hbollotte]

pulmonary function test. major thing to keep up with CF patients. the most looked at category is the FEV 1.

 

[hbollotte]

pulmonary function test. major thing to keep up with CF patients. the most looked at category is the FEV 1.

 

[AnD]

I'm so sorry his functions have dropped! Is he going in the hospital again? I will pray that he improves!

When my daughter has totally exasperated me, I look at her and remind myself that it would be a lot worse day if she wasn't around (she doesn't have cf, I do, but it took us 11 years to have her <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

 

[AnD]

I'm so sorry his functions have dropped! Is he going in the hospital again? I will pray that he improves!

When my daughter has totally exasperated me, I look at her and remind myself that it would be a lot worse day if she wasn't around (she doesn't have cf, I do, but it took us 11 years to have her <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).