Taking CF kids to Great Strides

R

Ratatosk

Administrator
Staff member
My problem is that I know DS will want to play on the playground equipment and last year I entrusted DS to my MIL and SIL because I'm on the walk committee with instructions to keep him away from the playground once it became a free-for-all and they didn't. Plus the local CF clinic actually encourages interaction between CFers "not an issue because none of their patients have cepacia" is what one of the doctors told us -- reason we don't go there anymore. So I got doubly nervous when the dietician made the comment about there being a LOT of kids there and she looked worried about it.

I also think about comments Kiwilady made in the adult forum a year or so ago. Prior to her getting cepacia she attended CF events and what sticks with me is her comment about sharing food -- digging into bags of unwrapped candy.... This year we've got donuts, pizza, cookies -- things that aren't individually wrapped. I think about park shelter with limited bathroom facilities -- is everyone washing their hands...?

I am going to feel weird about DS not being there this year. But just think it's probably for the best until he's a little older. We always have a bbq afterwards with friends, family and people from our walk team at our house afterwards. So they'll all get to see DS there.
 
A

angelsmom

New member
Thanks so much for the replies everyone. The more I think about it, the more inclined I am to leave her with friends for the day. I did that last year since she was younger and I wasn't sure what to expect. I know I will not be able to keep her off the playground so that is just not an option. It's not fair to dangle that carrot in front of her nose and tell her she can't play. She's only three and we don't really talk about CF with her but we do talk about germs and hand washing so she would get that part of it.

I am on the committee for my walk site but I have to say, we aren't much of a committee and I don't know very much about the teams who are walking and who might have CF. One of the women I have met has a 16 year old with CF who will be there, but my daughter would probably not be interacting with him.

I am thinking it may be best to leave her out of it again this year and wait until she is old enough to understand the purpose and the reasons for the precautions.

But part of me is mad that I "can't" take her.

Thanks to all.
 
A

angelsmom

New member
Thanks so much for the replies everyone. The more I think about it, the more inclined I am to leave her with friends for the day. I did that last year since she was younger and I wasn't sure what to expect. I know I will not be able to keep her off the playground so that is just not an option. It's not fair to dangle that carrot in front of her nose and tell her she can't play. She's only three and we don't really talk about CF with her but we do talk about germs and hand washing so she would get that part of it.

I am on the committee for my walk site but I have to say, we aren't much of a committee and I don't know very much about the teams who are walking and who might have CF. One of the women I have met has a 16 year old with CF who will be there, but my daughter would probably not be interacting with him.

I am thinking it may be best to leave her out of it again this year and wait until she is old enough to understand the purpose and the reasons for the precautions.

But part of me is mad that I "can't" take her.

Thanks to all.
 
A

angelsmom

New member
Thanks so much for the replies everyone. The more I think about it, the more inclined I am to leave her with friends for the day. I did that last year since she was younger and I wasn't sure what to expect. I know I will not be able to keep her off the playground so that is just not an option. It's not fair to dangle that carrot in front of her nose and tell her she can't play. She's only three and we don't really talk about CF with her but we do talk about germs and hand washing so she would get that part of it.

I am on the committee for my walk site but I have to say, we aren't much of a committee and I don't know very much about the teams who are walking and who might have CF. One of the women I have met has a 16 year old with CF who will be there, but my daughter would probably not be interacting with him.

I am thinking it may be best to leave her out of it again this year and wait until she is old enough to understand the purpose and the reasons for the precautions.

But part of me is mad that I "can't" take her.

Thanks to all.
 
J

Jane

Digital opinion leader
My kids have attended the Great STrides since day one. Our site does not have a playground though. My kids walk with our team and family and are not in contact with other CFers. We are very careful to remind them (now that they can understand) about staying clear and purel-ing often.
 
J

Jane

Digital opinion leader
My kids have attended the Great STrides since day one. Our site does not have a playground though. My kids walk with our team and family and are not in contact with other CFers. We are very careful to remind them (now that they can understand) about staying clear and purel-ing often.
 
J

Jane

Digital opinion leader
My kids have attended the Great STrides since day one. Our site does not have a playground though. My kids walk with our team and family and are not in contact with other CFers. We are very careful to remind them (now that they can understand) about staying clear and purel-ing often.
 
M

mneville

Guest
We thought about this awhile too. Our first year was easy- Aidan was only 7 months and was in the stroller or the RV sleeping. Last year we did wind up taking him. Here's why: we have over 125 people show up to walk for him and join Aidan's All Stars. All of the people want to meet him. Also we have our walk at a big open place by the ocean. Aidan doesn't go near people unless they are on our team- it is like a huge picnic of sorts. Our walk is actually quite big esp since Aidan has joined the ranks. The show of support is absolutley amazing! So we do take Aidan b/c I know we can adhere to the 3 ft rule.
Megan
 
M

mneville

Guest
We thought about this awhile too. Our first year was easy- Aidan was only 7 months and was in the stroller or the RV sleeping. Last year we did wind up taking him. Here's why: we have over 125 people show up to walk for him and join Aidan's All Stars. All of the people want to meet him. Also we have our walk at a big open place by the ocean. Aidan doesn't go near people unless they are on our team- it is like a huge picnic of sorts. Our walk is actually quite big esp since Aidan has joined the ranks. The show of support is absolutley amazing! So we do take Aidan b/c I know we can adhere to the 3 ft rule.
Megan
 
M

mneville

Guest
We thought about this awhile too. Our first year was easy- Aidan was only 7 months and was in the stroller or the RV sleeping. Last year we did wind up taking him. Here's why: we have over 125 people show up to walk for him and join Aidan's All Stars. All of the people want to meet him. Also we have our walk at a big open place by the ocean. Aidan doesn't go near people unless they are on our team- it is like a huge picnic of sorts. Our walk is actually quite big esp since Aidan has joined the ranks. The show of support is absolutley amazing! So we do take Aidan b/c I know we can adhere to the 3 ft rule.
Megan
 
M

mneville

Guest
We thought about this awhile too. Our first year was easy- Aidan was only 7 months and was in the stroller or the RV sleeping. Last year we did wind up taking him. Here's why: we have over 125 people show up to walk for him and join Aidan's All Stars. All of the people want to meet him. Also we have our walk at a big open place by the ocean. Aidan doesn't go near people unless they are on our team- it is like a huge picnic of sorts. Our walk is actually quite big esp since Aidan has joined the ranks. The show of support is absolutley amazing! So we do take Aidan b/c I know we can adhere to the 3 ft rule.
Megan
 
M

mneville

Guest
We thought about this awhile too. Our first year was easy- Aidan was only 7 months and was in the stroller or the RV sleeping. Last year we did wind up taking him. Here's why: we have over 125 people show up to walk for him and join Aidan's All Stars. All of the people want to meet him. Also we have our walk at a big open place by the ocean. Aidan doesn't go near people unless they are on our team- it is like a huge picnic of sorts. Our walk is actually quite big esp since Aidan has joined the ranks. The show of support is absolutley amazing! So we do take Aidan b/c I know we can adhere to the 3 ft rule.
Megan
 
M

mneville

Guest
We thought about this awhile too. Our first year was easy- Aidan was only 7 months and was in the stroller or the RV sleeping. Last year we did wind up taking him. Here's why: we have over 125 people show up to walk for him and join Aidan's All Stars. All of the people want to meet him. Also we have our walk at a big open place by the ocean. Aidan doesn't go near people unless they are on our team- it is like a huge picnic of sorts. Our walk is actually quite big esp since Aidan has joined the ranks. The show of support is absolutley amazing! So we do take Aidan b/c I know we can adhere to the 3 ft rule.
Megan
 
M

mneville

Guest
We thought about this awhile too. Our first year was easy- Aidan was only 7 months and was in the stroller or the RV sleeping. Last year we did wind up taking him. Here's why: we have over 125 people show up to walk for him and join Aidan's All Stars. All of the people want to meet him. Also we have our walk at a big open place by the ocean. Aidan doesn't go near people unless they are on our team- it is like a huge picnic of sorts. Our walk is actually quite big esp since Aidan has joined the ranks. The show of support is absolutley amazing! So we do take Aidan b/c I know we can adhere to the 3 ft rule.
Megan
 
M

mneville

Guest
We thought about this awhile too. Our first year was easy- Aidan was only 7 months and was in the stroller or the RV sleeping. Last year we did wind up taking him. Here's why: we have over 125 people show up to walk for him and join Aidan's All Stars. All of the people want to meet him. Also we have our walk at a big open place by the ocean. Aidan doesn't go near people unless they are on our team- it is like a huge picnic of sorts. Our walk is actually quite big esp since Aidan has joined the ranks. The show of support is absolutley amazing! So we do take Aidan b/c I know we can adhere to the 3 ft rule.
Megan
 
M

mneville

Guest
We thought about this awhile too. Our first year was easy- Aidan was only 7 months and was in the stroller or the RV sleeping. Last year we did wind up taking him. Here's why: we have over 125 people show up to walk for him and join Aidan's All Stars. All of the people want to meet him. Also we have our walk at a big open place by the ocean. Aidan doesn't go near people unless they are on our team- it is like a huge picnic of sorts. Our walk is actually quite big esp since Aidan has joined the ranks. The show of support is absolutley amazing! So we do take Aidan b/c I know we can adhere to the 3 ft rule.
Megan
 
S

sdelorenzo

Guest
My kids have attended great strides every year. It takes place in a very open area and our group stays away from other groups, so there hasn't been the chance for my kids to be around other cf kids. Now every year they ask for all of those with cf to come forward for a picture. Crazy idea, my kids don't go up there. Last year was a bit more challenging since Sophia was four. A few times she ran off, which gives her the chance to be exposed. If there was a playground, my kids would not be on it. And if it was hard to keep them off of it, we would leave and I would leave them home the next year.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
 
S

sdelorenzo

Guest
My kids have attended great strides every year. It takes place in a very open area and our group stays away from other groups, so there hasn't been the chance for my kids to be around other cf kids. Now every year they ask for all of those with cf to come forward for a picture. Crazy idea, my kids don't go up there. Last year was a bit more challenging since Sophia was four. A few times she ran off, which gives her the chance to be exposed. If there was a playground, my kids would not be on it. And if it was hard to keep them off of it, we would leave and I would leave them home the next year.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
 
S

sdelorenzo

Guest
My kids have attended great strides every year. It takes place in a very open area and our group stays away from other groups, so there hasn't been the chance for my kids to be around other cf kids. Now every year they ask for all of those with cf to come forward for a picture. Crazy idea, my kids don't go up there. Last year was a bit more challenging since Sophia was four. A few times she ran off, which gives her the chance to be exposed. If there was a playground, my kids would not be on it. And if it was hard to keep them off of it, we would leave and I would leave them home the next year.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
 
W

westonsmom

New member
Weston was in the hospital last year, so he didn't go. This year he is going, and he will go every year if he can. Our walk is small. Last year there were only two kids with CF. We did the walk and stayed away from the others. Most of the kids there were with our walking team. I figure at least they are outdoors and I want him to be a part of it. Our team name is Walking with Weston...it would be weird if he weren't there. That is my opinion though!
 
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