taking g-tube out

M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>PlumPerfect</b></i>

Ok call me crazy but have you looked into porta cath? it serves many purposes such as blood draw and access to IV through, no more PICC every visit it can last quit a while and you can also do food supplementing through. I am sure it would not be great for round the clock feeding but for that what if scenario it would suffice, especially in a hospital stay situation. It is placed below the clavicle or arm?, just a thought you may want to research and talk to your clinic.</end quote></div>

I disagree with this. Ports are important for some people, especially those who are on IVs many times a year. However, I would think the risk of infection (way more than a g-tube as its in your veins) would outweigh the benefit of TPN weight gain. Further, long term TPN can damage the liver -- an organ already being impacted by CF.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>PlumPerfect</b></i>

Ok call me crazy but have you looked into porta cath? it serves many purposes such as blood draw and access to IV through, no more PICC every visit it can last quit a while and you can also do food supplementing through. I am sure it would not be great for round the clock feeding but for that what if scenario it would suffice, especially in a hospital stay situation. It is placed below the clavicle or arm?, just a thought you may want to research and talk to your clinic.</end quote></div>

I disagree with this. Ports are important for some people, especially those who are on IVs many times a year. However, I would think the risk of infection (way more than a g-tube as its in your veins) would outweigh the benefit of TPN weight gain. Further, long term TPN can damage the liver -- an organ already being impacted by CF.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>PlumPerfect</b></i>

Ok call me crazy but have you looked into porta cath? it serves many purposes such as blood draw and access to IV through, no more PICC every visit it can last quit a while and you can also do food supplementing through. I am sure it would not be great for round the clock feeding but for that what if scenario it would suffice, especially in a hospital stay situation. It is placed below the clavicle or arm?, just a thought you may want to research and talk to your clinic.</end quote></div>

I disagree with this. Ports are important for some people, especially those who are on IVs many times a year. However, I would think the risk of infection (way more than a g-tube as its in your veins) would outweigh the benefit of TPN weight gain. Further, long term TPN can damage the liver -- an organ already being impacted by CF.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>PlumPerfect</b></i>

Ok call me crazy but have you looked into porta cath? it serves many purposes such as blood draw and access to IV through, no more PICC every visit it can last quit a while and you can also do food supplementing through. I am sure it would not be great for round the clock feeding but for that what if scenario it would suffice, especially in a hospital stay situation. It is placed below the clavicle or arm?, just a thought you may want to research and talk to your clinic.</end quote>

I disagree with this. Ports are important for some people, especially those who are on IVs many times a year. However, I would think the risk of infection (way more than a g-tube as its in your veins) would outweigh the benefit of TPN weight gain. Further, long term TPN can damage the liver -- an organ already being impacted by CF.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>PlumPerfect</b></i>
<br />
<br />Ok call me crazy but have you looked into porta cath? it serves many purposes such as blood draw and access to IV through, no more PICC every visit it can last quit a while and you can also do food supplementing through. I am sure it would not be great for round the clock feeding but for that what if scenario it would suffice, especially in a hospital stay situation. It is placed below the clavicle or arm?, just a thought you may want to research and talk to your clinic.</end quote>
<br />
<br />I disagree with this. Ports are important for some people, especially those who are on IVs many times a year. However, I would think the risk of infection (way more than a g-tube as its in your veins) would outweigh the benefit of TPN weight gain. Further, long term TPN can damage the liver -- an organ already being impacted by CF.
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L

LouLou

New member
Yes Port feeding with TPN is not a long terms solution. Thanks for responding Heather.

The real reason I am posting is to ask what portion of her food is formula or breastmilk still? Once she transitions to solids completely she may have difficulty maintaining her weight. Add that to the complication of a picky toddler and I'd suggest keeping it until she is 3...but I don't know how these things work. Perhaps it would HAVE to be used on a regular basis and then in that case I guess you have to decide can she get a little supplment on a regular basis or what. It might be a nice security blanket for you mom & dad. Although creative cooking and food preparation may work too if it's just pickiness we're talking about through the next year and not malnutrition. Does she seem to do well digesting her food as long as she takes enzymes? All things to consider.
 
L

LouLou

New member
Yes Port feeding with TPN is not a long terms solution. Thanks for responding Heather.

The real reason I am posting is to ask what portion of her food is formula or breastmilk still? Once she transitions to solids completely she may have difficulty maintaining her weight. Add that to the complication of a picky toddler and I'd suggest keeping it until she is 3...but I don't know how these things work. Perhaps it would HAVE to be used on a regular basis and then in that case I guess you have to decide can she get a little supplment on a regular basis or what. It might be a nice security blanket for you mom & dad. Although creative cooking and food preparation may work too if it's just pickiness we're talking about through the next year and not malnutrition. Does she seem to do well digesting her food as long as she takes enzymes? All things to consider.
 
L

LouLou

New member
Yes Port feeding with TPN is not a long terms solution. Thanks for responding Heather.

The real reason I am posting is to ask what portion of her food is formula or breastmilk still? Once she transitions to solids completely she may have difficulty maintaining her weight. Add that to the complication of a picky toddler and I'd suggest keeping it until she is 3...but I don't know how these things work. Perhaps it would HAVE to be used on a regular basis and then in that case I guess you have to decide can she get a little supplment on a regular basis or what. It might be a nice security blanket for you mom & dad. Although creative cooking and food preparation may work too if it's just pickiness we're talking about through the next year and not malnutrition. Does she seem to do well digesting her food as long as she takes enzymes? All things to consider.
 
L

LouLou

New member
Yes Port feeding with TPN is not a long terms solution. Thanks for responding Heather.

The real reason I am posting is to ask what portion of her food is formula or breastmilk still? Once she transitions to solids completely she may have difficulty maintaining her weight. Add that to the complication of a picky toddler and I'd suggest keeping it until she is 3...but I don't know how these things work. Perhaps it would HAVE to be used on a regular basis and then in that case I guess you have to decide can she get a little supplment on a regular basis or what. It might be a nice security blanket for you mom & dad. Although creative cooking and food preparation may work too if it's just pickiness we're talking about through the next year and not malnutrition. Does she seem to do well digesting her food as long as she takes enzymes? All things to consider.
 
L

LouLou

New member
Yes Port feeding with TPN is not a long terms solution. Thanks for responding Heather.
<br />
<br />The real reason I am posting is to ask what portion of her food is formula or breastmilk still? Once she transitions to solids completely she may have difficulty maintaining her weight. Add that to the complication of a picky toddler and I'd suggest keeping it until she is 3...but I don't know how these things work. Perhaps it would HAVE to be used on a regular basis and then in that case I guess you have to decide can she get a little supplment on a regular basis or what. It might be a nice security blanket for you mom & dad. Although creative cooking and food preparation may work too if it's just pickiness we're talking about through the next year and not malnutrition. Does she seem to do well digesting her food as long as she takes enzymes? All things to consider.
 
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