Technology coming soon: Rent your data!

I

Imogene

Administrator
We have 85 participants! The 75th participants is from north central USA and received a $25.00 Gift Card!

$25.00 for 100th and 125th participants.
Keep this rolling as I am preparing for the conference in Scotland!
Bringing your voices!
Salt and Light,
Jeanne
 
I

Imogene

Administrator
135~

Wow ! You are psyched! 50 people took the survey since Monday afternoon!
The 100th participant is from PA and the 125th participant is from Wisconsin. Both received $25.00 Amazon Gift Cards.

The 150th, 175th, and 200th will also receive Gift Cards.

Let's keep it rolling

If you haven't taken the survey, please take it! I'm bringing your voices to Glasgow in November: www.ieee.org Clinical Trials and Blockchain!

Blockchain and Clinical Trials Survey


Salt and Light,
Imogene
 
I

Imogene

Administrator
So Grateful! 193 Participants. Closing at 200! And the 175th participant was from Germany. Hopefully, they received a 25 euro card from amazon.de! It was my first time trying...
Thanks to all!
I have so much of your good words and survey results to bring to Glasgow and beyond.
I will share my talk with you of course!

Wish me well as I continue this important work! Patients owning their data and being able to bring it to market! if they so wish.

Looking for the last few to take the survey:
Blockchain and Clinical Trials Survey


You are amazing! It is all so impressive.

Salt and Light,
Imogene
 
I

Imogene

Administrator
I will be on my way to Glasgow! This is the "kickoff": Patients renting their data. This is "in line" with the GDPR which is a "tidal wave" as member Koen Vingerhoets states!
I am bringing the data from the recent surveys! "Discovery, Research, and Profit" and "
Blockchain for Clinical Trials".
You are on my mind and in my presentation!
Your voices are LOUD!
I will be reporting!
I have been invited to Yale, Washington, Berlin, California, Canada, and Japan!
We are raising a "stir".

Salt and light,
Imogene
 
I

Imogene

Administrator
My presentation is almost ready! I speak in Glasgow next week! Bockchain for Clinical Trials: https://blockchain.ieee.org/standards/clinicaltrialseurope18
In Europe it is a LAW that people control their own data. Blockchain is the technology to keep the data private and turn it into information!
I am bringing all of you...1200 + responded to our surveys!
Pharma, Biotech, Engineers and Scientists will be there!
You have the clout!
Let's begin this exciting process of patients being able to rent your data!
More to come...
Salt and Light,
Imogene
 
I

Imogene

Administrator
Leaving tomorrow! On a jet plane...carrying all your important surveys!
More to come!
Data turning to information you can RENT?!!!
 
I

Imogene

Administrator
I am back from a very successful trip to Glasgow to speak at the ieee.org conference on Blockchain for Clinical Trials.
Lots of positive feedback.
I brought YOU the Patients and Caregivers. I brought the surveys and all your comments!
Who was there?
Pharma: Novartis, Roche, Vertex, UCB, along with Technology, Marketing, Engineers, Blockchain experts.

We were the only patient community represented and I asked questions throughout the presentations.
How are they representing patients?
How will they pay patients for their data?
What does the GDPR mean for patients?
When will this be available?

More to come...
Salt and Light,
Jeanne
 
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