Teens and Meds

valshingle

New member
My daughter says "What's the point? I'm going to die anyway." I remind her that could be many years away (she has PFT's that range from 85-93 when she takes care of herself, 68-79 when she doesn't). She's so bitter and I only seem to aggravate her.
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nmw615

New member
I think it's just something a lot of CFs have to go through. It's hard growing up having to do all these treatments, and knowing that as you grow up, the probability that even more treatments will be added on. Add normal things people go through growing up and in some twisted way, wanting to choose to make something stop makes sense.

I also found that talking to someone completely outside the situation helped. It was hard talking to my friends, because as much as they wanted to understand, they couldn't, and it would only annoy my when the agreed with me, like they did know. My parents were obviously biased in really only wanting to think about the good the future holds, not the bad.

I hope all of your daughters come to the realization that as suckish a CF life can be, it's worth it to make it as good as it can be.
 

nmw615

New member
I think it's just something a lot of CFs have to go through. It's hard growing up having to do all these treatments, and knowing that as you grow up, the probability that even more treatments will be added on. Add normal things people go through growing up and in some twisted way, wanting to choose to make something stop makes sense.

I also found that talking to someone completely outside the situation helped. It was hard talking to my friends, because as much as they wanted to understand, they couldn't, and it would only annoy my when the agreed with me, like they did know. My parents were obviously biased in really only wanting to think about the good the future holds, not the bad.

I hope all of your daughters come to the realization that as suckish a CF life can be, it's worth it to make it as good as it can be.
 

nmw615

New member
I think it's just something a lot of CFs have to go through. It's hard growing up having to do all these treatments, and knowing that as you grow up, the probability that even more treatments will be added on. Add normal things people go through growing up and in some twisted way, wanting to choose to make something stop makes sense.
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<br />I also found that talking to someone completely outside the situation helped. It was hard talking to my friends, because as much as they wanted to understand, they couldn't, and it would only annoy my when the agreed with me, like they did know. My parents were obviously biased in really only wanting to think about the good the future holds, not the bad.
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<br />I hope all of your daughters come to the realization that as suckish a CF life can be, it's worth it to make it as good as it can be.
 

bigstar

New member
We all gonna die eventually both CFers and Non cfers <img src="i/expressions/face-icon-small-happy.gif" border="0">. The point is how good our life is. How easy. How happy. How healthy in that case! Dont forget that!!!
 

bigstar

New member
We all gonna die eventually both CFers and Non cfers <img src="i/expressions/face-icon-small-happy.gif" border="0">. The point is how good our life is. How easy. How happy. How healthy in that case! Dont forget that!!!
 

bigstar

New member
We all gonna die eventually both CFers and Non cfers <img src="i/expressions/face-icon-small-happy.gif" border="0">. The point is how good our life is. How easy. How happy. How healthy in that case! Dont forget that!!!
 

Cojean62

New member
I take my medicines after being told again and again. But lately I have been doing it on my own time and I even take my pills in front of people at school. They think I am a drug addict but I do not care.
 

Cojean62

New member
I take my medicines after being told again and again. But lately I have been doing it on my own time and I even take my pills in front of people at school. They think I am a drug addict but I do not care.
 

Cojean62

New member
I take my medicines after being told again and again. But lately I have been doing it on my own time and I even take my pills in front of people at school. They think I am a drug addict but I do not care.
 

jCFsmith

New member
I do the exact same thing. I'm not sure why, but I just do. But most of the time, when I start to get sick, I will start doing them correctly again. But after I'm better, I will do it again... its weird. I'm doing them a lot more now, ever since my doctor got us in the process for a lung transplant... But I still have those times when I just dont want to do them.
 

jCFsmith

New member
I do the exact same thing. I'm not sure why, but I just do. But most of the time, when I start to get sick, I will start doing them correctly again. But after I'm better, I will do it again... its weird. I'm doing them a lot more now, ever since my doctor got us in the process for a lung transplant... But I still have those times when I just dont want to do them.
 

jCFsmith

New member
I do the exact same thing. I'm not sure why, but I just do. But most of the time, when I start to get sick, I will start doing them correctly again. But after I'm better, I will do it again... its weird. I'm doing them a lot more now, ever since my doctor got us in the process for a lung transplant... But I still have those times when I just dont want to do them.
 
A

Alyssaaaaxo

Guest
I went through the same thing for A LONG time. I feel it's completely normal. It's taken me about 4 years to fully grasp the reality of CF and how important meds and treatments are. I also went of to college this year and had a terrible year cause I didn't do treatments. i think that CFers just have to learn the lessons on their own by getting sick. After my numbers went down to 22% this summer and talking about a lung transplant is whe nI finally realized "hey I have CF and I can either die or I can can take my meds and do my treatments and live a wonderful life" It's all about rial and error for us.
 
A

Alyssaaaaxo

Guest
I went through the same thing for A LONG time. I feel it's completely normal. It's taken me about 4 years to fully grasp the reality of CF and how important meds and treatments are. I also went of to college this year and had a terrible year cause I didn't do treatments. i think that CFers just have to learn the lessons on their own by getting sick. After my numbers went down to 22% this summer and talking about a lung transplant is whe nI finally realized "hey I have CF and I can either die or I can can take my meds and do my treatments and live a wonderful life" It's all about rial and error for us.
 
A

Alyssaaaaxo

Guest
I went through the same thing for A LONG time. I feel it's completely normal. It's taken me about 4 years to fully grasp the reality of CF and how important meds and treatments are. I also went of to college this year and had a terrible year cause I didn't do treatments. i think that CFers just have to learn the lessons on their own by getting sick. After my numbers went down to 22% this summer and talking about a lung transplant is whe nI finally realized "hey I have CF and I can either die or I can can take my meds and do my treatments and live a wonderful life" It's all about rial and error for us.
 
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