L
luke
Guest
Mom,
I was never bitter as a child with CF; I do feel that I am a much more mentally healthy adult than I was a teen though. I am sure that my case is not an isolated one...but my mother reveled in the fact that I was sick. Not that she had Munchausen or anything, but she sure did seem to enjoy talking about my disease. See my mother, who I know longer speak to by the way, had her own issues. She thrived for attention and would get it anyway possible. I can remember her talking about how sick I was and how I would only live another year while sitting right beside me in the hospital. She actually had my grandfather (since past, who I loved very much) buy my burial plot before I was 5. My father, he's not getting any awards either, chewed her out over that one (they divorced when I was 2)! I wasn't allowed to things kids my age were allowed to; like playing football or baseball or even be in cub scouts because I was too sick! So what I am trying to say here is this. There is a line...a line between too much and not enough support. The trick is that CF becomes almost "normal" to us, it is just life. Taking a neb treatment to us is as routine as you tying your shoes. As big of an issue the treatment of CF is it can not get in the way of living. When CF gets in the way of living, bitterness may set in.
Example: look at Coll's pic's dancing with her PICC line in, who do you think is winning, her or CF?
Luke 29/cf, 3 days to go
P.S. Sorry to throw that baggage out there, my situation was a strange one. I wish my parents were good enough to actually care about my happiness like you appear to do!
I was never bitter as a child with CF; I do feel that I am a much more mentally healthy adult than I was a teen though. I am sure that my case is not an isolated one...but my mother reveled in the fact that I was sick. Not that she had Munchausen or anything, but she sure did seem to enjoy talking about my disease. See my mother, who I know longer speak to by the way, had her own issues. She thrived for attention and would get it anyway possible. I can remember her talking about how sick I was and how I would only live another year while sitting right beside me in the hospital. She actually had my grandfather (since past, who I loved very much) buy my burial plot before I was 5. My father, he's not getting any awards either, chewed her out over that one (they divorced when I was 2)! I wasn't allowed to things kids my age were allowed to; like playing football or baseball or even be in cub scouts because I was too sick! So what I am trying to say here is this. There is a line...a line between too much and not enough support. The trick is that CF becomes almost "normal" to us, it is just life. Taking a neb treatment to us is as routine as you tying your shoes. As big of an issue the treatment of CF is it can not get in the way of living. When CF gets in the way of living, bitterness may set in.
Example: look at Coll's pic's dancing with her PICC line in, who do you think is winning, her or CF?
Luke 29/cf, 3 days to go
P.S. Sorry to throw that baggage out there, my situation was a strange one. I wish my parents were good enough to actually care about my happiness like you appear to do!