terrible pain in my intestines!??

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Mallymookcf

New member
thank u all for your comments... i have gone poop <img src="i/expressions/face-icon-small-smile.gif" border="0"> many times since they released me, but still terrible stabbing like pain in left side...i kinda thought taht too that if i am pooping that maybe it wouldnt be possible for it to be kinked or twisted..mmmm well tom. morning i have an appt. with a gastro. doc. i hope he can figure out why my stomach is so destended (like im 5 months prego) haha! and the pain still being there. i will update. whoo i pray he can figure something out. also i just got on creon enzymes after 24 years of being on ultrase and pancrease..i wonder if this could be part of my issue? what do u think? by the way..to thelostmiler: i noticed u have burkholderia cepatia and mycobacterium abcessus and pseudomonas...those r the three that i culture out as well...i havent known anyone that has had the abcessus before...when i was treated for it my senior yr of highschool my doc. couldnt find hardly anyone else with it... thought that was interesting when i saw that under ur name! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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colinmaydahl

New member
I was on the Ultrace for 15+ years and am now on the Creaon enzimes and like them much more, I've been on IV's for almost 4 weeks and havent lotst any lbs.

Colin
 
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colinmaydahl

New member
I was on the Ultrace for 15+ years and am now on the Creaon enzimes and like them much more, I've been on IV's for almost 4 weeks and havent lotst any lbs.

Colin
 
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colinmaydahl

New member
I was on the Ultrace for 15+ years and am now on the Creaon enzimes and like them much more, I've been on IV's for almost 4 weeks and havent lotst any lbs.
<br />
<br />Colin
 
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mariahsmommy

New member
My daughter had an adhesion at 3 months old and completely stopped pooping and her stomach grew like an inch an hour. It all happened so fast. I am glad to hear you are pooping, and hoping your pain will go away.
 
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mariahsmommy

New member
My daughter had an adhesion at 3 months old and completely stopped pooping and her stomach grew like an inch an hour. It all happened so fast. I am glad to hear you are pooping, and hoping your pain will go away.
 
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mariahsmommy

New member
My daughter had an adhesion at 3 months old and completely stopped pooping and her stomach grew like an inch an hour. It all happened so fast. I am glad to hear you are pooping, and hoping your pain will go away.
 
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theLostMiler

New member
hmm i wonder if you have gall bladder issues? My fiancess mom was having gall bladder issues and she I think was having pooping problems... she had to take golytly and stuff for it... And I think the gall bladder is on the left side with the liver.

I havent met anyone with my combinations yet! I am kinda excited to have met someone haha. We should compare notes <img src="i/expressions/face-icon-small-smile.gif" border="0"> I am amazed that you are able to have a child! I am struggling with these combinations! Where do you live? (I ask b/c I wonder what center you go to and stuff. I am pretty much inspired right now! Thanks I have noticed more people have MA though.

I starting culturing MA the middle of my soph year of college... or at least thats when they found it. I feel I got it while living in my fresh dorm from the shower head but I wasnt being checked for it until I they said I had it (It was my first culture that they finally did the right process on that I did have it.. if that makes sense)

anyways, maybe bring up the gall bladder, I imagine they already checked it but you never know right? It couldnt hurt to ask them to explain out why it could or couldnt be the potential problem...
 
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theLostMiler

New member
hmm i wonder if you have gall bladder issues? My fiancess mom was having gall bladder issues and she I think was having pooping problems... she had to take golytly and stuff for it... And I think the gall bladder is on the left side with the liver.

I havent met anyone with my combinations yet! I am kinda excited to have met someone haha. We should compare notes <img src="i/expressions/face-icon-small-smile.gif" border="0"> I am amazed that you are able to have a child! I am struggling with these combinations! Where do you live? (I ask b/c I wonder what center you go to and stuff. I am pretty much inspired right now! Thanks I have noticed more people have MA though.

I starting culturing MA the middle of my soph year of college... or at least thats when they found it. I feel I got it while living in my fresh dorm from the shower head but I wasnt being checked for it until I they said I had it (It was my first culture that they finally did the right process on that I did have it.. if that makes sense)

anyways, maybe bring up the gall bladder, I imagine they already checked it but you never know right? It couldnt hurt to ask them to explain out why it could or couldnt be the potential problem...
 
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theLostMiler

New member
hmm i wonder if you have gall bladder issues? My fiancess mom was having gall bladder issues and she I think was having pooping problems... she had to take golytly and stuff for it... And I think the gall bladder is on the left side with the liver.
<br />
<br />I havent met anyone with my combinations yet! I am kinda excited to have met someone haha. We should compare notes <img src="i/expressions/face-icon-small-smile.gif" border="0"> I am amazed that you are able to have a child! I am struggling with these combinations! Where do you live? (I ask b/c I wonder what center you go to and stuff. I am pretty much inspired right now! Thanks I have noticed more people have MA though.
<br />
<br />I starting culturing MA the middle of my soph year of college... or at least thats when they found it. I feel I got it while living in my fresh dorm from the shower head but I wasnt being checked for it until I they said I had it (It was my first culture that they finally did the right process on that I did have it.. if that makes sense)
<br />
<br />anyways, maybe bring up the gall bladder, I imagine they already checked it but you never know right? It couldnt hurt to ask them to explain out why it could or couldnt be the potential problem...
 
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Mallymookcf

New member
i will definityly ask about my gallbladder and see if this could be causing my symptoms...i have heard alot of people liking creon..so hopefully thats not what is giving me problems and i can see if they work better for me as well...(especially since i just bought a huge supply before this all happend) ha!

i know i am exited too( in a wierd kinda c.f. way) that someone else cultures out all the same junk...unfortunately i wish niether one of us had to deal with these things..but since we do it is nice to feel like your not alone. We should definitly compare notes, history, symptoms,treatments, etc..i am super interested... you also suffer from hemoptysis too huh? i thought i rem. u posting about it once and i responded. i live in TN, and go to the cf clinic at vanderbilt hospital in nashville, tn.. pm me and we can talk a bunch!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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Mallymookcf

New member
i will definityly ask about my gallbladder and see if this could be causing my symptoms...i have heard alot of people liking creon..so hopefully thats not what is giving me problems and i can see if they work better for me as well...(especially since i just bought a huge supply before this all happend) ha!

i know i am exited too( in a wierd kinda c.f. way) that someone else cultures out all the same junk...unfortunately i wish niether one of us had to deal with these things..but since we do it is nice to feel like your not alone. We should definitly compare notes, history, symptoms,treatments, etc..i am super interested... you also suffer from hemoptysis too huh? i thought i rem. u posting about it once and i responded. i live in TN, and go to the cf clinic at vanderbilt hospital in nashville, tn.. pm me and we can talk a bunch!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
M

Mallymookcf

New member
i will definityly ask about my gallbladder and see if this could be causing my symptoms...i have heard alot of people liking creon..so hopefully thats not what is giving me problems and i can see if they work better for me as well...(especially since i just bought a huge supply before this all happend) ha!
<br />
<br />i know i am exited too( in a wierd kinda c.f. way) that someone else cultures out all the same junk...unfortunately i wish niether one of us had to deal with these things..but since we do it is nice to feel like your not alone. We should definitly compare notes, history, symptoms,treatments, etc..i am super interested... you also suffer from hemoptysis too huh? i thought i rem. u posting about it once and i responded. i live in TN, and go to the cf clinic at vanderbilt hospital in nashville, tn.. pm me and we can talk a bunch!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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