Terrible, TERRIBLE CF Clinic!

I'm always complaining about my daughter's CF clinic. The place is a <b>JOKE!</b> My newest problem with them??... My daughter started coughing really bad, all the time so I brought her to her CF Clinic... In Portland, Maine TWICE to have them check on her and culture her. The only thing they ever do is throw her right on antibiotics. It's their answer to everything.
Well, I went there last week with her, (this time because of her weight) and one of the doctor's was asking me about her latest culture that showed she grew pseudomonas. This was new to me... I had NO clue that Laci grew back psedomonas. She hasn't had it since she was 4 months old! So apparetly, her culture showed pseudomonas and it was just kind of pushed aside and ignored. Nobody ever called me to letme know, no body started her on any new medications.
It's disgraceful! I'm desperately trying to get her into the Boston clinic now. Like I said.. the place is a JOKE! After everything that they've pulled, I cannot believe their even allowed to still treat people. Or should I say, give their attempt to treat people. Pathetic!
 
I'm always complaining about my daughter's CF clinic. The place is a <b>JOKE!</b> My newest problem with them??... My daughter started coughing really bad, all the time so I brought her to her CF Clinic... In Portland, Maine TWICE to have them check on her and culture her. The only thing they ever do is throw her right on antibiotics. It's their answer to everything.
Well, I went there last week with her, (this time because of her weight) and one of the doctor's was asking me about her latest culture that showed she grew pseudomonas. This was new to me... I had NO clue that Laci grew back psedomonas. She hasn't had it since she was 4 months old! So apparetly, her culture showed pseudomonas and it was just kind of pushed aside and ignored. Nobody ever called me to letme know, no body started her on any new medications.
It's disgraceful! I'm desperately trying to get her into the Boston clinic now. Like I said.. the place is a JOKE! After everything that they've pulled, I cannot believe their even allowed to still treat people. Or should I say, give their attempt to treat people. Pathetic!
 
I'm always complaining about my daughter's CF clinic. The place is a <b>JOKE!</b> My newest problem with them??... My daughter started coughing really bad, all the time so I brought her to her CF Clinic... In Portland, Maine TWICE to have them check on her and culture her. The only thing they ever do is throw her right on antibiotics. It's their answer to everything.
Well, I went there last week with her, (this time because of her weight) and one of the doctor's was asking me about her latest culture that showed she grew pseudomonas. This was new to me... I had NO clue that Laci grew back psedomonas. She hasn't had it since she was 4 months old! So apparetly, her culture showed pseudomonas and it was just kind of pushed aside and ignored. Nobody ever called me to letme know, no body started her on any new medications.
It's disgraceful! I'm desperately trying to get her into the Boston clinic now. Like I said.. the place is a JOKE! After everything that they've pulled, I cannot believe their even allowed to still treat people. Or should I say, give their attempt to treat people. Pathetic!
 
I'm always complaining about my daughter's CF clinic. The place is a <b>JOKE!</b> My newest problem with them??... My daughter started coughing really bad, all the time so I brought her to her CF Clinic... In Portland, Maine TWICE to have them check on her and culture her. The only thing they ever do is throw her right on antibiotics. It's their answer to everything.
Well, I went there last week with her, (this time because of her weight) and one of the doctor's was asking me about her latest culture that showed she grew pseudomonas. This was new to me... I had NO clue that Laci grew back psedomonas. She hasn't had it since she was 4 months old! So apparetly, her culture showed pseudomonas and it was just kind of pushed aside and ignored. Nobody ever called me to letme know, no body started her on any new medications.
It's disgraceful! I'm desperately trying to get her into the Boston clinic now. Like I said.. the place is a JOKE! After everything that they've pulled, I cannot believe their even allowed to still treat people. Or should I say, give their attempt to treat people. Pathetic!
 
I'm always complaining about my daughter's CF clinic. The place is a <b>JOKE!</b> My newest problem with them??... My daughter started coughing really bad, all the time so I brought her to her CF Clinic... In Portland, Maine TWICE to have them check on her and culture her. The only thing they ever do is throw her right on antibiotics. It's their answer to everything.
<br />Well, I went there last week with her, (this time because of her weight) and one of the doctor's was asking me about her latest culture that showed she grew pseudomonas. This was new to me... I had NO clue that Laci grew back psedomonas. She hasn't had it since she was 4 months old! So apparetly, her culture showed pseudomonas and it was just kind of pushed aside and ignored. Nobody ever called me to letme know, no body started her on any new medications.
<br />It's disgraceful! I'm desperately trying to get her into the Boston clinic now. Like I said.. the place is a JOKE! After everything that they've pulled, I cannot believe their even allowed to still treat people. Or should I say, give their attempt to treat people. Pathetic!
 

BabyBeauty

New member
I am so sorry about your clinic! You have to do what is right for your child. Don't think twice about switching!!!
 

BabyBeauty

New member
I am so sorry about your clinic! You have to do what is right for your child. Don't think twice about switching!!!
 

BabyBeauty

New member
I am so sorry about your clinic! You have to do what is right for your child. Don't think twice about switching!!!
 

BabyBeauty

New member
I am so sorry about your clinic! You have to do what is right for your child. Don't think twice about switching!!!
 

JazzysMom

New member
This is just wrong! Is the one in ??? an accredited CF Center? IF so....I would let the CFF know because other CFers are at risk as well.

Advocate & ?? things even at the best centers, but IMHO you need to switch for sure!

Good Luck! BTW did they finally put your little on something NOW that you know about the pseudomonas?
 

JazzysMom

New member
This is just wrong! Is the one in ??? an accredited CF Center? IF so....I would let the CFF know because other CFers are at risk as well.

Advocate & ?? things even at the best centers, but IMHO you need to switch for sure!

Good Luck! BTW did they finally put your little on something NOW that you know about the pseudomonas?
 

JazzysMom

New member
This is just wrong! Is the one in ??? an accredited CF Center? IF so....I would let the CFF know because other CFers are at risk as well.

Advocate & ?? things even at the best centers, but IMHO you need to switch for sure!

Good Luck! BTW did they finally put your little on something NOW that you know about the pseudomonas?
 

JazzysMom

New member
This is just wrong! Is the one in ??? an accredited CF Center? IF so....I would let the CFF know because other CFers are at risk as well.

Advocate & ?? things even at the best centers, but IMHO you need to switch for sure!

Good Luck! BTW did they finally put your little on something NOW that you know about the pseudomonas?
 

JazzysMom

New member
This is just wrong! Is the one in ??? an accredited CF Center? IF so....I would let the CFF know because other CFers are at risk as well.
<br />
<br />Advocate & ?? things even at the best centers, but IMHO you need to switch for sure!
<br />
<br />Good Luck! BTW did they finally put your little on something NOW that you know about the pseudomonas?
<br />
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