Test results and Nissen surgery

asiewny · Jul 2, 2009

Hi everyone! Just wanted to keep you updated about my son. His upper GI and endoscopy results came back and it showed that he has inflammation in his esophagus consistent with reflux. The biopsy showed basal cells and eosinophil cells and the DR. said that his esophagus was very sensitive to the scope and was irritated just by the scope. They also found a hiatal hernia. So, the GI dr. referred us to a surgeon for the Nissen surgery. I am still perplexed that he had a high borderline sweat test, is failure to thrive, but did not have any CF genes come up on the genetic test. I just want to make sure that we make the right decision about this surgery because it sounds so invasive. If the reflux is part of the reason he is failure to thrive and will just get worse, than I definitely think we should do it. The other thing that is perplexing about his case is that he has an enormous appetite, but doesn't gain weight. His stool elastase was normal. I talked to the DR. yesterday and she said that sometimes they treat some patients "as if" they have CF and talked about giving him enzymes. She is supposed to call me back today after she talked with the CF dr. I am a little afraid of doing the surgery, but if I knew for sure it was going to help him thrive and grow, I will do it in a heartbeat. I just want him to be healthy and LOOK healty. On the other hand, if he only has reflux that is not associated with the FTT or CF, I don't know if it is worth the risk. I am wondering if the DR.'s have conflicting oppinions about his case-pulmo says no CF, but GI is telling me positive sweat test and recommends the Nissen surgery and possibly enzymes.
Have any of you had experience with the nissen sugery for reflux? Do they do this surgery on children without CF?
I appreciate your support! Thanks!
Alison

asiewny · Jul 2, 2009

Hi everyone! Just wanted to keep you updated about my son. His upper GI and endoscopy results came back and it showed that he has inflammation in his esophagus consistent with reflux. The biopsy showed basal cells and eosinophil cells and the DR. said that his esophagus was very sensitive to the scope and was irritated just by the scope. They also found a hiatal hernia. So, the GI dr. referred us to a surgeon for the Nissen surgery. I am still perplexed that he had a high borderline sweat test, is failure to thrive, but did not have any CF genes come up on the genetic test. I just want to make sure that we make the right decision about this surgery because it sounds so invasive. If the reflux is part of the reason he is failure to thrive and will just get worse, than I definitely think we should do it. The other thing that is perplexing about his case is that he has an enormous appetite, but doesn't gain weight. His stool elastase was normal. I talked to the DR. yesterday and she said that sometimes they treat some patients "as if" they have CF and talked about giving him enzymes. She is supposed to call me back today after she talked with the CF dr. I am a little afraid of doing the surgery, but if I knew for sure it was going to help him thrive and grow, I will do it in a heartbeat. I just want him to be healthy and LOOK healty. On the other hand, if he only has reflux that is not associated with the FTT or CF, I don't know if it is worth the risk. I am wondering if the DR.'s have conflicting oppinions about his case-pulmo says no CF, but GI is telling me positive sweat test and recommends the Nissen surgery and possibly enzymes.
Have any of you had experience with the nissen sugery for reflux? Do they do this surgery on children without CF?
I appreciate your support! Thanks!
Alison

asiewny · Jul 2, 2009

Hi everyone! Just wanted to keep you updated about my son. His upper GI and endoscopy results came back and it showed that he has inflammation in his esophagus consistent with reflux. The biopsy showed basal cells and eosinophil cells and the DR. said that his esophagus was very sensitive to the scope and was irritated just by the scope. They also found a hiatal hernia. So, the GI dr. referred us to a surgeon for the Nissen surgery. I am still perplexed that he had a high borderline sweat test, is failure to thrive, but did not have any CF genes come up on the genetic test. I just want to make sure that we make the right decision about this surgery because it sounds so invasive. If the reflux is part of the reason he is failure to thrive and will just get worse, than I definitely think we should do it. The other thing that is perplexing about his case is that he has an enormous appetite, but doesn't gain weight. His stool elastase was normal. I talked to the DR. yesterday and she said that sometimes they treat some patients "as if" they have CF and talked about giving him enzymes. She is supposed to call me back today after she talked with the CF dr. I am a little afraid of doing the surgery, but if I knew for sure it was going to help him thrive and grow, I will do it in a heartbeat. I just want him to be healthy and LOOK healty. On the other hand, if he only has reflux that is not associated with the FTT or CF, I don't know if it is worth the risk. I am wondering if the DR.'s have conflicting oppinions about his case-pulmo says no CF, but GI is telling me positive sweat test and recommends the Nissen surgery and possibly enzymes.
Have any of you had experience with the nissen sugery for reflux? Do they do this surgery on children without CF?
I appreciate your support! Thanks!
Alison

asiewny · Jul 2, 2009

Hi everyone! Just wanted to keep you updated about my son. His upper GI and endoscopy results came back and it showed that he has inflammation in his esophagus consistent with reflux. The biopsy showed basal cells and eosinophil cells and the DR. said that his esophagus was very sensitive to the scope and was irritated just by the scope. They also found a hiatal hernia. So, the GI dr. referred us to a surgeon for the Nissen surgery. I am still perplexed that he had a high borderline sweat test, is failure to thrive, but did not have any CF genes come up on the genetic test. I just want to make sure that we make the right decision about this surgery because it sounds so invasive. If the reflux is part of the reason he is failure to thrive and will just get worse, than I definitely think we should do it. The other thing that is perplexing about his case is that he has an enormous appetite, but doesn't gain weight. His stool elastase was normal. I talked to the DR. yesterday and she said that sometimes they treat some patients "as if" they have CF and talked about giving him enzymes. She is supposed to call me back today after she talked with the CF dr. I am a little afraid of doing the surgery, but if I knew for sure it was going to help him thrive and grow, I will do it in a heartbeat. I just want him to be healthy and LOOK healty. On the other hand, if he only has reflux that is not associated with the FTT or CF, I don't know if it is worth the risk. I am wondering if the DR.'s have conflicting oppinions about his case-pulmo says no CF, but GI is telling me positive sweat test and recommends the Nissen surgery and possibly enzymes.
Have any of you had experience with the nissen sugery for reflux? Do they do this surgery on children without CF?
I appreciate your support! Thanks!
Alison

asiewny · Jul 2, 2009

Hi everyone! Just wanted to keep you updated about my son. His upper GI and endoscopy results came back and it showed that he has inflammation in his esophagus consistent with reflux. The biopsy showed basal cells and eosinophil cells and the DR. said that his esophagus was very sensitive to the scope and was irritated just by the scope. They also found a hiatal hernia. So, the GI dr. referred us to a surgeon for the Nissen surgery. I am still perplexed that he had a high borderline sweat test, is failure to thrive, but did not have any CF genes come up on the genetic test. I just want to make sure that we make the right decision about this surgery because it sounds so invasive. If the reflux is part of the reason he is failure to thrive and will just get worse, than I definitely think we should do it. The other thing that is perplexing about his case is that he has an enormous appetite, but doesn't gain weight. His stool elastase was normal. I talked to the DR. yesterday and she said that sometimes they treat some patients "as if" they have CF and talked about giving him enzymes. She is supposed to call me back today after she talked with the CF dr. I am a little afraid of doing the surgery, but if I knew for sure it was going to help him thrive and grow, I will do it in a heartbeat. I just want him to be healthy and LOOK healty. On the other hand, if he only has reflux that is not associated with the FTT or CF, I don't know if it is worth the risk. I am wondering if the DR.'s have conflicting oppinions about his case-pulmo says no CF, but GI is telling me positive sweat test and recommends the Nissen surgery and possibly enzymes.
 Have any of you had experience with the nissen sugery for reflux? Do they do this surgery on children without CF?
 I appreciate your support! Thanks!
 Alison

Buckeye · Jul 2, 2009

The Nissen fundoplication surgery is to treat reflux. Probably the vast majority of people that have the surgery do not have cf. A lot of kids with g-tubes get it, but there are thousands of other reasons kids get g-tubes other than cf. Other people get it because their reflux is so bad, that's the only way to keep it under control.Have they tried Prevacid or Prilosec with him though? IMHO I would try the drugs first before the surgery to see if they can make a difference.

Buckeye · Jul 2, 2009

The Nissen fundoplication surgery is to treat reflux. Probably the vast majority of people that have the surgery do not have cf. A lot of kids with g-tubes get it, but there are thousands of other reasons kids get g-tubes other than cf. Other people get it because their reflux is so bad, that's the only way to keep it under control.Have they tried Prevacid or Prilosec with him though? IMHO I would try the drugs first before the surgery to see if they can make a difference.

Buckeye · Jul 2, 2009

The Nissen fundoplication surgery is to treat reflux. Probably the vast majority of people that have the surgery do not have cf. A lot of kids with g-tubes get it, but there are thousands of other reasons kids get g-tubes other than cf. Other people get it because their reflux is so bad, that's the only way to keep it under control.Have they tried Prevacid or Prilosec with him though? IMHO I would try the drugs first before the surgery to see if they can make a difference.

Buckeye · Jul 2, 2009

The Nissen fundoplication surgery is to treat reflux. Probably the vast majority of people that have the surgery do not have cf. A lot of kids with g-tubes get it, but there are thousands of other reasons kids get g-tubes other than cf. Other people get it because their reflux is so bad, that's the only way to keep it under control.Have they tried Prevacid or Prilosec with him though? IMHO I would try the drugs first before the surgery to see if they can make a difference.

Buckeye · Jul 2, 2009

The Nissen fundoplication surgery is to treat reflux. Probably the vast majority of people that have the surgery do not have cf. A lot of kids with g-tubes get it, but there are thousands of other reasons kids get g-tubes other than cf. Other people get it because their reflux is so bad, that's the only way to keep it under control.Have they tried Prevacid or Prilosec with him though? IMHO I would try the drugs first before the surgery to see if they can make a difference.

asiewny · Jul 3, 2009