Texture Issues

bet10

New member
Tom is struggling with his solid foods and has been attending feeding therapy for 4 months now. They have diagnosed him with having food texture issues. So basically he is picky with solids - he still needs all his food to be pureed, although will happily eat crackers, chips, fries, most fruits and the odd bit of bread. He has made little progress with his therapy and I am really struggling with whether we should continue with it or not! Weight wise he is doing great (90th percentiile), so the CF CLinic tell me not to worry about pushing soiids, they would rather he has the weight. But, I am getting worried because he is almost 2 and he doesn't feed himself either - as hard as I try and encourage him. He has also been diagnosed with slow gastric emptying so I think he probably doesn't want solids because it is too hard for him to digest. Anyone with any ideas or advice? It is becoming very stressful - weight gain versus eating solids - arggh???
 

bet10

New member
Tom is struggling with his solid foods and has been attending feeding therapy for 4 months now. They have diagnosed him with having food texture issues. So basically he is picky with solids - he still needs all his food to be pureed, although will happily eat crackers, chips, fries, most fruits and the odd bit of bread. He has made little progress with his therapy and I am really struggling with whether we should continue with it or not! Weight wise he is doing great (90th percentiile), so the CF CLinic tell me not to worry about pushing soiids, they would rather he has the weight. But, I am getting worried because he is almost 2 and he doesn't feed himself either - as hard as I try and encourage him. He has also been diagnosed with slow gastric emptying so I think he probably doesn't want solids because it is too hard for him to digest. Anyone with any ideas or advice? It is becoming very stressful - weight gain versus eating solids - arggh???
 

bet10

New member
Tom is struggling with his solid foods and has been attending feeding therapy for 4 months now. They have diagnosed him with having food texture issues. So basically he is picky with solids - he still needs all his food to be pureed, although will happily eat crackers, chips, fries, most fruits and the odd bit of bread. He has made little progress with his therapy and I am really struggling with whether we should continue with it or not! Weight wise he is doing great (90th percentiile), so the CF CLinic tell me not to worry about pushing soiids, they would rather he has the weight. But, I am getting worried because he is almost 2 and he doesn't feed himself either - as hard as I try and encourage him. He has also been diagnosed with slow gastric emptying so I think he probably doesn't want solids because it is too hard for him to digest. Anyone with any ideas or advice? It is becoming very stressful - weight gain versus eating solids - arggh???
 

kitomd21

New member
Oh dear...ditto what you're going through! My daughter is 2.5 years old and echos what you wrote above. We haven't seen an occupational therapist because I honestly don't believe it will help her. She's so stubborn...won't try anything new...I think one day it will just "click" with her. I'm not sure about the delayed gastric emptying as we haven't had her evaluated, however, she is so similar to your son! Frustrating! I try not to dwell too much on it as long as her weight is good. I also don't know of any older children or adults that don't eat solid food! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Still doesn't make it less frustrating, however...
 

kitomd21

New member
Oh dear...ditto what you're going through! My daughter is 2.5 years old and echos what you wrote above. We haven't seen an occupational therapist because I honestly don't believe it will help her. She's so stubborn...won't try anything new...I think one day it will just "click" with her. I'm not sure about the delayed gastric emptying as we haven't had her evaluated, however, she is so similar to your son! Frustrating! I try not to dwell too much on it as long as her weight is good. I also don't know of any older children or adults that don't eat solid food! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Still doesn't make it less frustrating, however...
 

kitomd21

New member
Oh dear...ditto what you're going through! My daughter is 2.5 years old and echos what you wrote above. We haven't seen an occupational therapist because I honestly don't believe it will help her. She's so stubborn...won't try anything new...I think one day it will just "click" with her. I'm not sure about the delayed gastric emptying as we haven't had her evaluated, however, she is so similar to your son! Frustrating! I try not to dwell too much on it as long as her weight is good. I also don't know of any older children or adults that don't eat solid food! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Still doesn't make it less frustrating, however...
 

ymikhale

New member
my dd is 3 and she used to be like that too. Would jus gag on anything unmashed but would eat bread etc fine. I was also very worried but with all we have to handle cf related did not have time to attend to this issue. Now she is 3 and i feel that it has become less of an issue so have faith!
 

ymikhale

New member
my dd is 3 and she used to be like that too. Would jus gag on anything unmashed but would eat bread etc fine. I was also very worried but with all we have to handle cf related did not have time to attend to this issue. Now she is 3 and i feel that it has become less of an issue so have faith!
 

ymikhale

New member
my dd is 3 and she used to be like that too. Would jus gag on anything unmashed but would eat bread etc fine. I was also very worried but with all we have to handle cf related did not have time to attend to this issue. Now she is 3 and i feel that it has become less of an issue so have faith!
 

zoe4life

New member
Yep, been there! I have heard this quite often over the past years about a lot of our little cf'ers. Zoe was horrible about anything with solidness....gagged, threw up, etc... We also tried the 'feeding team' therapies...it all boiled down to time. She started eating solids well at around 3.
Good luck...be patient...it will get better!! As long as they are doing well weight wise...the rest will come.
Take care,
 

zoe4life

New member
Yep, been there! I have heard this quite often over the past years about a lot of our little cf'ers. Zoe was horrible about anything with solidness....gagged, threw up, etc... We also tried the 'feeding team' therapies...it all boiled down to time. She started eating solids well at around 3.
Good luck...be patient...it will get better!! As long as they are doing well weight wise...the rest will come.
Take care,
 

zoe4life

New member
Yep, been there! I have heard this quite often over the past years about a lot of our little cf'ers. Zoe was horrible about anything with solidness....gagged, threw up, etc... We also tried the 'feeding team' therapies...it all boiled down to time. She started eating solids well at around 3.
<br />Good luck...be patient...it will get better!! As long as they are doing well weight wise...the rest will come.
<br />Take care,
 

Emmama80

New member
My daughter has had a lot of issues with eating. I recently found this website <a target=_blank class=ftalternatingbarlinklarge href="http://childrenandbabiesnoteating.com/">http://childrenandbabiesnoteating.com/</a> that has so much information about eating problems, causes, testing and treatment. It's such a great resource and really helped me understand what was happening with my daughter. Hope it helps.
 

Emmama80

New member
My daughter has had a lot of issues with eating. I recently found this website <a target=_blank class=ftalternatingbarlinklarge href="http://childrenandbabiesnoteating.com/">http://childrenandbabiesnoteating.com/</a> that has so much information about eating problems, causes, testing and treatment. It's such a great resource and really helped me understand what was happening with my daughter. Hope it helps.
 

Emmama80

New member
My daughter has had a lot of issues with eating. I recently found this website <a target=_blank class=ftalternatingbarlinklarge href="http://childrenandbabiesnoteating.com/">http://childrenandbabiesnoteating.com/</a> that has so much information about eating problems, causes, testing and treatment. It's such a great resource and really helped me understand what was happening with my daughter. Hope it helps.
 

Ratatosk

Administrator
Staff member
Yep, DS was the same way -- gagged like he had a hairball with ground meat, toast, bread... Thought he'd be eating yogurt and stage 1-2 babyfood forever. He was above the 50th percentile for growth, but mealtimes were so stressful.

And then one day the daycare director indicated he and his friend couldn't get enough spagettios. Something new. Yea! I think we fed him spagettios for just about every meal. Then he decided he liked hamburger patties... Little by little he began trying new things.
 

Ratatosk

Administrator
Staff member
Yep, DS was the same way -- gagged like he had a hairball with ground meat, toast, bread... Thought he'd be eating yogurt and stage 1-2 babyfood forever. He was above the 50th percentile for growth, but mealtimes were so stressful.

And then one day the daycare director indicated he and his friend couldn't get enough spagettios. Something new. Yea! I think we fed him spagettios for just about every meal. Then he decided he liked hamburger patties... Little by little he began trying new things.
 

Ratatosk

Administrator
Staff member
Yep, DS was the same way -- gagged like he had a hairball with ground meat, toast, bread... Thought he'd be eating yogurt and stage 1-2 babyfood forever. He was above the 50th percentile for growth, but mealtimes were so stressful.
<br />
<br />And then one day the daycare director indicated he and his friend couldn't get enough spagettios. Something new. Yea! I think we fed him spagettios for just about every meal. Then he decided he liked hamburger patties... Little by little he began trying new things.
 
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