gocamping2
New member
Wow! is all I can say. I found this web totally by accident looking for information on "vests" for the near future for my 16 month son that has CF (DF508/DF508).
I knew that there were support sites and "groups" for CF, but who has time for that when you have a new baby and the world is now the "enemy"- or at least that is what it felt like after my son was diagnosed at 2 weeks old. I was so paranoid of all of the germs and how could I keep him from getting sick. (I've chilled out just a little) <img src="i/expressions/face-icon-small-smile.gif" border="0">
I was reading a lot of your comments in the different blogs....the biggest thing is that I feel that I'm not alone anymore! I found a lot of information on things that I have been wondering, reading that a lot of others feel the same guilt, sadness and hopefullness. All of this passive support was just what I was needing on a particularly "blue" night.
I'm sure as time goes on that I will be in here looking for advise, help, support and hopefully be able to offer some of the same. I just wanted to say THANK YOU to all of you!
I knew that there were support sites and "groups" for CF, but who has time for that when you have a new baby and the world is now the "enemy"- or at least that is what it felt like after my son was diagnosed at 2 weeks old. I was so paranoid of all of the germs and how could I keep him from getting sick. (I've chilled out just a little) <img src="i/expressions/face-icon-small-smile.gif" border="0">
I was reading a lot of your comments in the different blogs....the biggest thing is that I feel that I'm not alone anymore! I found a lot of information on things that I have been wondering, reading that a lot of others feel the same guilt, sadness and hopefullness. All of this passive support was just what I was needing on a particularly "blue" night.
I'm sure as time goes on that I will be in here looking for advise, help, support and hopefully be able to offer some of the same. I just wanted to say THANK YOU to all of you!