william1217
New member
After two borderline sweat tests, one negative, we are doing the Specialist Merry-Go-Round. My sons bone scan showed a two year growth delay but the Pediatric Endcronoglist feels it has nothing to do with growth hormone. He felt we needed to see the Ped. Pulm and GI. So to the Ped Pulm M.D. whom at first did not think his coughing (present at the time of the appt) had anything to do with his lungs, just post nasal drip. After an xray, in the nurses came with a pulse oximeter and a Xoponex treatment. New orders were for Xoponex QID, Pulmicort BID, Orapred bid x 8 days and a decongestant to top it off. And back to see her in a week. She did however draw blood for the genetic CF testing. She says it doesn't look like typical CF to her but still drew. (but then again what is typical CF). We go back to her on Friday and the Ped GI the following Friday. Is this typical- running around to all the different specialists trying to, well I am not sure what.