The Vest and toddlers

R

Ratatosk

Administrator
Staff member
DS got his vest last week and someone came to the house for training. He seems to like it. We had the training in his little recliner, although we moved the vest into our bedroom because we always do CPT and Nebs on our bed so he can watch movies or television.

He seems to be tolerating the vest well, though he doesn't think he needs to do the "smoke" anymore -- nebs and gets annoyed when we turn on the nebulizer. Reasoning with a toddler. Argh!

Also, he seems to do better sitting up than laying back on pillows or leaning on one of us. I'm thinking it has more to do with his being lulled to sleep and he's fighting sleep, although a few times he's claimed owie.

Just wondering what other kiddos do with the vest. What works for them. How are they most comfortable.

I had a mini-meltdown yesterday 'cuz it just seemed like one more thing. One more reminder. I know it'll make life easier, especially if one of us is out of town for work, etc. Just seems sometimes as if my house is being overtaken with medical equipment, my top fridge shelf with meds, kitchen counter more meds, night stand has a nebulizer & vest machine.....
 
R

Ratatosk

Administrator
Staff member
DS got his vest last week and someone came to the house for training. He seems to like it. We had the training in his little recliner, although we moved the vest into our bedroom because we always do CPT and Nebs on our bed so he can watch movies or television.

He seems to be tolerating the vest well, though he doesn't think he needs to do the "smoke" anymore -- nebs and gets annoyed when we turn on the nebulizer. Reasoning with a toddler. Argh!

Also, he seems to do better sitting up than laying back on pillows or leaning on one of us. I'm thinking it has more to do with his being lulled to sleep and he's fighting sleep, although a few times he's claimed owie.

Just wondering what other kiddos do with the vest. What works for them. How are they most comfortable.

I had a mini-meltdown yesterday 'cuz it just seemed like one more thing. One more reminder. I know it'll make life easier, especially if one of us is out of town for work, etc. Just seems sometimes as if my house is being overtaken with medical equipment, my top fridge shelf with meds, kitchen counter more meds, night stand has a nebulizer & vest machine.....
 
R

Ratatosk

Administrator
Staff member
DS got his vest last week and someone came to the house for training. He seems to like it. We had the training in his little recliner, although we moved the vest into our bedroom because we always do CPT and Nebs on our bed so he can watch movies or television.

He seems to be tolerating the vest well, though he doesn't think he needs to do the "smoke" anymore -- nebs and gets annoyed when we turn on the nebulizer. Reasoning with a toddler. Argh!

Also, he seems to do better sitting up than laying back on pillows or leaning on one of us. I'm thinking it has more to do with his being lulled to sleep and he's fighting sleep, although a few times he's claimed owie.

Just wondering what other kiddos do with the vest. What works for them. How are they most comfortable.

I had a mini-meltdown yesterday 'cuz it just seemed like one more thing. One more reminder. I know it'll make life easier, especially if one of us is out of town for work, etc. Just seems sometimes as if my house is being overtaken with medical equipment, my top fridge shelf with meds, kitchen counter more meds, night stand has a nebulizer & vest machine.....
 
N

Nicole

New member
Sometimes Danny will use his vest while we are holding him. Most of the time he will sit on the couch and watch TV while he does it. If he is in the middle of playing something he will sit on the floor and continue to play. There have been a few times when we have been traveling that he's so tired he falls asleep with it on. We feel very fortunate that he has always done well with it--never refuses to put it on. It has been great for us. For instance, right now my husband is out of town--will be gone for about 6 weeks--which means I have to take care of everything. Not having to sit there and do manual CPT every time helps out a lot!
 
N

Nicole

New member
Sometimes Danny will use his vest while we are holding him. Most of the time he will sit on the couch and watch TV while he does it. If he is in the middle of playing something he will sit on the floor and continue to play. There have been a few times when we have been traveling that he's so tired he falls asleep with it on. We feel very fortunate that he has always done well with it--never refuses to put it on. It has been great for us. For instance, right now my husband is out of town--will be gone for about 6 weeks--which means I have to take care of everything. Not having to sit there and do manual CPT every time helps out a lot!
 
N

Nicole

New member
Sometimes Danny will use his vest while we are holding him. Most of the time he will sit on the couch and watch TV while he does it. If he is in the middle of playing something he will sit on the floor and continue to play. There have been a few times when we have been traveling that he's so tired he falls asleep with it on. We feel very fortunate that he has always done well with it--never refuses to put it on. It has been great for us. For instance, right now my husband is out of town--will be gone for about 6 weeks--which means I have to take care of everything. Not having to sit there and do manual CPT every time helps out a lot!
 
F

folione

New member
My son w/Cf is 3 1/2 and has been using the vest for the past year. He has a small upholstered rocker he sits in and watches a video/dvd while taking the treatment. We do not try to get him to do nebulizer at the same time because it was just a bit much for him to tolerate and we wanted to make sure he continued to be good about complying with nebs and vest. For the nebs he sits at a tot-sized table and plays with things and/or watches more TV.

I sure know what you mean about the house being taken over and growing weary of the constant reminders. I don't like the nebulizer and vest sitting around the tv room, but when we tried to shift it to our son's bedroom by getting him a tv/dvd he complained about it so it all ended up back downstairs. I tell myself that in a few more years I'll be complaining that he never wants to leave his room to be with us ......
 
F

folione

New member
My son w/Cf is 3 1/2 and has been using the vest for the past year. He has a small upholstered rocker he sits in and watches a video/dvd while taking the treatment. We do not try to get him to do nebulizer at the same time because it was just a bit much for him to tolerate and we wanted to make sure he continued to be good about complying with nebs and vest. For the nebs he sits at a tot-sized table and plays with things and/or watches more TV.

I sure know what you mean about the house being taken over and growing weary of the constant reminders. I don't like the nebulizer and vest sitting around the tv room, but when we tried to shift it to our son's bedroom by getting him a tv/dvd he complained about it so it all ended up back downstairs. I tell myself that in a few more years I'll be complaining that he never wants to leave his room to be with us ......
 
F

folione

New member
My son w/Cf is 3 1/2 and has been using the vest for the past year. He has a small upholstered rocker he sits in and watches a video/dvd while taking the treatment. We do not try to get him to do nebulizer at the same time because it was just a bit much for him to tolerate and we wanted to make sure he continued to be good about complying with nebs and vest. For the nebs he sits at a tot-sized table and plays with things and/or watches more TV.

I sure know what you mean about the house being taken over and growing weary of the constant reminders. I don't like the nebulizer and vest sitting around the tv room, but when we tried to shift it to our son's bedroom by getting him a tv/dvd he complained about it so it all ended up back downstairs. I tell myself that in a few more years I'll be complaining that he never wants to leave his room to be with us ......
 
K

ktsmom

New member
Wow - ESP - and we don't really even know each other; I was wondering just this morning if you guys got your vest yet and how it was working out!

Katy has to be coaxed, and I mean with all the skill we have, to do her vest. She says it hurts and we've been told by Hill Rom that we can leave the bottom buckle undone. But she is three so we figure it is also just part of her age, and she is struggling so hard to be in control; life seems so regimented now to get all of her treatments in.

But I digress; to answer your question, Katy does best sitting up on the couch. She usually reads books to herself or her 'babies' (mostly out loud, which concerns me because I think terri mentioned that could be a strain on her vocal cords; I haven't checked into that yet). We have tried the TV but it has to be turned up so loud that we all gave up on that! She has a Leapster that she plays with also. (She thinks its a gameboy and she feels like such a big girl!)

My husband bought a three-shelf cart on wheels from Sam's and put the vest machine and her compressor for her nebs on it. Then he used zip ties to attach a power strip to the cart and everything plugs into the power strip, then the power strip plugs into the wall. This gives us some easy mobility.

I know what you mean about meds and medical devices taking over your home. I spent several hours this weekend re-organizing, determining what meds needed to be refilled, etc.

Take care,

Dana
Mom to Katy (3, cf) and Kyra (6, no cf)
 
K

ktsmom

New member
Wow - ESP - and we don't really even know each other; I was wondering just this morning if you guys got your vest yet and how it was working out!

Katy has to be coaxed, and I mean with all the skill we have, to do her vest. She says it hurts and we've been told by Hill Rom that we can leave the bottom buckle undone. But she is three so we figure it is also just part of her age, and she is struggling so hard to be in control; life seems so regimented now to get all of her treatments in.

But I digress; to answer your question, Katy does best sitting up on the couch. She usually reads books to herself or her 'babies' (mostly out loud, which concerns me because I think terri mentioned that could be a strain on her vocal cords; I haven't checked into that yet). We have tried the TV but it has to be turned up so loud that we all gave up on that! She has a Leapster that she plays with also. (She thinks its a gameboy and she feels like such a big girl!)

My husband bought a three-shelf cart on wheels from Sam's and put the vest machine and her compressor for her nebs on it. Then he used zip ties to attach a power strip to the cart and everything plugs into the power strip, then the power strip plugs into the wall. This gives us some easy mobility.

I know what you mean about meds and medical devices taking over your home. I spent several hours this weekend re-organizing, determining what meds needed to be refilled, etc.

Take care,

Dana
Mom to Katy (3, cf) and Kyra (6, no cf)
 
K

ktsmom

New member
Wow - ESP - and we don't really even know each other; I was wondering just this morning if you guys got your vest yet and how it was working out!

Katy has to be coaxed, and I mean with all the skill we have, to do her vest. She says it hurts and we've been told by Hill Rom that we can leave the bottom buckle undone. But she is three so we figure it is also just part of her age, and she is struggling so hard to be in control; life seems so regimented now to get all of her treatments in.

But I digress; to answer your question, Katy does best sitting up on the couch. She usually reads books to herself or her 'babies' (mostly out loud, which concerns me because I think terri mentioned that could be a strain on her vocal cords; I haven't checked into that yet). We have tried the TV but it has to be turned up so loud that we all gave up on that! She has a Leapster that she plays with also. (She thinks its a gameboy and she feels like such a big girl!)

My husband bought a three-shelf cart on wheels from Sam's and put the vest machine and her compressor for her nebs on it. Then he used zip ties to attach a power strip to the cart and everything plugs into the power strip, then the power strip plugs into the wall. This gives us some easy mobility.

I know what you mean about meds and medical devices taking over your home. I spent several hours this weekend re-organizing, determining what meds needed to be refilled, etc.

Take care,

Dana
Mom to Katy (3, cf) and Kyra (6, no cf)
 
R

Ratatosk

Administrator
Staff member
It really doesn't take up that much room, but it's just one more thing. And I need to get a power strip. Currently I've got cords running all over the place.

The vest machine, tubes and vest all fit perfectly on the bottom shelf of my night stand where I used to store all my paperbacks. Now there's a box sitting next to the night stand. And the nebulizer has always sat on top of the night stand.

Prior to getting the vest, CPT was becoming increasingly difficult because he too was claiming "owie" and trying to get out of it. So we do get a few owies here and there. He said his back hurt once, but sometimes it's his toe, so we figure it's toddler behavior.

We just got DVR with our dish, so now I can record his favorite shows, or rewind if he sees something funny. This weekend it was Spongebob Scaredy Pants. And this morning I set it to record Little Einsteins and Tutensteins Halloween episdodes. He loves halloween. So whatever keeps him occupied. Only thing I haven't allowed or been to keen on doing is usually during his treatment is let him eat. He likes to snack usually and it's just one more thing. I can see his bowl of sunflower nuts bouncing across the room and into our bed.
 
R

Ratatosk

Administrator
Staff member
It really doesn't take up that much room, but it's just one more thing. And I need to get a power strip. Currently I've got cords running all over the place.

The vest machine, tubes and vest all fit perfectly on the bottom shelf of my night stand where I used to store all my paperbacks. Now there's a box sitting next to the night stand. And the nebulizer has always sat on top of the night stand.

Prior to getting the vest, CPT was becoming increasingly difficult because he too was claiming "owie" and trying to get out of it. So we do get a few owies here and there. He said his back hurt once, but sometimes it's his toe, so we figure it's toddler behavior.

We just got DVR with our dish, so now I can record his favorite shows, or rewind if he sees something funny. This weekend it was Spongebob Scaredy Pants. And this morning I set it to record Little Einsteins and Tutensteins Halloween episdodes. He loves halloween. So whatever keeps him occupied. Only thing I haven't allowed or been to keen on doing is usually during his treatment is let him eat. He likes to snack usually and it's just one more thing. I can see his bowl of sunflower nuts bouncing across the room and into our bed.
 
R

Ratatosk

Administrator
Staff member
It really doesn't take up that much room, but it's just one more thing. And I need to get a power strip. Currently I've got cords running all over the place.

The vest machine, tubes and vest all fit perfectly on the bottom shelf of my night stand where I used to store all my paperbacks. Now there's a box sitting next to the night stand. And the nebulizer has always sat on top of the night stand.

Prior to getting the vest, CPT was becoming increasingly difficult because he too was claiming "owie" and trying to get out of it. So we do get a few owies here and there. He said his back hurt once, but sometimes it's his toe, so we figure it's toddler behavior.

We just got DVR with our dish, so now I can record his favorite shows, or rewind if he sees something funny. This weekend it was Spongebob Scaredy Pants. And this morning I set it to record Little Einsteins and Tutensteins Halloween episdodes. He loves halloween. So whatever keeps him occupied. Only thing I haven't allowed or been to keen on doing is usually during his treatment is let him eat. He likes to snack usually and it's just one more thing. I can see his bowl of sunflower nuts bouncing across the room and into our bed.
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

DS got his vest last week and someone came to the house for training. He seems to like it. We had the training in his little recliner, although we moved the vest into our bedroom because we always do CPT and Nebs on our bed so he can watch movies or television.



He seems to be tolerating the vest well, though he doesn't think he needs to do the "smoke" anymore -- nebs and gets annoyed when we turn on the nebulizer. Reasoning with a toddler. Argh!



Also, he seems to do better sitting up than laying back on pillows or leaning on one of us. I'm thinking it has more to do with his being lulled to sleep and he's fighting sleep, although a few times he's claimed owie.



Just wondering what other kiddos do with the vest. What works for them. How are they most comfortable.



I had a mini-meltdown yesterday 'cuz it just seemed like one more thing. One more reminder. I know it'll make life easier, especially if one of us is out of town for work, etc. Just seems sometimes as if my house is being overtaken with medical equipment, my top fridge shelf with meds, kitchen counter more meds, night stand has a nebulizer & vest machine.....</end quote></div>

what brand of vest did you get?
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

DS got his vest last week and someone came to the house for training. He seems to like it. We had the training in his little recliner, although we moved the vest into our bedroom because we always do CPT and Nebs on our bed so he can watch movies or television.



He seems to be tolerating the vest well, though he doesn't think he needs to do the "smoke" anymore -- nebs and gets annoyed when we turn on the nebulizer. Reasoning with a toddler. Argh!



Also, he seems to do better sitting up than laying back on pillows or leaning on one of us. I'm thinking it has more to do with his being lulled to sleep and he's fighting sleep, although a few times he's claimed owie.



Just wondering what other kiddos do with the vest. What works for them. How are they most comfortable.



I had a mini-meltdown yesterday 'cuz it just seemed like one more thing. One more reminder. I know it'll make life easier, especially if one of us is out of town for work, etc. Just seems sometimes as if my house is being overtaken with medical equipment, my top fridge shelf with meds, kitchen counter more meds, night stand has a nebulizer & vest machine.....</end quote></div>

what brand of vest did you get?
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

DS got his vest last week and someone came to the house for training. He seems to like it. We had the training in his little recliner, although we moved the vest into our bedroom because we always do CPT and Nebs on our bed so he can watch movies or television.



He seems to be tolerating the vest well, though he doesn't think he needs to do the "smoke" anymore -- nebs and gets annoyed when we turn on the nebulizer. Reasoning with a toddler. Argh!



Also, he seems to do better sitting up than laying back on pillows or leaning on one of us. I'm thinking it has more to do with his being lulled to sleep and he's fighting sleep, although a few times he's claimed owie.



Just wondering what other kiddos do with the vest. What works for them. How are they most comfortable.



I had a mini-meltdown yesterday 'cuz it just seemed like one more thing. One more reminder. I know it'll make life easier, especially if one of us is out of town for work, etc. Just seems sometimes as if my house is being overtaken with medical equipment, my top fridge shelf with meds, kitchen counter more meds, night stand has a nebulizer & vest machine.....</end quote></div>

what brand of vest did you get?
 
R

Ratatosk

Administrator
Staff member
Our doctor is a proponent of "the vest", so it's the Hill Rom. Full style vest. 3 different frequency settings per treatment.
 
R

Ratatosk

Administrator
Staff member
Our doctor is a proponent of "the vest", so it's the Hill Rom. Full style vest. 3 different frequency settings per treatment.
 
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