the vest...

anonymous

New member
How old do you have to be to get the vest? I heard something about getting fitted for it??? Is it by weight or age or what?
 

dumpdaily

New member
It's basically just fitted to your size in general. I recently started using it again when I was in the hospital and the first size was too small. I think its supposed to reach to right around your navel. The shoulders can be adjusted. I'm 6 3', 161 lbs. as of yesterday and I'm ordering a Adult Medium. Hope this helps.
 

NoDayButToday

New member
Yes, the vests have different sizes, but you also have to be old enough to handle the shaking to get the Vest. I got mine when I was 4 or 5 (right when they came out).
 

Melissa04281

New member
caleb just got the vest a little over a week ago. . he is 3, they didnt fit it though they just wrote a script for it and we had it less than a week later... he loves it!!!!!
 

anonymous

New member
To Melissa w/3 yr old w/CF

What company did you get the vest from? Where are you from that your doctor would just write the prescription just like that? The reason I'm asking these question is that when I ask about the vest for my 3 yr old daughter w/cf, I was told that it could or could not make a difference and I should wait. Another reason not to get the vest is because of the CAP that is on my insurance and the vest cost alot of money that could take a large portion of the CAP.

How does the vest work for your son at that age? My daughter weights 28lbs, what does your son weight?

Personally w/our busy schedule I would live to have my daughter on the vest. We currently use a hand held wand and sometimes it hard to sit down and get through 30 minutes of CPTs.

Thanks,
mother of wonderful 3 yr old w/cf
 

anonymous

New member
<a target=new class=ftalternatingbarlinklarge href="http://pressroom.thevest.com/
">http://pressroom.thevest.com/
</a>
This is the link to the vest website, maybe not the main one but the one that I use to navigate around the site. There should't be a reason why your son can't use it at three, you just have to make sure that it is fitted correctly. I am not the mother of a young child but the wife of an older child (at heard) and he was going to participate in a research study for the vest, but since he already used it he couldn't participate. But there were other participants, some as little as 2 who were a part of the study.

I would look into it a bit more if you are really interested. Also, do you have medicaid or state funded insurance for your child in addition to your primary insurance? If so, you might want to look into seeing if they will help pay.

Julie (wife to Mark 24 w/CF)
 

Melissa04281

New member
with caleb they wanted him to tolerate it at clinic.. they brought it in the room so he could try it at every clinic appt.. and he would scream as soon as he saw the bag!!! i kept stressing to them that if it was at home he'd do it but he hates the cf doc..lol so he is a monster at clinic and wont let anyone go near him.. so after over a yr of telling them this i had his pediatritan call and talk to the cf doc and at his last clinic she walked in with a form for me to sign and said thats it they will call and deliver it to you.. so this is something ive been trying to get for a longggggg time... he is 3.5 and he weights 37.8 pds.. i think your child is old enough to have one.. caleb actually fell asleep last night with it on.. we also have a secondary insurance through children with special health needs so i think they will pick up where my primary insurance leaves off.. the website i looked at was www.thevest.com......... if you have any more questions just ask...


Melissa mom to dylan 6 no cf and caleb 3 wcf
 

Jo20784

New member
We dont gett he vest here in the UK as clinical trials over here showed it was not as affective as the techs we use over here such as breathing execrises . <img src="i/expressions/rose.gif" border="0">
 

anonymous

New member
Thanks Melissa. My daughter is also through the children w/spcial healthcare needs but is not a benefit to us at this time. Now if my daughter gets sick and is in the hospital for a long period of time or has to go on some other meds that are more expensive then we can possible get help. Anyway, maybe I will talk w/her case worker to see if they can pick up what insurance doesn't. The website you mentioned (thevest.com) is where I had looked. I know the vest may not work for all, but you would think the doc could have some setup to loan the vest to patients to see if that technique would work better for them. In all, isn't about keeping the patient healthy.

Thanks again for your reply and listening.

Mother of wonderful 3 yr old daughter w/CF
 

anonymous

New member
I asked our cf clinic about the vest. They said my oldest was to small for the vest they use because the chest diameter must be at least 23 inches and that they needed his pft's to order it because our insurance will cover the whole cost. I told them medpulse vest diameter was around 16 and my son could fit that. However they said they no longer use medpulse because the product was good but they had lots of problems with the company. Does any one have exp w/ medpulse? I was also told vest don't help that much. They thought it was good that I asked about it though. They say I am very agressive with cpt on my sons because I do 4 1/2hr sessions with each boy every day so total each of my sons gets 2hrs of cpt a day. Is that not normal.
 

anonymous

New member
<a target=new class=ftalternatingbarlinklarge href="http://pressroom.thevest.com/conditions/cf/default.asp?gs=patients
">http://pressroom.thevest.com/conditions/cf/default.asp?gs=patients
</a>
For those of you who say it isn't supported wehre you live because of unsuccessful clinical trials, or not enough evidence that it works, please visit the site above and scroll down the the bottom of the page. There are 5 PDF articles on vest studies and uses. Just thought you might find it interesting and/or helpful!

To the last poster I haven't seen anything on the medpulse company and vest, does your doctor use the hill-rom brand? I would suggest double checking what the doctor said against the vest company. Doctors don't know everything and sometimes they can be wrong; at the expense of our loved ones.

Julie (wife to Mark 24 w/CF)
 

shamrock

New member
Thanks Julie for the link. I am going to see my doctors this afternoon and am going to ask AGAIN about this. It is difficult because it just isnt available over here so not much is known about it. The most annoying thing is they keep telling me, 'no there is no evidence to support it works', but looking at the amount of americans, especially on here, who use it, it just DOESNT make sense that you would all stick with it if it doesnt work!!
 

anonymous

New member
I think I mentioned this before but my husband was suppose to participate in a study for it, but since he already used it (just one time too) he was disqualified. I hope some of the files help. It really seems to help him, he says he can take deep breaths now without coughing and it helps him get the stuff up (especially when he is feeling "sick") and he also notices if he skips a day.
Tell me what comes of the discussion, I am curious to see what they say.

Oh, by "over her" do you mean england or something?

Julie (wife to Mark 24 w/CF)
 

anonymous

New member
Oh, I'll be "over there" next summer-hopefully. My husband is giving himself a trip to england and Ireland (his family on mom's side is from ireland, and dad's side is from england and Ireland) for graduation next May. I know this is totally off topic but any recommendations of places to visit? email is division902@hotmail.com

Julie (wife to Mark 24 w/CF)
 
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