This is really CRAZY but...

beleache

New member
Hi Lisa,

Its so good to see a post from you !!! My sister & i (we were dxd late in life) presented differently..

She had much more severe lung issues (she passed from breast cancer the year we were dxd) , i had worse GI issues.. I'm not sure why that was..

I am so happy to hear that Holli is doing well, Thank You God <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thoughts, prayers & {{{Hugs}}} to you ... On the one year passing of Kari <img src="i/expressions/face-icon-small-sad.gif" border="0">

God Bless you .. <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Hi Lisa,

Its so good to see a post from you !!! My sister & i (we were dxd late in life) presented differently..

She had much more severe lung issues (she passed from breast cancer the year we were dxd) , i had worse GI issues.. I'm not sure why that was..

I am so happy to hear that Holli is doing well, Thank You God <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thoughts, prayers & {{{Hugs}}} to you ... On the one year passing of Kari <img src="i/expressions/face-icon-small-sad.gif" border="0">

God Bless you .. <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Hi Lisa,

Its so good to see a post from you !!! My sister & i (we were dxd late in life) presented differently..

She had much more severe lung issues (she passed from breast cancer the year we were dxd) , i had worse GI issues.. I'm not sure why that was..

I am so happy to hear that Holli is doing well, Thank You God <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thoughts, prayers & {{{Hugs}}} to you ... On the one year passing of Kari <img src="i/expressions/face-icon-small-sad.gif" border="0">

God Bless you .. <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Hi Lisa,

Its so good to see a post from you !!! My sister & i (we were dxd late in life) presented differently..

She had much more severe lung issues (she passed from breast cancer the year we were dxd) , i had worse GI issues.. I'm not sure why that was..

I am so happy to hear that Holli is doing well, Thank You God <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thoughts, prayers & {{{Hugs}}} to you ... On the one year passing of Kari <img src="i/expressions/face-icon-small-sad.gif" border="0">

God Bless you .. <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Hi Lisa,
<br />
<br /> Its so good to see a post from you !!! My sister & i (we were dxd late in life) presented differently..
<br />
<br /> She had much more severe lung issues (she passed from breast cancer the year we were dxd) , i had worse GI issues.. I'm not sure why that was..
<br />
<br /> I am so happy to hear that Holli is doing well, Thank You God <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Thoughts, prayers & {{{Hugs}}} to you ... On the one year passing of Kari <img src="i/expressions/face-icon-small-sad.gif" border="0">
<br />
<br /> God Bless you .. <img src="i/expressions/heart.gif" border="0"> joni
 

Tumbleweed

New member
Yes, that is the case with me and my sister. She is much healthier than me. We were both diagnosed as babies. I am more compliant and careful than her, but she continues to be much healthier than me. When I go on IV antibiotics I don't seem to respond well at all, and when she goes on IV antibiotics her PFTs shoot sky high.
 

Tumbleweed

New member
Yes, that is the case with me and my sister. She is much healthier than me. We were both diagnosed as babies. I am more compliant and careful than her, but she continues to be much healthier than me. When I go on IV antibiotics I don't seem to respond well at all, and when she goes on IV antibiotics her PFTs shoot sky high.
 

Tumbleweed

New member
Yes, that is the case with me and my sister. She is much healthier than me. We were both diagnosed as babies. I am more compliant and careful than her, but she continues to be much healthier than me. When I go on IV antibiotics I don't seem to respond well at all, and when she goes on IV antibiotics her PFTs shoot sky high.
 

Tumbleweed

New member
Yes, that is the case with me and my sister. She is much healthier than me. We were both diagnosed as babies. I am more compliant and careful than her, but she continues to be much healthier than me. When I go on IV antibiotics I don't seem to respond well at all, and when she goes on IV antibiotics her PFTs shoot sky high.
 

Tumbleweed

New member
Yes, that is the case with me and my sister. She is much healthier than me. We were both diagnosed as babies. I am more compliant and careful than her, but she continues to be much healthier than me. When I go on IV antibiotics I don't seem to respond well at all, and when she goes on IV antibiotics her PFTs shoot sky high.
 

flatfordl

New member
My daughter has Double DF508 and is doing really well. This could be due to her young age or that every CF case is different (maybe both?). Respiratory wise she is great and digestive wise she struggles.

I hope your daughter continues her good health.

Take Care,
Lynsey
 

flatfordl

New member
My daughter has Double DF508 and is doing really well. This could be due to her young age or that every CF case is different (maybe both?). Respiratory wise she is great and digestive wise she struggles.

I hope your daughter continues her good health.

Take Care,
Lynsey
 

flatfordl

New member
My daughter has Double DF508 and is doing really well. This could be due to her young age or that every CF case is different (maybe both?). Respiratory wise she is great and digestive wise she struggles.

I hope your daughter continues her good health.

Take Care,
Lynsey
 

flatfordl

New member
My daughter has Double DF508 and is doing really well. This could be due to her young age or that every CF case is different (maybe both?). Respiratory wise she is great and digestive wise she struggles.

I hope your daughter continues her good health.

Take Care,
Lynsey
 

flatfordl

New member
My daughter has Double DF508 and is doing really well. This could be due to her young age or that every CF case is different (maybe both?). Respiratory wise she is great and digestive wise she struggles.
<br />
<br />I hope your daughter continues her good health.
<br />
<br />Take Care,
<br />Lynsey
 
Top