This might be a really stupid question... but I had to ask

[hmw]

I hear a lot about lung transplants for those with advanced lung disease; even (less often) about liver transplants.

For those with severe PI and CFRD... do they ever do pancreas transplants? I have never seen this mentioned. Or do they just never do these because there are meds to replace the main functions of the pancreas? I was just curious because it is my understanding that over time, the enzymes just can't do as good a job as what the pancreas could do on it's own and PI continues to be a real struggle to deal with for those with certain mutations. And then of course there is the tricky balance of managing CFRD and PI together for many.

If this is a stupid question and/or has an obvious answer that has eluded me to this point... well... I've still got a lot to learn about this disease. <img src="i/expressions/face-icon-small-blush.gif" border="0"> But I have been wondering for a while.

 

[hmw]

I hear a lot about lung transplants for those with advanced lung disease; even (less often) about liver transplants.

For those with severe PI and CFRD... do they ever do pancreas transplants? I have never seen this mentioned. Or do they just never do these because there are meds to replace the main functions of the pancreas? I was just curious because it is my understanding that over time, the enzymes just can't do as good a job as what the pancreas could do on it's own and PI continues to be a real struggle to deal with for those with certain mutations. And then of course there is the tricky balance of managing CFRD and PI together for many.

If this is a stupid question and/or has an obvious answer that has eluded me to this point... well... I've still got a lot to learn about this disease. <img src="i/expressions/face-icon-small-blush.gif" border="0"> But I have been wondering for a while.

 

[hmw]

I hear a lot about lung transplants for those with advanced lung disease; even (less often) about liver transplants.

For those with severe PI and CFRD... do they ever do pancreas transplants? I have never seen this mentioned. Or do they just never do these because there are meds to replace the main functions of the pancreas? I was just curious because it is my understanding that over time, the enzymes just can't do as good a job as what the pancreas could do on it's own and PI continues to be a real struggle to deal with for those with certain mutations. And then of course there is the tricky balance of managing CFRD and PI together for many.

If this is a stupid question and/or has an obvious answer that has eluded me to this point... well... I've still got a lot to learn about this disease. <img src="i/expressions/face-icon-small-blush.gif" border="0"> But I have been wondering for a while.

 

[hmw]

I hear a lot about lung transplants for those with advanced lung disease; even (less often) about liver transplants.

For those with severe PI and CFRD... do they ever do pancreas transplants? I have never seen this mentioned. Or do they just never do these because there are meds to replace the main functions of the pancreas? I was just curious because it is my understanding that over time, the enzymes just can't do as good a job as what the pancreas could do on it's own and PI continues to be a real struggle to deal with for those with certain mutations. And then of course there is the tricky balance of managing CFRD and PI together for many.

If this is a stupid question and/or has an obvious answer that has eluded me to this point... well... I've still got a lot to learn about this disease. <img src="i/expressions/face-icon-small-blush.gif" border="0"> But I have been wondering for a while.

 

[hmw]

I hear a lot about lung transplants for those with advanced lung disease; even (less often) about liver transplants.
<br />
<br />For those with severe PI and CFRD... do they ever do pancreas transplants? I have never seen this mentioned. Or do they just never do these because there are meds to replace the main functions of the pancreas? I was just curious because it is my understanding that over time, the enzymes just can't do as good a job as what the pancreas could do on it's own and PI continues to be a real struggle to deal with for those with certain mutations. And then of course there is the tricky balance of managing CFRD and PI together for many.
<br />
<br />If this is a stupid question and/or has an obvious answer that has eluded me to this point... well... I've still got a lot to learn about this disease. <img src="i/expressions/face-icon-small-blush.gif" border="0"> But I have been wondering for a while.

 

[robert321]

i don't really know the official reason they don't do pancreas transplants, i haven't heard of one either but for something that can be otherwise controlled for the most part is it really worth the risks of transplant? even with the most severe pi people who have to have nightly feedings are better off as far as that aspect goes than someone fighting potential rejection and the suppressed immune system that comes with transplant

 

[robert321]

i don't really know the official reason they don't do pancreas transplants, i haven't heard of one either but for something that can be otherwise controlled for the most part is it really worth the risks of transplant? even with the most severe pi people who have to have nightly feedings are better off as far as that aspect goes than someone fighting potential rejection and the suppressed immune system that comes with transplant

 

[robert321]

i don't really know the official reason they don't do pancreas transplants, i haven't heard of one either but for something that can be otherwise controlled for the most part is it really worth the risks of transplant? even with the most severe pi people who have to have nightly feedings are better off as far as that aspect goes than someone fighting potential rejection and the suppressed immune system that comes with transplant

 

[robert321]

i don't really know the official reason they don't do pancreas transplants, i haven't heard of one either but for something that can be otherwise controlled for the most part is it really worth the risks of transplant? even with the most severe pi people who have to have nightly feedings are better off as far as that aspect goes than someone fighting potential rejection and the suppressed immune system that comes with transplant

 

[robert321]

i don't really know the official reason they don't do pancreas transplants, i haven't heard of one either but for something that can be otherwise controlled for the most part is it really worth the risks of transplant? even with the most severe pi people who have to have nightly feedings are better off as far as that aspect goes than someone fighting potential rejection and the suppressed immune system that comes with transplant

 

[kitomd21]

I would assume that the side effects of immunosuppressant drugs aren't worth the risk when enzyme supplementation and management of CFRD, should it occur, are the safer route...CFers have a difficult enough time fighting lung infections and becoming more susceptible to those infections would be dangerous....

 

[kitomd21]

I would assume that the side effects of immunosuppressant drugs aren't worth the risk when enzyme supplementation and management of CFRD, should it occur, are the safer route...CFers have a difficult enough time fighting lung infections and becoming more susceptible to those infections would be dangerous....

 

[kitomd21]

I would assume that the side effects of immunosuppressant drugs aren't worth the risk when enzyme supplementation and management of CFRD, should it occur, are the safer route...CFers have a difficult enough time fighting lung infections and becoming more susceptible to those infections would be dangerous....

 

[kitomd21]

I would assume that the side effects of immunosuppressant drugs aren't worth the risk when enzyme supplementation and management of CFRD, should it occur, are the safer route...CFers have a difficult enough time fighting lung infections and becoming more susceptible to those infections would be dangerous....

 

[kitomd21]

I would assume that the side effects of immunosuppressant drugs aren't worth the risk when enzyme supplementation and management of CFRD, should it occur, are the safer route...CFers have a difficult enough time fighting lung infections and becoming more susceptible to those infections would be dangerous....

 

[hmw]

I know next to nothing about the drugs those who have had transplants have to take other than 'they are dangerous' and that those who have had transplants can go into rejection even yrs later. However, I didn't know how serious the digestive issues could actually become for some with particular mutations, if they could reach a point where the meds & whatever else just would never be enough to substitute for what the body should be doing for itself and that would be it. I don't feel particularly intelligent at this point about asking <img src="i/expressions/face-icon-small-blush.gif" border="0"> but like I said, I had wondered about it.

 

[hmw]

I know next to nothing about the drugs those who have had transplants have to take other than 'they are dangerous' and that those who have had transplants can go into rejection even yrs later. However, I didn't know how serious the digestive issues could actually become for some with particular mutations, if they could reach a point where the meds & whatever else just would never be enough to substitute for what the body should be doing for itself and that would be it. I don't feel particularly intelligent at this point about asking <img src="i/expressions/face-icon-small-blush.gif" border="0"> but like I said, I had wondered about it.

 

[hmw]

I know next to nothing about the drugs those who have had transplants have to take other than 'they are dangerous' and that those who have had transplants can go into rejection even yrs later. However, I didn't know how serious the digestive issues could actually become for some with particular mutations, if they could reach a point where the meds & whatever else just would never be enough to substitute for what the body should be doing for itself and that would be it. I don't feel particularly intelligent at this point about asking <img src="i/expressions/face-icon-small-blush.gif" border="0"> but like I said, I had wondered about it.

 

[hmw]

I know next to nothing about the drugs those who have had transplants have to take other than 'they are dangerous' and that those who have had transplants can go into rejection even yrs later. However, I didn't know how serious the digestive issues could actually become for some with particular mutations, if they could reach a point where the meds & whatever else just would never be enough to substitute for what the body should be doing for itself and that would be it. I don't feel particularly intelligent at this point about asking <img src="i/expressions/face-icon-small-blush.gif" border="0"> but like I said, I had wondered about it.

 

[hmw]

I know next to nothing about the drugs those who have had transplants have to take other than 'they are dangerous' and that those who have had transplants can go into rejection even yrs later. However, I didn't know how serious the digestive issues could actually become for some with particular mutations, if they could reach a point where the meds & whatever else just would never be enough to substitute for what the body should be doing for itself and that would be it. I don't feel particularly intelligent at this point about asking <img src="i/expressions/face-icon-small-blush.gif" border="0"> but like I said, I had wondered about it.