If your husband is seeing Conrad for a routine GHPP thing I wouldn't worry. This event of mine began in June of 03, went undiagnosed for about 10 months, the consequences of which I am still working through.
Conrad, who is in charge over there was one-half of the problem. The other half was a former doctor who was either fired or moved on named, Dr. Julie Wood, and an assistant named Michael, who also moved on or was fired. When I was at UCSD Thornton they were highly disorganized, and the doctors were extremely poor about getting back to me (follow-up). They even had trouble responding to simple emails. Since my experience with them, I heard they have had the former the social worker for the team take on organizing and planning logistics over there, a Mrs. Brown. They were capable of routine stuff, but when issues arose the Doctors let me down pretty good. I am still so mad at that team that I have preferred to drive the 2-4 hours up and 2-4 hours back in traffic to go to USC in Los Angeles to meet CF doctors. After working with USC, it is all the more evident to me that UCSD was all turned around and up side down. One up side to UCSD Thornton, was that they have nice hospital rooms, and the pulmonary lab technicians are really great and supportive.
And to address the previous person's response, it was a renowned, though retired virologist/parasitologist who diagnosed my 3 parasites and 2 funguses. Because he was retired at the time of his analysis and diagnosis, my legal case is much more challenging. I figure if a mechanic is retired it doesn't discount his knowledge or skills, but so far no lawyer will bank on fighting for me. At the time, none of the hospital labs would test me without a resident doctor's participation/orders. Not even the independent labs the hospitals contract analysis out to would help or direct me, so I hired a specialist out of NYC, through an OMD who was trying to diagnose me. Since diagnosis and treatment, I have gained much of my weight back and am feeling worlds better, though I am still about 10lbs under weight. But the length and nature of the events took permanently 15-20% of my lung function, and now no matter how hard I try or what measures I take to improve, I can't get rid of the hemotopsis that developed in the course of my extended bout. I never had it before this event.
My only recommendation is that who ever you are, or which ever doctor you see YOU MUST BE AN ACTIVE PARTICIPANT IN YOUR CARE. Doctors make plenty of mistakes, some not so important, others vitally important. Though it isnt your job and shouldnt be your job, you must check and analyze the doctors work. If I hadnt taken matters into my own hands, I would likely be dead by now. At my worst I was 114lbs, and with a 56 frame, that is pretty light. I didnt have too much more in me to keep fighting, but I didnt have anything to loose by trying to look outside of the box.
