Thanks Rosie that means a whole lot. I can only imagine how the road you have travelled has been. One thing that I do to bouy myself when feeling down is thinking how trailblazers like you and your family have shown that good care and consistent care can extend quality of life. I think about how advances are continuing the work for us all. I hope that you meet and see some of us as you continue to trudge the road to happy destiny.
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Thanks Rosie that means a whole lot. I can only imagine how the road you have travelled has been. One thing that I do to bouy myself when feeling down is thinking how trailblazers like you and your family have shown that good care and consistent care can extend quality of life. I think about how advances are continuing the work for us all. I hope that you meet and see some of us as you continue to trudge the road to happy destiny.
Thanks Rosie that means a whole lot. I can only imagine how the road you have travelled has been. One thing that I do to bouy myself when feeling down is thinking how trailblazers like you and your family have shown that good care and consistent care can extend quality of life. I think about how advances are continuing the work for us all. I hope that you meet and see some of us as you continue to trudge the road to happy destiny.
Thanks Rosie that means a whole lot. I can only imagine how the road you have travelled has been. One thing that I do to bouy myself when feeling down is thinking how trailblazers like you and your family have shown that good care and consistent care can extend quality of life. I think about how advances are continuing the work for us all. I hope that you meet and see some of us as you continue to trudge the road to happy destiny.
Thanks Rosie that means a whole lot. I can only imagine how the road you have travelled has been. One thing that I do to bouy myself when feeling down is thinking how trailblazers like you and your family have shown that good care and consistent care can extend quality of life. I think about how advances are continuing the work for us all. I hope that you meet and see some of us as you continue to trudge the road to happy destiny.
Heh Rosie! Funny how we are running into eachother now! I"m glad you are posting a little, we need your perspective and experiences! You seem like such a caring, sweet person. I ditto what everyone else wrote, THANK YOU!! for such a great post!! I pray that Zoe, being your kindred spirit~as I've decided to dub you two~ because of her and you being the youngest of 11 kiddos~and the only one with cf!<img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/heart.gif" border="0"> will lead as happy, long and fulfilling life as you are!
Thank you again,
Love,
Thank you again,
Love,
Heh Rosie! Funny how we are running into eachother now! I"m glad you are posting a little, we need your perspective and experiences! You seem like such a caring, sweet person. I ditto what everyone else wrote, THANK YOU!! for such a great post!! I pray that Zoe, being your kindred spirit~as I've decided to dub you two~ because of her and you being the youngest of 11 kiddos~and the only one with cf!<img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/heart.gif" border="0"> will lead as happy, long and fulfilling life as you are!
Thank you again,
Love,
Thank you again,
Love,
Heh Rosie! Funny how we are running into eachother now! I"m glad you are posting a little, we need your perspective and experiences! You seem like such a caring, sweet person. I ditto what everyone else wrote, THANK YOU!! for such a great post!! I pray that Zoe, being your kindred spirit~as I've decided to dub you two~ because of her and you being the youngest of 11 kiddos~and the only one with cf!<img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/heart.gif" border="0"> will lead as happy, long and fulfilling life as you are!
Thank you again,
Love,
Thank you again,
Love,
Heh Rosie! Funny how we are running into eachother now! I"m glad you are posting a little, we need your perspective and experiences! You seem like such a caring, sweet person. I ditto what everyone else wrote, THANK YOU!! for such a great post!! I pray that Zoe, being your kindred spirit~as I've decided to dub you two~ because of her and you being the youngest of 11 kiddos~and the only one with cf!<img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/heart.gif" border="0"> will lead as happy, long and fulfilling life as you are!
Thank you again,
Love,
Thank you again,
Love,
<br />Heh Rosie! Funny how we are running into eachother now! I"m glad you are posting a little, we need your perspective and experiences! You seem like such a caring, sweet person. I ditto what everyone else wrote, THANK YOU!! for such a great post!! I pray that Zoe, being your kindred spirit~as I've decided to dub you two~ because of her and you being the youngest of 11 kiddos~and the only one with cf!<img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/heart.gif" border="0"> will lead as happy, long and fulfilling life as you are!
<br />
<br />Thank you again,
<br />Love,
<br />
<br />
<br />Thank you again,
<br />Love,
<br />
P
PeteRose
Guest
You are all so kind. My intent was to Thank you for all you do for your CF children and for your families. On top of all that responsibility - you do fundraising, etc. I cannot even imagine the stress that you are under sometimes. I totally think (I am speaking just for me) that it is much easier to be the patient than the caregiver.
One other thing that I noticed in some of the replies. Some of you said that you would take your child's place, which is so unbelievable kind, but we don't want you to take our place. Again only speaking for me, CF makes me who I am and I am so much stronger than I ever imagined I could be. I know that some of my sisters and brothers could not have handeled CF.
Zoey - the last of 11 just like me - how cool is that?
You are all my hero's.
Rosie 47 w/CF
One other thing that I noticed in some of the replies. Some of you said that you would take your child's place, which is so unbelievable kind, but we don't want you to take our place. Again only speaking for me, CF makes me who I am and I am so much stronger than I ever imagined I could be. I know that some of my sisters and brothers could not have handeled CF.
Zoey - the last of 11 just like me - how cool is that?
You are all my hero's.
Rosie 47 w/CF
P
PeteRose
Guest
You are all so kind. My intent was to Thank you for all you do for your CF children and for your families. On top of all that responsibility - you do fundraising, etc. I cannot even imagine the stress that you are under sometimes. I totally think (I am speaking just for me) that it is much easier to be the patient than the caregiver.
One other thing that I noticed in some of the replies. Some of you said that you would take your child's place, which is so unbelievable kind, but we don't want you to take our place. Again only speaking for me, CF makes me who I am and I am so much stronger than I ever imagined I could be. I know that some of my sisters and brothers could not have handeled CF.
Zoey - the last of 11 just like me - how cool is that?
You are all my hero's.
Rosie 47 w/CF
One other thing that I noticed in some of the replies. Some of you said that you would take your child's place, which is so unbelievable kind, but we don't want you to take our place. Again only speaking for me, CF makes me who I am and I am so much stronger than I ever imagined I could be. I know that some of my sisters and brothers could not have handeled CF.
Zoey - the last of 11 just like me - how cool is that?
You are all my hero's.
Rosie 47 w/CF
P
PeteRose
Guest
You are all so kind. My intent was to Thank you for all you do for your CF children and for your families. On top of all that responsibility - you do fundraising, etc. I cannot even imagine the stress that you are under sometimes. I totally think (I am speaking just for me) that it is much easier to be the patient than the caregiver.
One other thing that I noticed in some of the replies. Some of you said that you would take your child's place, which is so unbelievable kind, but we don't want you to take our place. Again only speaking for me, CF makes me who I am and I am so much stronger than I ever imagined I could be. I know that some of my sisters and brothers could not have handeled CF.
Zoey - the last of 11 just like me - how cool is that?
You are all my hero's.
Rosie 47 w/CF
One other thing that I noticed in some of the replies. Some of you said that you would take your child's place, which is so unbelievable kind, but we don't want you to take our place. Again only speaking for me, CF makes me who I am and I am so much stronger than I ever imagined I could be. I know that some of my sisters and brothers could not have handeled CF.
Zoey - the last of 11 just like me - how cool is that?
You are all my hero's.
Rosie 47 w/CF
P
PeteRose
Guest
You are all so kind. My intent was to Thank you for all you do for your CF children and for your families. On top of all that responsibility - you do fundraising, etc. I cannot even imagine the stress that you are under sometimes. I totally think (I am speaking just for me) that it is much easier to be the patient than the caregiver.
One other thing that I noticed in some of the replies. Some of you said that you would take your child's place, which is so unbelievable kind, but we don't want you to take our place. Again only speaking for me, CF makes me who I am and I am so much stronger than I ever imagined I could be. I know that some of my sisters and brothers could not have handeled CF.
Zoey - the last of 11 just like me - how cool is that?
You are all my hero's.
Rosie 47 w/CF
One other thing that I noticed in some of the replies. Some of you said that you would take your child's place, which is so unbelievable kind, but we don't want you to take our place. Again only speaking for me, CF makes me who I am and I am so much stronger than I ever imagined I could be. I know that some of my sisters and brothers could not have handeled CF.
Zoey - the last of 11 just like me - how cool is that?
You are all my hero's.
Rosie 47 w/CF
P
PeteRose
Guest
You are all so kind. My intent was to Thank you for all you do for your CF children and for your families. On top of all that responsibility - you do fundraising, etc. I cannot even imagine the stress that you are under sometimes. I totally think (I am speaking just for me) that it is much easier to be the patient than the caregiver.
<br />
<br />One other thing that I noticed in some of the replies. Some of you said that you would take your child's place, which is so unbelievable kind, but we don't want you to take our place. Again only speaking for me, CF makes me who I am and I am so much stronger than I ever imagined I could be. I know that some of my sisters and brothers could not have handeled CF.
<br />
<br />Zoey - the last of 11 just like me - how cool is that?
<br />
<br />You are all my hero's.
<br />
<br />Rosie 47 w/CF
<br />
<br />One other thing that I noticed in some of the replies. Some of you said that you would take your child's place, which is so unbelievable kind, but we don't want you to take our place. Again only speaking for me, CF makes me who I am and I am so much stronger than I ever imagined I could be. I know that some of my sisters and brothers could not have handeled CF.
<br />
<br />Zoey - the last of 11 just like me - how cool is that?
<br />
<br />You are all my hero's.
<br />
<br />Rosie 47 w/CF
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>PeteRose</b></i>
I know that some of my sisters and brothers could not have handeled CF.
Rosie 47 w/CF</end quote></div>
Jordan has made this comment to me before. He says he is glad it's him and not his brothers. By the same token, his older brother went through an extremely rough time when Jordan was dx, and told me he felt guilty that it was Jordan and not him. I suppose it's normal when you love each other to wish you could take it on yourself. I certainly know it's easier for me to face my own death than that of any of my children.
Also, as bad as CF is, it has brought good things to our lives. That may sound crazy, but as Rosie said, it makes you who you are, and we certainly don't take anything for granted. We are grateful for every small thing.
Stacey
I know that some of my sisters and brothers could not have handeled CF.
Rosie 47 w/CF</end quote></div>
Jordan has made this comment to me before. He says he is glad it's him and not his brothers. By the same token, his older brother went through an extremely rough time when Jordan was dx, and told me he felt guilty that it was Jordan and not him. I suppose it's normal when you love each other to wish you could take it on yourself. I certainly know it's easier for me to face my own death than that of any of my children.
Also, as bad as CF is, it has brought good things to our lives. That may sound crazy, but as Rosie said, it makes you who you are, and we certainly don't take anything for granted. We are grateful for every small thing.
Stacey
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>PeteRose</b></i>
I know that some of my sisters and brothers could not have handeled CF.
Rosie 47 w/CF</end quote></div>
Jordan has made this comment to me before. He says he is glad it's him and not his brothers. By the same token, his older brother went through an extremely rough time when Jordan was dx, and told me he felt guilty that it was Jordan and not him. I suppose it's normal when you love each other to wish you could take it on yourself. I certainly know it's easier for me to face my own death than that of any of my children.
Also, as bad as CF is, it has brought good things to our lives. That may sound crazy, but as Rosie said, it makes you who you are, and we certainly don't take anything for granted. We are grateful for every small thing.
Stacey
I know that some of my sisters and brothers could not have handeled CF.
Rosie 47 w/CF</end quote></div>
Jordan has made this comment to me before. He says he is glad it's him and not his brothers. By the same token, his older brother went through an extremely rough time when Jordan was dx, and told me he felt guilty that it was Jordan and not him. I suppose it's normal when you love each other to wish you could take it on yourself. I certainly know it's easier for me to face my own death than that of any of my children.
Also, as bad as CF is, it has brought good things to our lives. That may sound crazy, but as Rosie said, it makes you who you are, and we certainly don't take anything for granted. We are grateful for every small thing.
Stacey
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>PeteRose</b></i>
I know that some of my sisters and brothers could not have handeled CF.
Rosie 47 w/CF</end quote></div>
Jordan has made this comment to me before. He says he is glad it's him and not his brothers. By the same token, his older brother went through an extremely rough time when Jordan was dx, and told me he felt guilty that it was Jordan and not him. I suppose it's normal when you love each other to wish you could take it on yourself. I certainly know it's easier for me to face my own death than that of any of my children.
Also, as bad as CF is, it has brought good things to our lives. That may sound crazy, but as Rosie said, it makes you who you are, and we certainly don't take anything for granted. We are grateful for every small thing.
Stacey
I know that some of my sisters and brothers could not have handeled CF.
Rosie 47 w/CF</end quote></div>
Jordan has made this comment to me before. He says he is glad it's him and not his brothers. By the same token, his older brother went through an extremely rough time when Jordan was dx, and told me he felt guilty that it was Jordan and not him. I suppose it's normal when you love each other to wish you could take it on yourself. I certainly know it's easier for me to face my own death than that of any of my children.
Also, as bad as CF is, it has brought good things to our lives. That may sound crazy, but as Rosie said, it makes you who you are, and we certainly don't take anything for granted. We are grateful for every small thing.
Stacey
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>PeteRose</b></i>
I know that some of my sisters and brothers could not have handeled CF.
Rosie 47 w/CF</end quote>
Jordan has made this comment to me before. He says he is glad it's him and not his brothers. By the same token, his older brother went through an extremely rough time when Jordan was dx, and told me he felt guilty that it was Jordan and not him. I suppose it's normal when you love each other to wish you could take it on yourself. I certainly know it's easier for me to face my own death than that of any of my children.
Also, as bad as CF is, it has brought good things to our lives. That may sound crazy, but as Rosie said, it makes you who you are, and we certainly don't take anything for granted. We are grateful for every small thing.
Stacey
I know that some of my sisters and brothers could not have handeled CF.
Rosie 47 w/CF</end quote>
Jordan has made this comment to me before. He says he is glad it's him and not his brothers. By the same token, his older brother went through an extremely rough time when Jordan was dx, and told me he felt guilty that it was Jordan and not him. I suppose it's normal when you love each other to wish you could take it on yourself. I certainly know it's easier for me to face my own death than that of any of my children.
Also, as bad as CF is, it has brought good things to our lives. That may sound crazy, but as Rosie said, it makes you who you are, and we certainly don't take anything for granted. We are grateful for every small thing.
Stacey
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>PeteRose</b></i>
<br />
<br />I know that some of my sisters and brothers could not have handeled CF.
<br />Rosie 47 w/CF</end quote>
<br />
<br />
<br />Jordan has made this comment to me before. He says he is glad it's him and not his brothers. By the same token, his older brother went through an extremely rough time when Jordan was dx, and told me he felt guilty that it was Jordan and not him. I suppose it's normal when you love each other to wish you could take it on yourself. I certainly know it's easier for me to face my own death than that of any of my children.
<br />
<br />Also, as bad as CF is, it has brought good things to our lives. That may sound crazy, but as Rosie said, it makes you who you are, and we certainly don't take anything for granted. We are grateful for every small thing.
<br />
<br />Stacey
<br />
<br />
<br />
<br />I know that some of my sisters and brothers could not have handeled CF.
<br />Rosie 47 w/CF</end quote>
<br />
<br />
<br />Jordan has made this comment to me before. He says he is glad it's him and not his brothers. By the same token, his older brother went through an extremely rough time when Jordan was dx, and told me he felt guilty that it was Jordan and not him. I suppose it's normal when you love each other to wish you could take it on yourself. I certainly know it's easier for me to face my own death than that of any of my children.
<br />
<br />Also, as bad as CF is, it has brought good things to our lives. That may sound crazy, but as Rosie said, it makes you who you are, and we certainly don't take anything for granted. We are grateful for every small thing.
<br />
<br />Stacey
<br />
<br />