My son has had a few sweat tests so maybe I can help with some of the questions. What was explained to us is that it takes two positive sweats to diagnois cf because there is a possibility that the first one was incorrect. And then each hospital will want one done at their clinic because they don't trust each other's lab procedures. There are a few different sweat collection techniques but they all do the same things - I've seen coils done on one arm, pads done on one arm and pads done on two arms at once (got a separate result for each arm). Do push for genetic testing either way though, because the 53 is high enough to be a concern.
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To be or not to be...
- Thread starter F8AW8SU2
- Start date
My son has had a few sweat tests so maybe I can help with some of the questions. What was explained to us is that it takes two positive sweats to diagnois cf because there is a possibility that the first one was incorrect. And then each hospital will want one done at their clinic because they don't trust each other's lab procedures. There are a few different sweat collection techniques but they all do the same things - I've seen coils done on one arm, pads done on one arm and pads done on two arms at once (got a separate result for each arm). Do push for genetic testing either way though, because the 53 is high enough to be a concern.
My son has had a few sweat tests so maybe I can help with some of the questions. What was explained to us is that it takes two positive sweats to diagnois cf because there is a possibility that the first one was incorrect. And then each hospital will want one done at their clinic because they don't trust each other's lab procedures. There are a few different sweat collection techniques but they all do the same things - I've seen coils done on one arm, pads done on one arm and pads done on two arms at once (got a separate result for each arm). Do push for genetic testing either way though, because the 53 is high enough to be a concern.
My son has had a few sweat tests so maybe I can help with some of the questions. What was explained to us is that it takes two positive sweats to diagnois cf because there is a possibility that the first one was incorrect. And then each hospital will want one done at their clinic because they don't trust each other's lab procedures. There are a few different sweat collection techniques but they all do the same things - I've seen coils done on one arm, pads done on one arm and pads done on two arms at once (got a separate result for each arm). Do push for genetic testing either way though, because the 53 is high enough to be a concern.
My son has had a few sweat tests so maybe I can help with some of the questions. What was explained to us is that it takes two positive sweats to diagnois cf because there is a possibility that the first one was incorrect. And then each hospital will want one done at their clinic because they don't trust each other's lab procedures. There are a few different sweat collection techniques but they all do the same things - I've seen coils done on one arm, pads done on one arm and pads done on two arms at once (got a separate result for each arm). Do push for genetic testing either way though, because the 53 is high enough to be a concern.
Thank you all for your responses. Alyssa, I think you may be right on both counts with the insurance and the first test being inaccurate. I am active duty military and have Tricare. Baptist Hospital is in our network but the Lebonheur Children's Hospital is not. Lebonheur is where we had the first test done and it appears that they are the certified care center so I guess that is why we being referred back to them.
I will be patient and wait for this next sweat test. I will layer his clothes, give him plenty to drink, and make him play hard so he will sweat good! That way we will know if they at least have enough to test. I'm pretty sure that's what was wrong with the first one because we had such a hard time getting him to sit still for the first part of the procedure (he saw people in scrubs and freaked out because all that he has been through) and then on top of it, he didn't seem to sweat at all. But it may take 3 weeks to get an appointment, that's about what it took last time.
If we get a positive diagnosis from that then I guess we are done in the testing arena. If not, my hubby and I have already decided that we will push for the genetic testing even if we have to pay for it.
Thank you all for the support.
Dori
I will be patient and wait for this next sweat test. I will layer his clothes, give him plenty to drink, and make him play hard so he will sweat good! That way we will know if they at least have enough to test. I'm pretty sure that's what was wrong with the first one because we had such a hard time getting him to sit still for the first part of the procedure (he saw people in scrubs and freaked out because all that he has been through) and then on top of it, he didn't seem to sweat at all. But it may take 3 weeks to get an appointment, that's about what it took last time.
If we get a positive diagnosis from that then I guess we are done in the testing arena. If not, my hubby and I have already decided that we will push for the genetic testing even if we have to pay for it.
Thank you all for the support.
Dori
Thank you all for your responses. Alyssa, I think you may be right on both counts with the insurance and the first test being inaccurate. I am active duty military and have Tricare. Baptist Hospital is in our network but the Lebonheur Children's Hospital is not. Lebonheur is where we had the first test done and it appears that they are the certified care center so I guess that is why we being referred back to them.
I will be patient and wait for this next sweat test. I will layer his clothes, give him plenty to drink, and make him play hard so he will sweat good! That way we will know if they at least have enough to test. I'm pretty sure that's what was wrong with the first one because we had such a hard time getting him to sit still for the first part of the procedure (he saw people in scrubs and freaked out because all that he has been through) and then on top of it, he didn't seem to sweat at all. But it may take 3 weeks to get an appointment, that's about what it took last time.
If we get a positive diagnosis from that then I guess we are done in the testing arena. If not, my hubby and I have already decided that we will push for the genetic testing even if we have to pay for it.
Thank you all for the support.
Dori
I will be patient and wait for this next sweat test. I will layer his clothes, give him plenty to drink, and make him play hard so he will sweat good! That way we will know if they at least have enough to test. I'm pretty sure that's what was wrong with the first one because we had such a hard time getting him to sit still for the first part of the procedure (he saw people in scrubs and freaked out because all that he has been through) and then on top of it, he didn't seem to sweat at all. But it may take 3 weeks to get an appointment, that's about what it took last time.
If we get a positive diagnosis from that then I guess we are done in the testing arena. If not, my hubby and I have already decided that we will push for the genetic testing even if we have to pay for it.
Thank you all for the support.
Dori
Thank you all for your responses. Alyssa, I think you may be right on both counts with the insurance and the first test being inaccurate. I am active duty military and have Tricare. Baptist Hospital is in our network but the Lebonheur Children's Hospital is not. Lebonheur is where we had the first test done and it appears that they are the certified care center so I guess that is why we being referred back to them.
I will be patient and wait for this next sweat test. I will layer his clothes, give him plenty to drink, and make him play hard so he will sweat good! That way we will know if they at least have enough to test. I'm pretty sure that's what was wrong with the first one because we had such a hard time getting him to sit still for the first part of the procedure (he saw people in scrubs and freaked out because all that he has been through) and then on top of it, he didn't seem to sweat at all. But it may take 3 weeks to get an appointment, that's about what it took last time.
If we get a positive diagnosis from that then I guess we are done in the testing arena. If not, my hubby and I have already decided that we will push for the genetic testing even if we have to pay for it.
Thank you all for the support.
Dori
I will be patient and wait for this next sweat test. I will layer his clothes, give him plenty to drink, and make him play hard so he will sweat good! That way we will know if they at least have enough to test. I'm pretty sure that's what was wrong with the first one because we had such a hard time getting him to sit still for the first part of the procedure (he saw people in scrubs and freaked out because all that he has been through) and then on top of it, he didn't seem to sweat at all. But it may take 3 weeks to get an appointment, that's about what it took last time.
If we get a positive diagnosis from that then I guess we are done in the testing arena. If not, my hubby and I have already decided that we will push for the genetic testing even if we have to pay for it.
Thank you all for the support.
Dori
Thank you all for your responses. Alyssa, I think you may be right on both counts with the insurance and the first test being inaccurate. I am active duty military and have Tricare. Baptist Hospital is in our network but the Lebonheur Children's Hospital is not. Lebonheur is where we had the first test done and it appears that they are the certified care center so I guess that is why we being referred back to them.
I will be patient and wait for this next sweat test. I will layer his clothes, give him plenty to drink, and make him play hard so he will sweat good! That way we will know if they at least have enough to test. I'm pretty sure that's what was wrong with the first one because we had such a hard time getting him to sit still for the first part of the procedure (he saw people in scrubs and freaked out because all that he has been through) and then on top of it, he didn't seem to sweat at all. But it may take 3 weeks to get an appointment, that's about what it took last time.
If we get a positive diagnosis from that then I guess we are done in the testing arena. If not, my hubby and I have already decided that we will push for the genetic testing even if we have to pay for it.
Thank you all for the support.
Dori
I will be patient and wait for this next sweat test. I will layer his clothes, give him plenty to drink, and make him play hard so he will sweat good! That way we will know if they at least have enough to test. I'm pretty sure that's what was wrong with the first one because we had such a hard time getting him to sit still for the first part of the procedure (he saw people in scrubs and freaked out because all that he has been through) and then on top of it, he didn't seem to sweat at all. But it may take 3 weeks to get an appointment, that's about what it took last time.
If we get a positive diagnosis from that then I guess we are done in the testing arena. If not, my hubby and I have already decided that we will push for the genetic testing even if we have to pay for it.
Thank you all for the support.
Dori
Thank you all for your responses. Alyssa, I think you may be right on both counts with the insurance and the first test being inaccurate. I am active duty military and have Tricare. Baptist Hospital is in our network but the Lebonheur Children's Hospital is not. Lebonheur is where we had the first test done and it appears that they are the certified care center so I guess that is why we being referred back to them.
I will be patient and wait for this next sweat test. I will layer his clothes, give him plenty to drink, and make him play hard so he will sweat good! That way we will know if they at least have enough to test. I'm pretty sure that's what was wrong with the first one because we had such a hard time getting him to sit still for the first part of the procedure (he saw people in scrubs and freaked out because all that he has been through) and then on top of it, he didn't seem to sweat at all. But it may take 3 weeks to get an appointment, that's about what it took last time.
If we get a positive diagnosis from that then I guess we are done in the testing arena. If not, my hubby and I have already decided that we will push for the genetic testing even if we have to pay for it.
Thank you all for the support.
Dori
I will be patient and wait for this next sweat test. I will layer his clothes, give him plenty to drink, and make him play hard so he will sweat good! That way we will know if they at least have enough to test. I'm pretty sure that's what was wrong with the first one because we had such a hard time getting him to sit still for the first part of the procedure (he saw people in scrubs and freaked out because all that he has been through) and then on top of it, he didn't seem to sweat at all. But it may take 3 weeks to get an appointment, that's about what it took last time.
If we get a positive diagnosis from that then I guess we are done in the testing arena. If not, my hubby and I have already decided that we will push for the genetic testing even if we have to pay for it.
Thank you all for the support.
Dori