To have more children (with possible CF) or not

sknoell

New member
Tess, Thank you, you are the type of person I was looking for an answer from. Someone in that exact situation. Sounds like your parents did a great job with you. You sound very levelheaded.
 

JazzysMom

New member
I do apologize since I didnt read the very last line of your post correctly. BUT I think our "lectures" have validity. Its not only about knowing the risk......its handling it accordingly. Good Luck!
 

JazzysMom

New member
I do apologize since I didnt read the very last line of your post correctly. BUT I think our "lectures" have validity. Its not only about knowing the risk......its handling it accordingly. Good Luck!
 

JazzysMom

New member
I do apologize since I didnt read the very last line of your post correctly. BUT I think our "lectures" have validity. Its not only about knowing the risk......its handling it accordingly. Good Luck!
 

blondelawyer

New member
Have you looked into foster care adoption...the costs for that are very minimal.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sknoell</b></i>





To the person who mentioned adoption, we have looked at that as well and to be honest, it cost as much as IVF so if I can't afford IVF, I cannot afford adoption. You are talking at least $10 - $15k.



.</b></b></end quote></div>
 

blondelawyer

New member
Have you looked into foster care adoption...the costs for that are very minimal.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sknoell</b></i>





To the person who mentioned adoption, we have looked at that as well and to be honest, it cost as much as IVF so if I can't afford IVF, I cannot afford adoption. You are talking at least $10 - $15k.



.</b></b></end quote></div>
 

blondelawyer

New member
Have you looked into foster care adoption...the costs for that are very minimal.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sknoell</b></i>





To the person who mentioned adoption, we have looked at that as well and to be honest, it cost as much as IVF so if I can't afford IVF, I cannot afford adoption. You are talking at least $10 - $15k.



.</b></b></end quote></div>
 

dasjsmum

New member
hello

As you can see by my profile, we have four children...the first two had cf, but have been relatively well their whole lives, sure, they have some issues to deal with, but not like some others wcf.
My daughter (25) is married and plans on having a family (her husband is not a carrier)...she is determined not to let cf dictate how she lives her life... when they are ready to start a family they will (like every other young couple).

We decided to have another child after 15 years...our first two were very well, otherwise we probably wouldnt have. We didnt have any testing for cf. This child has cf also and has been a bit sicker than the other two.
Our fourth child was a surprise gift who does not have cf (but wishes he did so he could eat junk food).

None of my children would choose not to have been born, even with cf...my daughter has spoken to me about this. Life is a GIFT...every day is a gift, every life is a gift, even with cf or other problems.

I didnt know in advance that my kids had cf, and I could have with the third and fourth, but chose not to...I would have kept them anyhow, what was the point in knowing. I realise that people have different views on this...it is entirely personal and I make no judgment on any others.

For a fantastic view on life from a cf person who has been through everything possible and loves life to the utmost...read this

<a target=_blank class=ftalternatingbarlinklarge href="http://www.pinkandsmiley.blogspot.com/
">"><a target=_blank class=ftalternatingbarlinklarge href="http://www.pinkandsmiley.blogspot.com/
<br ">http://www.pinkandsmiley.blogspot.com/
</a></a>

I realise this could be a bit confronting, my point of posting this blog link is to show what a fantastic outlook on life Emily has, despite everything she has been through, she wants to live more than anything else...it doesnt get worse (in cf) than Emily's experience, but be inspired by her optimism and courage...I think she's glad to be here!
 

dasjsmum

New member
hello

As you can see by my profile, we have four children...the first two had cf, but have been relatively well their whole lives, sure, they have some issues to deal with, but not like some others wcf.
My daughter (25) is married and plans on having a family (her husband is not a carrier)...she is determined not to let cf dictate how she lives her life... when they are ready to start a family they will (like every other young couple).

We decided to have another child after 15 years...our first two were very well, otherwise we probably wouldnt have. We didnt have any testing for cf. This child has cf also and has been a bit sicker than the other two.
Our fourth child was a surprise gift who does not have cf (but wishes he did so he could eat junk food).

None of my children would choose not to have been born, even with cf...my daughter has spoken to me about this. Life is a GIFT...every day is a gift, every life is a gift, even with cf or other problems.

I didnt know in advance that my kids had cf, and I could have with the third and fourth, but chose not to...I would have kept them anyhow, what was the point in knowing. I realise that people have different views on this...it is entirely personal and I make no judgment on any others.

For a fantastic view on life from a cf person who has been through everything possible and loves life to the utmost...read this

<a target=_blank class=ftalternatingbarlinklarge href="http://www.pinkandsmiley.blogspot.com/
">"><a target=_blank class=ftalternatingbarlinklarge href="http://www.pinkandsmiley.blogspot.com/
<br ">http://www.pinkandsmiley.blogspot.com/
</a></a>

I realise this could be a bit confronting, my point of posting this blog link is to show what a fantastic outlook on life Emily has, despite everything she has been through, she wants to live more than anything else...it doesnt get worse (in cf) than Emily's experience, but be inspired by her optimism and courage...I think she's glad to be here!
 

dasjsmum

New member
hello

As you can see by my profile, we have four children...the first two had cf, but have been relatively well their whole lives, sure, they have some issues to deal with, but not like some others wcf.
My daughter (25) is married and plans on having a family (her husband is not a carrier)...she is determined not to let cf dictate how she lives her life... when they are ready to start a family they will (like every other young couple).

We decided to have another child after 15 years...our first two were very well, otherwise we probably wouldnt have. We didnt have any testing for cf. This child has cf also and has been a bit sicker than the other two.
Our fourth child was a surprise gift who does not have cf (but wishes he did so he could eat junk food).

None of my children would choose not to have been born, even with cf...my daughter has spoken to me about this. Life is a GIFT...every day is a gift, every life is a gift, even with cf or other problems.

I didnt know in advance that my kids had cf, and I could have with the third and fourth, but chose not to...I would have kept them anyhow, what was the point in knowing. I realise that people have different views on this...it is entirely personal and I make no judgment on any others.

For a fantastic view on life from a cf person who has been through everything possible and loves life to the utmost...read this

<a target=_blank class=ftalternatingbarlinklarge href="http://www.pinkandsmiley.blogspot.com/
">"><a target=_blank class=ftalternatingbarlinklarge href="http://www.pinkandsmiley.blogspot.com/
<br ">http://www.pinkandsmiley.blogspot.com/
</a></a>

I realise this could be a bit confronting, my point of posting this blog link is to show what a fantastic outlook on life Emily has, despite everything she has been through, she wants to live more than anything else...it doesnt get worse (in cf) than Emily's experience, but be inspired by her optimism and courage...I think she's glad to be here!
 

katyf13

New member
I don't think anyone lectured you. When you are thinking about having a child with cf you have to consider the fact that they are going to grow up to be an adult with cf. I doubt any child would ever resent their parents for being born. I know Mike is very happy with his life and has learned a lot from having cf. A more important question is can you be a support system for two young adults going through the transplant process? (or worse?) No trying to be a downer, but I know how hard it is for Mike's parents watching his health deteriorate as we wait for new lungs for years. They are able to give him all of their attention because he is their only child. I wouldn't wish it on them a second time. Nor on myself, which is why we will adopt if I am a carrier (if we decide to have a kid). Good luck making what is a very difficult decision! It is not one anyone on here will agree on!
 

katyf13

New member
I don't think anyone lectured you. When you are thinking about having a child with cf you have to consider the fact that they are going to grow up to be an adult with cf. I doubt any child would ever resent their parents for being born. I know Mike is very happy with his life and has learned a lot from having cf. A more important question is can you be a support system for two young adults going through the transplant process? (or worse?) No trying to be a downer, but I know how hard it is for Mike's parents watching his health deteriorate as we wait for new lungs for years. They are able to give him all of their attention because he is their only child. I wouldn't wish it on them a second time. Nor on myself, which is why we will adopt if I am a carrier (if we decide to have a kid). Good luck making what is a very difficult decision! It is not one anyone on here will agree on!
 

katyf13

New member
I don't think anyone lectured you. When you are thinking about having a child with cf you have to consider the fact that they are going to grow up to be an adult with cf. I doubt any child would ever resent their parents for being born. I know Mike is very happy with his life and has learned a lot from having cf. A more important question is can you be a support system for two young adults going through the transplant process? (or worse?) No trying to be a downer, but I know how hard it is for Mike's parents watching his health deteriorate as we wait for new lungs for years. They are able to give him all of their attention because he is their only child. I wouldn't wish it on them a second time. Nor on myself, which is why we will adopt if I am a carrier (if we decide to have a kid). Good luck making what is a very difficult decision! It is not one anyone on here will agree on!
 
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sknoell</b></i>

Tess, Thank you, you are the type of person I was looking for an answer from. Someone in that exact situation. Sounds like your parents did a great job with you. You sound very levelheaded.</end quote></div>

You're kidding right?

By your reaction to only accepting sknoell's response, it is obvious you don't care about your childs health as much as you care about your desire to have kids. Who cares if they resent you? He or she might suffer their whole life.

Again, only thinking about yourself, and them being mad at you, not thinking about his or her quality of life.

Are you all seriously going to play games with people like this, and not tell them how absurd this is?

Next time you are very ill, and are puking your guts out until your stomach feels like it is going to burst, and your eyes are about to pop out, your back is about to break, you can't stop sweating as you gasp for air, and you wish you could just die to stop it all. Tell me you would knowingly do that to your child over, and over, and over. That is what a major coughing fit can feel like.

I wouldn't wish that on any (ok many) people, and you would do it to your son or daughter.

Can't wait to see your response. Bet you don't even consider what I said.

Sorry for being so direct, but somebody needs to.
 
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sknoell</b></i>

Tess, Thank you, you are the type of person I was looking for an answer from. Someone in that exact situation. Sounds like your parents did a great job with you. You sound very levelheaded.</end quote></div>

You're kidding right?

By your reaction to only accepting sknoell's response, it is obvious you don't care about your childs health as much as you care about your desire to have kids. Who cares if they resent you? He or she might suffer their whole life.

Again, only thinking about yourself, and them being mad at you, not thinking about his or her quality of life.

Are you all seriously going to play games with people like this, and not tell them how absurd this is?

Next time you are very ill, and are puking your guts out until your stomach feels like it is going to burst, and your eyes are about to pop out, your back is about to break, you can't stop sweating as you gasp for air, and you wish you could just die to stop it all. Tell me you would knowingly do that to your child over, and over, and over. That is what a major coughing fit can feel like.

I wouldn't wish that on any (ok many) people, and you would do it to your son or daughter.

Can't wait to see your response. Bet you don't even consider what I said.

Sorry for being so direct, but somebody needs to.
 
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sknoell</b></i>

Tess, Thank you, you are the type of person I was looking for an answer from. Someone in that exact situation. Sounds like your parents did a great job with you. You sound very levelheaded.</end quote></div>

You're kidding right?

By your reaction to only accepting sknoell's response, it is obvious you don't care about your childs health as much as you care about your desire to have kids. Who cares if they resent you? He or she might suffer their whole life.

Again, only thinking about yourself, and them being mad at you, not thinking about his or her quality of life.

Are you all seriously going to play games with people like this, and not tell them how absurd this is?

Next time you are very ill, and are puking your guts out until your stomach feels like it is going to burst, and your eyes are about to pop out, your back is about to break, you can't stop sweating as you gasp for air, and you wish you could just die to stop it all. Tell me you would knowingly do that to your child over, and over, and over. That is what a major coughing fit can feel like.

I wouldn't wish that on any (ok many) people, and you would do it to your son or daughter.

Can't wait to see your response. Bet you don't even consider what I said.

Sorry for being so direct, but somebody needs to.
 

dasjsmum

New member
As a parent, we never know what is going to happen with our children...they could have a car accident and be in a wheel chair etc...no body knows how your children's health with turn out...my 27 yr old wasnt supposed to live to be a teenager...he's here well and strong, plays sport, has a full time job etc.

Okay, this is not everyone's experience, but it is the experience of many cfers, as is the terribly sick with cf experience. There are many good treatments in the pipeline also.
 

dasjsmum

New member
As a parent, we never know what is going to happen with our children...they could have a car accident and be in a wheel chair etc...no body knows how your children's health with turn out...my 27 yr old wasnt supposed to live to be a teenager...he's here well and strong, plays sport, has a full time job etc.

Okay, this is not everyone's experience, but it is the experience of many cfers, as is the terribly sick with cf experience. There are many good treatments in the pipeline also.
 

dasjsmum

New member
As a parent, we never know what is going to happen with our children...they could have a car accident and be in a wheel chair etc...no body knows how your children's health with turn out...my 27 yr old wasnt supposed to live to be a teenager...he's here well and strong, plays sport, has a full time job etc.

Okay, this is not everyone's experience, but it is the experience of many cfers, as is the terribly sick with cf experience. There are many good treatments in the pipeline also.
 
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dasjsmum</b></i>

hello



As you can see by my profile, we have four children...the first two had cf, but have been relatively well their whole lives, sure, they have some issues to deal with, but not like some others wcf.

My daughter (25) is married and plans on having a family (her husband is not a carrier)...she is determined not to let cf dictate how she lives her life... when they are ready to start a family they will (like every other young couple).



We decided to have another child after 15 years...our first two were very well, otherwise we probably wouldnt have. We didnt have any testing for cf. This child has cf also and has been a bit sicker than the other two.

Our fourth child was a surprise gift who does not have cf (but wishes he did so he could eat junk food).



None of my children would choose not to have been born, even with cf...my daughter has spoken to me about this. Life is a GIFT...every day is a gift, every life is a gift, even with cf or other problems.



I didnt know in advance that my kids had cf, and I could have with the third and fourth, but chose not to...I would have kept them anyhow, what was the point in knowing. I realise that people have different views on this...it is entirely personal and I make no judgment on any others.



For a fantastic view on life from a cf person who has been through everything possible and loves life to the utmost...read this



<a target=_blank class=ftalternatingbarlinklarge href="http://www.pinkandsmiley.blogspot.com/
">"><a target=_blank class=ftalternatingbarlinklarge href="http://www.pinkandsmiley.blogspot.com/
"><br "><a target=_blank class=ftalternatingbarlinklarge href="http://www.pinkandsmiley.blogspot.com/
<br ">http://www.pinkandsmi...ogspot...
</a></a>
</a>



I realise this could be a bit confronting, my point of posting this blog link is to show what a fantastic outlook on life Emily has, despite everything she has been through, she wants to live more than anything else...it doesnt get worse (in cf) than Emily's experience, but be inspired by her optimism and courage...I think she's glad to be here!</end quote></div>


Unbelievable. Who do you think you are speaking for them?

I am not speaking for Emily, but I am speaking to the multiple friends I have that have CF, and myself.

I am not a bitter person, I love life most of the time, that doesn't mean I would risk hurting somebody for NO reason. That is all you are doing, taking that chance. I don't despise my parents, and wouldn't even if they knew they were both carriers. I can't believe you are trying to relate that to them despising you. They are just "bigger" people than you are, they aren't blaming you when you knowingly took that risk, and that risk will Kill them.............

You can try to rationalize it all you want. The facts are clear.
 
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