To have more children (with possible CF) or not

J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dasjsmum</b></i>



CF is not the same for everyone.</end quote></div>

EXACTLY

the closest you can determine is based on statistics and so there are so many variables that influence them. I think what most of us CFers wouldnt say I AM SORRY THAT YOU EVER HAD ME KNOWING I COULD HAVE CF........BUT that still doesnt change what CF will produce as some point. Kudos to those who are able to have a fulfilling life and CF not over take them early..........
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dasjsmum</b></i>



CF is not the same for everyone.</end quote></div>

EXACTLY

the closest you can determine is based on statistics and so there are so many variables that influence them. I think what most of us CFers wouldnt say I AM SORRY THAT YOU EVER HAD ME KNOWING I COULD HAVE CF........BUT that still doesnt change what CF will produce as some point. Kudos to those who are able to have a fulfilling life and CF not over take them early..........
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dasjsmum</b></i>



CF is not the same for everyone.</end quote></div>

EXACTLY

the closest you can determine is based on statistics and so there are so many variables that influence them. I think what most of us CFers wouldnt say I AM SORRY THAT YOU EVER HAD ME KNOWING I COULD HAVE CF........BUT that still doesnt change what CF will produce as some point. Kudos to those who are able to have a fulfilling life and CF not over take them early..........
 
S

sknoell

New member
Thanks to those that are supportive. I have spoken to his doctors. My son has 2 very rare, MILD strains so the long term effects are not the norm. If he was 508 or another more serious strain, I would never even consider it.

Yes the future is always unclear but that is for everything. I do want alot of kids that can also be there to support each other.

My husband is the one that is more unsure with the whole thing.

Thanks again. I thought reaching out on this forum would be helpful but it just shows me the spite in people instead.
 
S

sknoell

New member
Thanks to those that are supportive. I have spoken to his doctors. My son has 2 very rare, MILD strains so the long term effects are not the norm. If he was 508 or another more serious strain, I would never even consider it.

Yes the future is always unclear but that is for everything. I do want alot of kids that can also be there to support each other.

My husband is the one that is more unsure with the whole thing.

Thanks again. I thought reaching out on this forum would be helpful but it just shows me the spite in people instead.
 
S

sknoell

New member
Thanks to those that are supportive. I have spoken to his doctors. My son has 2 very rare, MILD strains so the long term effects are not the norm. If he was 508 or another more serious strain, I would never even consider it.

Yes the future is always unclear but that is for everything. I do want alot of kids that can also be there to support each other.

My husband is the one that is more unsure with the whole thing.

Thanks again. I thought reaching out on this forum would be helpful but it just shows me the spite in people instead.
 
S

sknoell

New member
Thanks to those that are supportive. I have spoken to his doctors. My son has 2 very rare, MILD strains so the long term effects are not the norm. If he was 508 or another more serious strain, I would never even consider it.

Yes the future is always unclear but that is for everything. I do want alot of kids that can also be there to support each other.

My husband is the one that is more unsure with the whole thing.

Thanks again. I thought reaching out on this forum would be helpful but it just shows me the spite in people instead.
 
S

sknoell

New member
Thanks to those that are supportive. I have spoken to his doctors. My son has 2 very rare, MILD strains so the long term effects are not the norm. If he was 508 or another more serious strain, I would never even consider it.

Yes the future is always unclear but that is for everything. I do want alot of kids that can also be there to support each other.

My husband is the one that is more unsure with the whole thing.

Thanks again. I thought reaching out on this forum would be helpful but it just shows me the spite in people instead.
 
S

sknoell

New member
Thanks to those that are supportive. I have spoken to his doctors. My son has 2 very rare, MILD strains so the long term effects are not the norm. If he was 508 or another more serious strain, I would never even consider it.

Yes the future is always unclear but that is for everything. I do want alot of kids that can also be there to support each other.

My husband is the one that is more unsure with the whole thing.

Thanks again. I thought reaching out on this forum would be helpful but it just shows me the spite in people instead.
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sknoell</b></i>

Thanks again. I thought reaching out on this forum would be helpful but it just shows me the spite in people instead.</end quote></div>


I would not call all of it spite. Its a very controversial and passionate topic. Most responses are from "seasoned" CFers. Although the presentation of some can suck........the meaning behind it is pure concern. Please dont confuse that with spite because the words in print cant be distinguished!
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sknoell</b></i>

Thanks again. I thought reaching out on this forum would be helpful but it just shows me the spite in people instead.</end quote></div>


I would not call all of it spite. Its a very controversial and passionate topic. Most responses are from "seasoned" CFers. Although the presentation of some can suck........the meaning behind it is pure concern. Please dont confuse that with spite because the words in print cant be distinguished!
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sknoell</b></i>

Thanks again. I thought reaching out on this forum would be helpful but it just shows me the spite in people instead.</end quote></div>


I would not call all of it spite. Its a very controversial and passionate topic. Most responses are from "seasoned" CFers. Although the presentation of some can suck........the meaning behind it is pure concern. Please dont confuse that with spite because the words in print cant be distinguished!
 
W

wannastayanonymous

New member
Tess,

This was not in response to your post, but in response to Sknoell's acceptance of only what she wanted to hear. What "group" are you referring to. The "group" that agrees with her. So that is all she wants to hear?

This isn't a matter of opinion. It isn't a matter of belief. It is a matter of being honest with her approach to this, and what the actual conscious decision she is making, knowing the facts. This IS a black and white issue, and I can say I believe there are VERY few of those in life.
 
W

wannastayanonymous

New member
Tess,

This was not in response to your post, but in response to Sknoell's acceptance of only what she wanted to hear. What "group" are you referring to. The "group" that agrees with her. So that is all she wants to hear?

This isn't a matter of opinion. It isn't a matter of belief. It is a matter of being honest with her approach to this, and what the actual conscious decision she is making, knowing the facts. This IS a black and white issue, and I can say I believe there are VERY few of those in life.
 
W

wannastayanonymous

New member
Tess,

This was not in response to your post, but in response to Sknoell's acceptance of only what she wanted to hear. What "group" are you referring to. The "group" that agrees with her. So that is all she wants to hear?

This isn't a matter of opinion. It isn't a matter of belief. It is a matter of being honest with her approach to this, and what the actual conscious decision she is making, knowing the facts. This IS a black and white issue, and I can say I believe there are VERY few of those in life.
 
B

blondelawyer

New member
I don't think that most of these posts are showing the "spite" in people--they are just giving honest opinions. I know that is what I did. Like some of the others, I didn't see that you were looking for opinions only from adults with CF whose parents knew it was a possibility before they were born. I was thinking that you wanted honest opinions of people who are in different positions. I do not consider my comments to be spiteful in any sense.

This is a very controversial topic (see the post in the Adults with CF thread about people with having CF having children), as I am sure you knew. People are going to have different views, and some are going to have very strong views. Recognize that people are going to disagree on this.

In "defense" of some of the harsher comments, I don't think that he (wannastayanonymous) was saying the a CF life is rubbish--just that the disease is really difficult to live with in so many different ways and thus it would be difficult to knowingly put someone else in that position--which I think is a valid point.

As many people have said, this is obviously a personal choice and it is good that you are thinking about it and making a conscious choice. Best wishes!


<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sknoell</b></i>

Thanks to those that are supportive. I have spoken to his doctors. My son has 2 very rare, MILD strains so the long term effects are not the norm. If he was 508 or another more serious strain, I would never even consider it.



Yes the future is always unclear but that is for everything. I do want alot of kids that can also be there to support each other.



My husband is the one that is more unsure with the whole thing.



Thanks again. I thought reaching out on this forum would be helpful but it just shows me the spite in people instead.</end quote></div>
 
B

blondelawyer

New member
I don't think that most of these posts are showing the "spite" in people--they are just giving honest opinions. I know that is what I did. Like some of the others, I didn't see that you were looking for opinions only from adults with CF whose parents knew it was a possibility before they were born. I was thinking that you wanted honest opinions of people who are in different positions. I do not consider my comments to be spiteful in any sense.

This is a very controversial topic (see the post in the Adults with CF thread about people with having CF having children), as I am sure you knew. People are going to have different views, and some are going to have very strong views. Recognize that people are going to disagree on this.

In "defense" of some of the harsher comments, I don't think that he (wannastayanonymous) was saying the a CF life is rubbish--just that the disease is really difficult to live with in so many different ways and thus it would be difficult to knowingly put someone else in that position--which I think is a valid point.

As many people have said, this is obviously a personal choice and it is good that you are thinking about it and making a conscious choice. Best wishes!


<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sknoell</b></i>

Thanks to those that are supportive. I have spoken to his doctors. My son has 2 very rare, MILD strains so the long term effects are not the norm. If he was 508 or another more serious strain, I would never even consider it.



Yes the future is always unclear but that is for everything. I do want alot of kids that can also be there to support each other.



My husband is the one that is more unsure with the whole thing.



Thanks again. I thought reaching out on this forum would be helpful but it just shows me the spite in people instead.</end quote></div>
 
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