I hate the fact that my child has CF, but in a way that is what makes him who he is. He has been thru several surgeries in his 4 years, hospitalizations, home IV's, etc., etc., He is the strongest child I know and I learn from him every day. I believe God gave him to us for a reason, we had never dealt with anything like this before, never even knew it existed! Our lives are completely differenet now, we aren't so much into money, we appreciate our families more, I no longer work to stay home to care for our kids. My husband tends to feel guilty for him having CF, he has a harder time than I, even though I do all the med's and breathing treatments- 4 a day. I don't know how long our child will be with us, but I would much rather have him than to of never of known him at all! I don't know how I will ever handle it if something were to happen to him before we are gone, I try not to think about it and live day to day. None of us are gaurenteed anything.
Take care