To the CF girls

[Emeraldmirror]

Just wondering, do any of you notice that right before and during your period your CF acts up a little big more? You cough a little bit more and (if your me) you get a little incontinent. And even before you feel like you haven't taken your enzymes for a few days and your "movements" are the same way. I never had PMS before and I was just wondering if any other women with CF find that the hormone flucuations during your period affects your CF in anyway.


Ashley 20 w/ CF

 

[Emeraldmirror]

Just wondering, do any of you notice that right before and during your period your CF acts up a little big more? You cough a little bit more and (if your me) you get a little incontinent. And even before you feel like you haven't taken your enzymes for a few days and your "movements" are the same way. I never had PMS before and I was just wondering if any other women with CF find that the hormone flucuations during your period affects your CF in anyway.


Ashley 20 w/ CF

 

[anonymous]

Yes, definately! I am more congested & short of breath right before & during that wonderful time of month! Also, like you mentioned, the ole loose stool syndrome is active during that time too<img src="i/expressions/face-icon-small-blush.gif" border="0"> You're not alone!

 

[anonymous]

Yes, definately! I am more congested & short of breath right before & during that wonderful time of month! Also, like you mentioned, the ole loose stool syndrome is active during that time too<img src="i/expressions/face-icon-small-blush.gif" border="0"> You're not alone!

 

[ClashPunk82]

ya know i never thought about it but ya i do get more symptomatic during my period. feeling tight and short of breath and yes bathroom issues too, BLAH! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Nicole 22 CF

 

[ClashPunk82]

ya know i never thought about it but ya i do get more symptomatic during my period. feeling tight and short of breath and yes bathroom issues too, BLAH! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Nicole 22 CF

 

[anonymous]

YEP! all the same problems...hehe it's great being a girl (thumbs down) <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[anonymous]

YEP! all the same problems...hehe it's great being a girl (thumbs down) <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[anonymous]

I too have these issues. I have found being on birth control makes the issues less. My lung function seems to be better - meaning I don't think I get sick as easily. I had blood drawn from my arm one time to see if I was loosing alot of blood during my period, seeing if that was the issue - it wasn't. But those hormones do some crazy things.

 

[anonymous]

I too have these issues. I have found being on birth control makes the issues less. My lung function seems to be better - meaning I don't think I get sick as easily. I had blood drawn from my arm one time to see if I was loosing alot of blood during my period, seeing if that was the issue - it wasn't. But those hormones do some crazy things.

 

[anonymous]

YUP!!!

In fact i am always on antibiotics right around the time of period. If i am feeling a little down before it shows up then when it shows up i almost always end up in hospital or on home IV for a couple weeks. It has gotten better since going on birth control though, don't know if anyone else found that the pill helped.

Julie

 

[anonymous]

YUP!!!

In fact i am always on antibiotics right around the time of period. If i am feeling a little down before it shows up then when it shows up i almost always end up in hospital or on home IV for a couple weeks. It has gotten better since going on birth control though, don't know if anyone else found that the pill helped.

Julie

 

[Emeraldmirror]

I'm actually really really bad at taking the pill, so it kinda screwed things up. I'm on the patch now(which is AWSOME, no pills just change it once a week). But I've been on birth control it since I was 15 so I was kinda young to have the real problems before.


Ashley 20w/ cf

 

[Emeraldmirror]

I'm actually really really bad at taking the pill, so it kinda screwed things up. I'm on the patch now(which is AWSOME, no pills just change it once a week). But I've been on birth control it since I was 15 so I was kinda young to have the real problems before.


Ashley 20w/ cf

 

[anonymous]

Yes, right before my period, I cough more and have more congestion. I know that alot of women who have Asthma go through what they call "Pre-Menstrual Asthma flare up". I have Normal lung function (FEV1 - 100% and FVC- 112%) and even I get what your talking about right before my period and even while Im on my period. I started birth control pills to control my irregular cycles and also I have noticed it has helped with my pre-menstrual symptoms, however what works for me may not work for everyone, so I am NOT recommending to try the pill for that. I talked to my CF doctor about and she said that alot of women with CF seems to have that problem and sometimes even when a girl with CF begins puberty sometimes its so hard on the body that some have a lung function decline.
Thornsgirl 21 CF CFRD

 

[anonymous]

Yes, right before my period, I cough more and have more congestion. I know that alot of women who have Asthma go through what they call "Pre-Menstrual Asthma flare up". I have Normal lung function (FEV1 - 100% and FVC- 112%) and even I get what your talking about right before my period and even while Im on my period. I started birth control pills to control my irregular cycles and also I have noticed it has helped with my pre-menstrual symptoms, however what works for me may not work for everyone, so I am NOT recommending to try the pill for that. I talked to my CF doctor about and she said that alot of women with CF seems to have that problem and sometimes even when a girl with CF begins puberty sometimes its so hard on the body that some have a lung function decline.
Thornsgirl 21 CF CFRD